Thalassemia Patients and Friends

Discussion Forums => Miscellaneous Questions => Topic started by: Syeda on March 28, 2016, 01:05:10 PM

Title: 2016 CAF Patient-Family Conference- San Diego
Post by: Syeda on March 28, 2016, 01:05:10 PM

Hi! Is anyone going to be at the CAF Patient-Family Conference in San Diego this year (July 8-10, 2016)? My family and I will be going and would love to meet other families from this site who are planning to attend :)

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Sharmin on March 29, 2016, 05:36:04 PM

Hi Syeda,

We have booked flights to go - Lil A will be seen in Oakland prior to the conference.  Our only apprehension is the $400.00 entry per person they are charging Canadian patients - which will be $600.00 considering our dollar these days..

Sharmin

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Bostonian_04 on March 29, 2016, 07:24:01 PM

We plan to go to :)

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Syeda on April 05, 2016, 05:45:18 PM

Awesome - I will private message you guys.

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Sharmin on April 05, 2016, 06:08:40 PM

Please do Syeda,

I look forward to meeting you.  Bostonian, we look forward to meeting your family again. 

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Princess'M' on April 14, 2016, 06:46:02 AM

We are also attending for the first time! Very excited!

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Sharmin on April 14, 2016, 03:25:40 PM

We look forward to seeing you there!

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Bostonian_04 on April 21, 2016, 04:28:12 AM

We registered...hoping to see many of you in San Diego and put faces to the names :)

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Dori on April 24, 2016, 09:38:16 AM

I have asked my PKD-colleagues to participate in this conference. Maybe I may direct them to this thread so that they know already someone when they attend?
Sharmin, it is pretty expensive. How much is the fee for American patients?

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Andy Battaglia on April 24, 2016, 06:08:30 PM

There is no fee for Americans. This is one area where I do not agree with CAF. I do not think people should be penalized because they don't live in the US. Very few can make the arrangements to come to the US for thal conferences and this policy only deters those few from attending. With visas so tough to get, I feel that CAF should change this policy.

Title: Re: 2016 CAF Patient-Family Conference- San Diego
Post by: Parin on July 21, 2016, 06:55:12 PM

Can you please share the updates from Conference if anyone attended?