Thalassemia Patients and Friends

Discussion Forums => Thalassemia-related Issues => Topic started by: Aaron18 on December 13, 2015, 11:30:52 PM

Title: Thal major with diabetes
Post by: Aaron18 on December 13, 2015, 11:30:52 PM

Hi
Anyone got diabetes along bieng thal major?
Could share your experience with us

Thanks

Title: Re: Thal major with diabetes
Post by: Sharmin on December 14, 2015, 04:40:17 PM

Hello Aaron18,

We have a few members who have both thal major and diabeties.  I do believe that some of them have experienced improvement of their diabeties with better chelation. 

Sharmin

Title: Re: Thal major with diabetes
Post by: nice friend on January 05, 2016, 11:36:05 PM

Aaron,
Sharmin is right Aaron ... i m thal major and diabetes melitus patient ,, when i diagnose with diabetes my ferritin level was aroun 13000 and my insulin dose was 80 units morning and 70 evening ... but now since last 4 yrs my ferritin level is around 700,, and i m on 44 units moring and 34 evening since past 3-4 years ....

btw , wat is your ferritin level ???

Title: Re: Thal major with diabetes
Post by: Dharmesh on January 06, 2016, 06:49:41 AM

Hi
There is 50% chance that diabetes will be reversed after ferritin and iron level gets under control.
(Source Thalpal :biggrin)

In other cases, The insulin requirement comes down when ferritin level falls.

Managing Diabetes is much tough thing than Thal. Consulting a good Endocrinologist is must

Title: Re: Thal major with diabetes
Post by: Dharmesh on January 06, 2016, 06:50:58 AM

It is also advisable not to keep sugar in perfect control as it can lead to severe hypoglycemia

Title: Re: Thal major with diabetes
Post by: Andy Battaglia on January 07, 2016, 08:18:55 PM

That is great advice, H. I lost a friend (not a thal) last year when his sugar dropped too low and he went into a coma. He eventually succumbed to heart failure. It isn't just high sugar that's dangerous. Low sugar can kill a person.

Title: Re: Thal major with diabetes
Post by: Dharmesh on January 08, 2016, 08:40:05 AM

My deep Condolence for your friend.

I had gone through low sugar at night around 3 am  because of one idiot Endocrinologist who gave me excessively high dosage of insulin. Only because of god grace i came back to life otherwise that was the most dangerous night of my life. Bull shit Endo.

My sincere gratitude to Shree Kapila Hanumanji, Maa & Gurudev to gave me new life.

PS
Last week i gave sample for HbA1c but theri both machine failed to gave reading. I am little bit puzzuled why it happend?
Does it has any connection with my Fetal Hb?

  

Title: Re: Thal major with diabetes
Post by: Andy Battaglia on January 09, 2016, 09:37:20 PM

I don't know why they couldn't get a reading for HbA1c, but that test is only useful for comparison from time to time in a diabetic. It has no other value for anyone carrying thalassemia, other than to monitor already diagnosed diabetes. Variant Hb's like HbF may alter the outcome of the test. I think some of it has to do with the expertise of the tech running the test.