Thalassemia Patients and Friends
Discussion Forums => Thalassemia Minor => Topic started by: jsbhavsar on March 21, 2017, 11:53:14 AM
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There are bunch of vitamins and combinations of vitamins available OTC and Rx.
Which ones are the best for beta thalassemia patients?
Eg
In my view B9 and B12 are good and must, and can bring good results in maintaining a thalassemia patient.
Any other exclusive vitamins useful?
On Vitamin B6 I am not sure how it plays a role in helping thal patients or whether it creates a problem.
On Vitamin B3 (Nicotinamide) particularly, it did not help me, it just elevated my uric acid from 6.8 to 9.0 (in 10 days)
Are there any vitamins to stay away from?
Eg. Does Vitamin K / Vitamin E come into the 'stay away' list?
What should beta thalassemia patients prefer to take?
What should we stay away from?
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Natural vitamin E is at the top of the list of what thals should take. It is the premiere antioxidant and is also a mild blood thinner, which helps blood reach the extremities. Vitamin K works with vitamin D, so it's useful to take. B-12 and folate are recommended.
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Thanks Andy.
Any views on Vitamin B6 and role it would play in beta thal patients?
https://www.westonaprice.org/health-topics/abcs-of-nutrition/vitamin-b6-the-under-appreciated-vitamin/
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I agree on what has been recomendet by Andy already plus I would add a-lipoic acid.
I also have had the same reaction with B3 and think this is something to avoid because of Haemolisys.
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B-6 promotes red blood cell production and deficiency causes small red blood cells, of which thals do not need more.
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Thanks Andy.
Atleast in India, none of my doctors have noted on file about B6 anywhere.
Vitamin B6 is most common for the tuberculosis treatment here in India.
If I were told to consume B6 along with Febuxostat 40 mg then would damage have been lesser or limited?
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With advice from Andy, I did start taking Vit E capsule (Alpha Tocopheryl) 400 mg per day. It does make me feel better along with my other nutrients I am taking like Folic Acid, B12 shots, Vit D3.
The feeling after Vit E capsule is much better.
I dont know if I should keep taking it daily. I dont want it to act as blood thinner and react badly.
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If you're not taking any blood thinning drugs, vitamin E should be safe. I've taken it daily for 40 years.
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If you're not taking any blood thinning drugs, vitamin E should be safe. I've taken it daily for 40 years.
Andy, building on this, should one take vitamin E if they are drinking wheatgrass daily? I believe wheatgrass is loaded with the stuff and I drink it daily?
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The vitamin E content in a supplement is much more than you will get from wheatgrass or any foods. Make sure it contains natural d-alpha tocopherol and not dl-alpha.
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good to hear from you Andy mate,
I went to Holland and Barrett yesterday and they have the following three products which are natural however;
the shop assistant told me not to believe any of the ingredients in these as they are all generally synthetic one way or the other. Is this true?
Can you take a look at these links and tell me if you think I should ignore he's advice and get one or if you have a confirmed substitute source and were I can purchase it?
http://www.hollandandbarrett.com/shop/product/holland-barrett-100-natural-vitamin-e-oil-30000iu-60000810?skuid=000810
http://www.hollandandbarrett.com/shop/product/holland-barrett-natural-e-complex-capsules-400iu-60000460?skuid=000460
http://www.hollandandbarrett.com/shop/product/holland-barrett-vitamin-e-capsules-400iu-60000540?skuid=000540
and finally;
http://www.solgaronline.co.uk/solgar-vitamin-e [I'm not too sure if I should be choosing vegecaps or softgels - can you help me select the right one?]
cheerse buddy.
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They're all good brands. Holland and Barrett have been in business for 145 years. Perhaps your shop assistant isn't aware that all supplements are regulated for quality and ingredients. That is why the synthetic E has to say dl-alpha on the label. I stick with reputable companies when buying supplements. I've been using supplements for more than 40 years, so I am familiar with many of the brands, like Solgar. They stick around by manufacturing good products.
Yep, ignore his advice, mate.
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@Andy
How ya doing Andy pal..
Ok, so I took the plunge and bought this: http://www.solgar.co.uk/SolgarProducts/Vitamin-E-268mg-400iu-Vegetable-Softgels.htm Hope its ok..?
I'll go ahead and start a course of this and see how things go for me. I took a baseline blood test a few days and it would be interesting to see if any changes occur.
It's just the one tablet per day right..? Us thals don't need to take more?
Thanks for all your help buddy.
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One per day is good. It's a good brand that's been around for many years.
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Hello Andy,
My 4 yrs old baby daily takes:
Fish oil 1000 mg
Wheatgrass 1000 mg
Vitamin E 400 IU
All are blood thinner.
She takes wheatgrass of Pines International.But there is nothing mention about Vit E.Is it Vit E free? ???
As Vitamin E works as a blood thinner please advice if you feel any changes ..
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Thals benefit from taking natural blood thinning supplements. The blood of thals tends to clot or block blood vessels more easily, so these supplements are needed to help alleviate that.
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Thals benefit from taking natural blood thinning supplements. The blood of thals tends to clot or block blood vessels more easily, so these supplements are needed to help alleviate that.
Andy I'd just like to point out that in some situations this may not be a great idea as splenomegaly can sometimes swallow huge numbers of platelets resulting in low counts so I would assume that getting the blood even thinner may cause lack of clotting when required most (wounds, cuts, grazes, blood tests, etc.)?
(of course depending on the degree of Thalassemia to start with)
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The opposite is actually true. Low platelets are most often a result of oxidation. Vitamin E is a superb antioxidant that can help to prevent the destruction of platelets. I would not suggest more than 400 IU daily if platelets are low.
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@Andy Hi Andy, but I would have thought the mass reduction in platelets is because the spleen is so large and they simply get stuck in there which is why thrombosis is the concern when having a spleen removed? I would assume that taking vitamin E if you still have your spleen would certainly be beneficial however?
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Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.
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Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.
@Andy
Totally agreed.
I also had a little read about how blood thinners work.
My mistake, If I understand correctly they do not reduce numbers they either prevent the clumping process (aspirin) or they lengthen the time it takes for platelets to clump together (warfarin)..??
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Dear Andy,
Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.
My baby taking fish oil so we stop giving her vitamin E ?
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Lokkhi,
There is no reason she can't take both.