Thalassemia Patients and Friends
Discussion Forums => Iron Chelation Corner => Topic started by: Pratik on June 17, 2017, 06:43:21 AM
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Anyone has heard of this new chelator by Novartis? I went to Dr Ramanan in Pune recently and he recommended this to me. It's costly but said to be more effective than exjade.
The internet has almost no info about it.
Andy, have you heard of this drug?
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I think its oral chelator and in India may be called by name Oleptis. Here in USA Novartis called oral chelator as a Jadenu
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Jadenu is available here too.
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Is the spelling correct? I can't find any mention of it online, other than here.
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Is the spelling correct? I can't find any mention of it online, other than here.
I believe it's correct. I couldn't find anything too.
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There seems to be a seminar happening in Mumbai in September on this medicine. Please find the attachment for more details. Is this jadenu that had been renamed to oleptiss.
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The correct name is "Oleptiss" and it's indian version of Jadenu. Dr M B Agarwal is organising the seminar on Sept 9, 2017 at Mumbai
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Thanks for the information. Let's hope it's more effective than Exjade.
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It's the same exact drug as Exjade in a different form that makes it easier to take.
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The only question I have does anyone know if its right now available in India or its going to be released soon. I can't find the medicine in any online store.
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No, right now it is not available in India. But it will be launched soon in India named as Oleptiss
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I had attended the conference organized by Dr. MB Agarwal in Mumbai and was quite surprised to hear that Oleptiss was already available across India and some of his patient have been on Oleptiss for atleast past2-3 months.
regards,
R
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Yes, it is available in India and Dr R had already started prescribing to patients.
It's around Rs 5800 (don't remember the exact figure) for 260 mg tab so out of reach of 99.99% patients.
I was also there at seminar
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Did anyone mention if there is any possibility that an Indian company will manufacture the drug at a more affordable cost, as is the case with Kelfer and Desirox?
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Did not get a single word on generic version of Oleptiss.
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Yes, it is available in India and Dr R had already started prescribing to patients.
It's around Rs 5800 (don't remember the exact figure) for 260 mg tab so out of reach of 99.99% patients.
I was also there at seminar
It breaks my heart to see that most patients in India cannot afford Jadenu. I have children and I cannot imagine the pain parents feel of not affording a drug at this cost. If a patient is taking 500mg per day, it will cost them approx. Rs 11,000 or approx. $18 per day. May be if you can re-confirm the price....it sounds unreasonable....
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No need to break the heart at all !!!!!
We have so many options namely defrijet/desirox aka Exjade (available free of cost in my state i.e. Gujarat) We have free desferal , we have Kelfer aka L1 at a concessional rate. Even the govt is helping financially for BMT nowadays....
At the same time the Rs 11000 cost may be ok but tell me how many patients are taking ONLY 500 mg ???
Here adult patients are taking 4-5 tabs of 500 mg each daily for 50 kg weight , then what will be the cost ?? Rs 55000 woooo , Dear oleptiss please stay away from me as even i don't want to touch you and m happy with defrijet (orange flavor)
and Rs 30000 was the amount written by Dr R in FB post...
So please don't be sad... The MNCs are not gonna making money here....
PS : Are you playing dandiya in this Navratri (Nine nights) festival???
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If a generic form does not appear, it seems Oleptiss will not be affordable for most Indian patients.
Strangely, I have heard from several people who were fine with Exjade but could not tolerate Jadenu.
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Hmm
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No need to break the heart at all !!!!!
We have so many options namely defrijet/desirox aka Exjade (available free of cost in my state i.e. Gujarat) We have free desferal , we have Kelfer aka L1 at a concessional rate. Even the govt is helping financially for BMT nowadays....
At the same time the Rs 11000 cost may be ok but tell me how many patients are taking ONLY 500 mg ???
Here adult patients are taking 4-5 tabs of 500 mg each daily for 50 kg weight , then what will be the cost ?? Rs 55000 woooo , Dear oleptiss please stay away from me as even i don't want to touch you and m happy with defrijet (orange flavor)
and Rs 30000 was the amount written by Dr R in FB post...
So please don't be sad... The MNCs are not gonna making money here....
PS : Are you playing dandiya in this Navratri (Nine nights) festival???
As per doctor agarwal, only 1 tablet of oleptus will be needed per day. If that is the case, than the cost of the tablet will come down considerably. Also he justified the cost by saying that the management of other iron chelators is a tedious job, as you are required to fast before taking the tablet, however this is not the case with oleptus, it can be taken with food or drinks, anytime of the day without fasting, it can be sprinkled on the food and eaten. This helps in managing chelation better.
What he meant is in the long run, oleptus will help save costs from treatment of other complications that may happen by missing dosage on other chelators.
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Hey everyone, something has happened to my last post. I was just saying that in my case it is the opposite, I have better results on Ferritin and LIC with Jadenu than I have had with exjade. This makes me think again that beside Thalassaemia we are all individuals who do not always respond same...
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As per doctor agarwal, only 1 tablet of oleptus will be needed per day.
Lol...
Andy,
Is it correct?
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It isn't correct. If it is the same as Jadenu, the dose is based on weight, as with all chelators.
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No need to break the heart at all !!!!!
We have so many options namely defrijet/desirox aka Exjade (available free of cost in my state i.e. Gujarat) We have free desferal , we have Kelfer aka L1 at a concessional rate. Even the govt is helping financially for BMT nowadays....
At the same time the Rs 11000 cost may be ok but tell me how many patients are taking ONLY 500 mg ???
Here adult patients are taking 4-5 tabs of 500 mg each daily for 50 kg weight , then what will be the cost ?? Rs 55000 woooo , Dear oleptiss please stay away from me as even i don't want to touch you and m happy with defrijet (orange flavor)
and Rs 30000 was the amount written by Dr R in FB post...
So please don't be sad... The MNCs are not gonna making money here....
PS : Are you playing dandiya in this Navratri (Nine nights) festival???
Hi man,
Where is it available for free? Can you share it please?
Thanks!