Thalassemia Patients and Friends

Discussion Forums => Iron Chelation Corner => Topic started by: jzd24 on January 14, 2007, 02:14:17 AM

Title: Some questions about starting Exjade
Post by: jzd24 on January 14, 2007, 02:14:17 AM

     I started on Exjade today!! I am so excited about getting it. I was curious as to what people take it with, and if they take it in the morning or evening? Novartis people said it could be taken at night on an empty stomach. Does anyone know if you can take it with any kind of juice, or does it have to be orange or apple? Could you take it with fresh grapefruit juice, for example? I am going to call Novartis and ask about the juice, but I thought maybe someone here had some info.
    Thanks for anything you can tell me.   :stars    Jean

Title: Re: Some questions about starting Exjade
Post by: §ãJ¡Ð ساجد on January 14, 2007, 06:17:00 AM

Hi Jean,

Congratulations on getting access to Exjade :thumbsup

The juice is just to make it more palatable. You can even take Exjade with a plain glass of water. Make sure you take plenty of fluids to keep yourself hydrated lest you develop the unpleasant stomach side-effect :wink

So, it's a good idea to take juices if you find it hard to drink water every now and then.

Take care, Peace!

Title: Re: Some questions about starting Exjade
Post by: Danielle on January 14, 2007, 08:58:55 AM

That's great, Jean!  I'm very happy for you!  :clap

The only liquids that Novartis suggests you use Exjade in is apple juice, orange juice, or water.  :)

Title: Re: Some questions about starting Exjade
Post by: Christine Mary on January 14, 2007, 02:08:59 PM

 this is fantastic Jean!!!!!!!!!!!!!  :yay :bigparty

Title: Re: Some questions about starting Exjade
Post by: Manal on January 14, 2007, 03:33:55 PM

Very happy for you Jean. Hope it goes well with you :goodluck

Take care :heartred

Manal

Title: Re: Some questions about starting Exjade
Post by: jzd24 on January 15, 2007, 05:13:37 AM

Thanks everyone. You guys are the best. I wish everyone could have Exjade. I seem to be doing pretty good on it so far. How soon after you started it did you get your rash, Danielle? My stomach is a little upset tonight, but nothing very bad at all. Peace and love, Jean

Title: Re: Some questions about starting Exjade
Post by: Danielle on January 15, 2007, 06:08:55 AM

I think I was on it for about 3 weeks to one month before the rash started, Jean.  Then, I broke out in these ugly red, raised pimple-like bumps.  It started out very little, on my legs.  Then, it increasingly became worse, and covered most of my body.  My doctor just had me lower the dose, but continue to use it.  It went away in about 7 to 10 days on it's own.   :happyyes

Just let your doctor know if you start breaking out in a rash, even if it's a little bit.  I hope your stomach feels better soon.   :hugfriend

Title: Re: Some questions about starting Exjade
Post by: jzd24 on January 15, 2007, 03:17:52 PM

Thanks for the info., Danielle. That rash sounds like it was nasty.  Jean