Thalassemia Patients and Friends
Discussion Forums => Thalassemia Intermedia => Topic started by: Mubeen on May 11, 2017, 08:58:47 AM
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My son is suffering with sickle cell and beta thalasemia advised me what should I do?
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May be little more details would help like hbh age etc. hydrauxia for sickle cells works for some.
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My son age is 19 months and Hb level 8.
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Did you do the genotype sequencing electrophoresis? What does it say?
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The child is beta+ sickle cell. It's difficult to predict the future, but in most cases, it means transfusions will not be regularly required, but precautions against sickling crisis should be taken, such as avoiding high altitudes.
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Thanks to quick reply me again thanks God bless You always.
Dear I want to ask which complication in future about my son decease?
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The biggest danger is the sickling crisis, when the sickle shaped cells cause blood vessels to be blocked temporarily. I suggest that daily vitamin E be given to the child to help prevent this.
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Dear plz tell me beta thalaseemia can be dangerous?
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HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?
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HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?
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Mubeen,
Beta thalassemia is dangerous when two beta thal genes are present.
I would not suggest stopping hydroxyurea unless your doctor says to stop.
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Dear above reports shows One beta thal present or two beta thal present?
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It couldn't be two beta thal genes. One beta globin gene is beta thal and the other is sickle cell.
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Thanks dear