Thalassemia Patients and Friends

Discussion Forums => Thalassemia Minor => Topic started by: urja on November 21, 2018, 10:38:02 AM

Title: Beta thal minor with alpha triplication
Post by: urja on November 21, 2018, 10:38:02 AM

Hello everyone.
I am a beta thal minor with alpha triplication.
Anyone here come across this ?
Like any help on diet, nutrition, anything that gelps me feel better?
Thank you
Urja

Title: Re: Beta thal minor with alpha triplication
Post by: Andy Battaglia on December 15, 2018, 07:29:26 PM

How is your Hb level? The combination of the triplicated alpha gene with beta minor can result in a variable condition that ranges from minor to intermedia, due to the high imbalance of alpha and beta globin.
Anything that helps raise fetal hemoglobin should help. These include wheatgrass (in any form), L-methylfolate and sublingual vitamin B-12. L-carnitine may also be of help. Raising the fetal hemoglobin would mean some of the excess alpha globin is used, reducing the imbalance of globins.