Thalassemia Patients and Friends

Discussion Forums => Working Towards a Cure => Topic started by: hopefulmommy on January 03, 2023, 09:43:59 PM

Title: Etavopivat/ FT-4202
Post by: hopefulmommy on January 03, 2023, 09:43:59 PM

Hello,
Doctors here at Oakland Children's Hospital are wanting to enroll child for Etavopivat clinical trials to increase Hg by 1.5 points, hence increasing the gap between transfusions.

It's  a clinical trial, more trips to hospital, and more MRI scans needed, so thinking about it.

Does anyone have any experience with it or inputs?

Thanks

Title: Re: Etavopivat/ FT-4202
Post by: Andy Battaglia on January 07, 2023, 08:40:09 PM

Have the doctors given you any information about how well it is working in patients already in the trial? I was also curious whether or not Luspatercept, Reblozyl has been tried yet.