Thalassemia Patients and Friends
Discussion Forums => Iron Chelation Corner => Topic started by: Sharmin on March 14, 2007, 01:21:20 AM
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We had ordered IP6 a while back but we did not recieve the product. We have just placed another order, from a Canadian supplier - hopefully we will receive it soon. I believe that the capsules are 50mg each and that we should be giving our 8 year old on cap in the morning and one at night. Does this sound right Andy? I will post when we recieve the product and our experience with it.
Sharmin
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50 mg sounds like a very low dose of IP6. Usually the dose is 1000 mg or more per day. In cancer studies, the more IP6 taken, the better the results. There are no known side effects in even large doses, so this should not be a concern. IP6 is a naturally occurring substance, found in many grains. Its ability to attach to iron is why it is being researched as an anti-cancer agent and is why people are now beginning to use it to see if it can make a noticeable difference in iron concentrations in thal patients.
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I'll confirm how many mg are in each capsule and let you know. Thanks Andy!
Sharmin
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The pills are actually 500mg each. In this case would we give him 1000mg (2pills) twice a day? (Once we receive them).
Thanks again Andy.
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Hi Andy, :hugfriend :hugfriend
FINALLY!!!!!!!
We have just received the IP6. 500mg caps.
Indications are to take a cap 3X a day (3 hrs after a meal & 1 hr before a meal).
Is this a good dose for my 8 year old son, (52lb) or should I start with a lower dose?
Thank you!
Sharmin
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Hi Sharmin,
IP6 has no known side effects so the dose is probably very safe, but I would suggest starting one cap twice daily and make sure he tolerates it well. After a month or so, go up to 3 caps daily. I don't think you'll notice anything at all as far as side effects.
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Wow,
This is quite exciting. I sure hope that you get fast and positive results. :happyyes
Keep us updated.
Take care, Peace!
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Thanks andy.
I'll begin giving it to him today. I will post results as soon as I have them.
I hope everyone will give it a try, I am very excited to do so.
Sharmin :hugfriend :hugfriend
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what is ip6??
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Our previous thread about IP6 is at
http://www.thalassemiapatientsandfriends.com/index.php?topic=653.0
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sajid,
if i can find it here in the usa i would be glad to send some to you.... can I do that andy? lol? or is it illegal?
i dont see why it would be a big deal... :dunno
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IP6 is basically a vitamin so there should be no problem mailing it to Pakistan.
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Hi Christine,
Thank you sooooo much for your generous offer. :yes
I can order it easily from the web, but I am still waiting for the results from the patients who can easily get it and use it.
Thanks again for your kind offer. You guys are soooo sweet.
Luv to Lauryn. :love
Take care, Peace!
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Hello
from where i can get IP6 in India and from which company it is? also i would like to know about the side effects.
my ferritin level is 3451 micrograms/L. so please tell me the dose of IP6
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We've been giving our son IP6 3X daily and this is his 3rd week. The change in his skin color is very apparent now, others are noticing it as well. People are commenting that he looks brighter. The rusty residue on his cheeks has faded and he looks well. I hope that this is an indicator of what the supplement is doing for his other organs. We will test his ferritin in 2 weeks, hopefully his serum ferritin has also decreased. Even if his blood ferr is not lower, I believe that the IP6 will protect his organs from iron and oxidative damage. Thank you sooo much everyone for helping me learn about this. This group has influenced our lives at the right time and it has positively affected our child's treatment. I hope others will order this supplement as well. I'll keep posting our progress.
Sharmin
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Hi Sharmin :hugfriend
I am very happy to know that the IP6 made a difference. Please update us with the ferritin result
You are right this group has a great impact on our lives, can't imagine how life would have been
Take care
Manal
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Hello Sharmin,
that's really great news,please keep us updated about ferritin results.
ZAINI.
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Thank you Manal and Zaini,
It is so nice to see him look the way he did when he was little. His face is clear and bright, and after his transfusion he has red lips and pink cheeks. This is so nice to see because before the IP6 his cheeks would be pale and rusty before a transfusion and darker rust afterward. People keep asking us if we are cutting his hair differently etc etc. because he looks so different. Psychologically, this is so nice for us.
Hava a great day all!
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This is so encouraging, Sharmin. I hope the improvement continues. I have continued to read about IP6 and it is a very effective anti-oxidant, which is very good for thals as it can help reduce the oxidative stresses that damage the cells and the organs.
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Thanks Andy,
The effects of IP6 on his skin suggests to us that there must be improvement and removal of iron deposits in his other organs as well. There was also some, subtle deposit on his gums (darkening his gums) which is also dissappearing now. We thank you a million times each time we see these changes in him. He looks well and radiant since we began using the product - (I think this product may have some cosmetic potential... :rotfl).
We will be testing his ferratin next week and I will post any changes at that time.
Thanks everyone for your words of encouragment!! I encourage anyone who is interested to purchase this product.
Sharmin
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Hi Sharmin!
Even the cosmetic benefits are good enough for me!! :biggrin 'cause I could really use it. I think I am also ready to get it. One of my relative has gone to the states and I think he can find it easily and bring it back home since it is categorized as vitamin or natural/herbal medicine and won't need any prescription to buy.
Let's see if he can find it in Washington.
Take care, Peace!
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Hi Sajid,
I think you'll love it - my son is glowing like a pregnant lady - ;D
My mom keeps telling me to shut up about how cute he looks b/c she thinks I'll
jinx him :mouthshut
hmmm - I probably should - but I want all of you guys to benefit
from this supplement as well.
Let me know when you receive the product! All the best,
Sharmin
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Hi Andy,
I am currently giving my son 500mg 3X a day, therefore 1500mg of IP6 a day. He is doing very well with this.
I understand that it is ok to give him 2000mg a day. Do you think it would be a good idea to add another cap to this dosage so that he is getting 2000mg? Because he has received so many transfusions this past year we hope to reduce his iron and protect his organs from an excess iron he may have right now. Thanks Andy.
I hope others have also started using this product. I would love to hear about your experiences.
Sharmin
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Doses as high as 10 grams of IP6 have shown no side effects, so I think 2 grams is quite safe
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Hi Sharmin,
i am very happy you are getting positive effects,i wish i can have IP6 too,it's not available here .
ZAINI.
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Thank you Andy,
I'll begin giving him 2g.
Zaini, is it possible for you to order the product online? Can we help you obtain this product? I hope you can get it for your lovely child, it will certainly make a difference.
Sharmin
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I wonder what is the optimum dose per Kg for IP6? :hmm
I talked to my doctor about it; but she says that there is no study and statistics about it and only trusts solid proof.
I wish she could come here and read the quotations about it properties in our previous posts.
Take care, Peace!
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Sajid,
Unfortunately, there has been no research done concerning IP6 as an iron chelator. The research has mainly concerned the ability of IP6 to prevent cancer. Cancer cells thrive in a high iron environment and thal patients should be aware of this and do what they can to prevent giving cancer optimum conditions to develop. At the moment, it appears it is up to patients themselves, to try it and see if it helps. My opinion on IP6 is that regardless of how well IP6 chelates iron, its iron inhibiting properties, that prevent the formation of the hydroxy radicals that damage cells, and its apparent positive role in helping to control diabetes, are enough to recommend using it to every thal patient. The anecdotal evidence we have heard from Sharmin about her son's use of IP6 only gives even more reason to try it. By the way, because radical formation adds to the aging process, I have also begun to use IP6.
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Thanx Sharmin,
Thanx for your generous offer,i wish i can get it somehow bcoz i can't order it online from here due to some problems,,though it's not much costly i believe,if anyone can help me get this vitamin .i'll be much grateful.
ZAINI.
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Hi Zaini,
I wish I had known earlier that you also wanted to try it; I'd have told my relative to pack in extra IP-6 for you as well.
He has arrived home but hasn't visited me yet and even I don't know what he has bought for me as he got confused with the name and almost bought something else which he mentioned in his email. :rolleyes
Take care, Peace!
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Is it possible for me to purchase the product and mail it to Zaini?
I would be happy to do so.
Sharmin
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Hi Sajid and Sharmin,
Thanx for your generous offers,Sharmin i don't know much in this regard,Andy might be a bit helpful in this respect as i don't know how would i pay you?? How much it costs there?
ZAINI.