Thalassemia Patients and Friends
Miscellaneous Forums => Older Chatter => Topic started by: §ãJ¡Ð ساجد on March 15, 2007, 09:56:19 AM
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Hi all,
Just here to tell you about my crazy physique. My Hb is not going up these days, in fact it reduced down one point after a transfusion from 6 g/dl to 5 g/dl. Although I feel like a million bucks :biggrin
except for the part of climbing up a flight of stairs which seem to kill my legs half way through.
My doctor prescribed me a battery of tests after two transfusions and today I got the results. Here they are:
Serum Urea: 40mg/dl (normal 10-50 mg/dl) This one is clear
Serum Creatinine: 0.9 (<1.4 mg/dl) Below the max mark but a bit high.
SGPT(ALT): 128 u/l (norm 0-43 u/l) This is high!!
Hb: 8.8 g/dl (norm 14-18g/dl) After two Tx. it is still too low.
WBC (T.L.C) 2200 /cmm (norm. 4000-11000/cmm) Quite low but I don't feel sick, in fact I am the only healthy person in the house!! everyone else in the house has caught a cold except me :grin
E.S.R: 38(norm 0-9) I am experiencing pain in joints these days. Maybe this is the reason why.
Serum Ferritin: >1000 ng/ml (norm 17.9-464 ng/ml) Off-scale reading!!! :o Now I know why the metal detectors at the airport go berserk when I pass through them!!! :rotfl
It's a good thing that the doctor wasn't in his seat (like always in a govt. hosp.) otherwise the lab technician had classified me as a REALLY SICK person and the doc. would have admitted me. Even though I feel nice! (Like sugar and Spice! :wink) I really love that song by the Great (Late) James Brown.
Well, that's it for now. I have to visit my doctor's private clinic and show him the results. Let's see if I am able to go tonight or some day else. I hate following doctors and I should have settled it this morning if he had been in his office at the hospital.
Take care guys, Peace!
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hi sajid,
it's zaini here,u seem like a brave person, i m getting some inspiration really,i hope everything will be ok with you inshallah.bye.zaini.
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Wow, Sajid. How do you function on such a low hemoglobin? :shocked When I had gotten down that low in the past, I felt like I was dying. ???
You need to get that white count back up! That can potentially be dangerous, especially if it gets any lower. :sadyup
How high off the scale is your ferritin? Do you know what it is, or do they just tell you that it's off the scale? :huh
I'm glad that you are feeling ok for the most part, but your bones are probably hurting you because you need more blood. :(
I'm concerned about the other lab values as well. I hope you talk to your doctor about them soon. :hugfriend
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Hi Zaini,
:welcome to the site and thanks for your comments. It really gives me more courage to push the limits and go for the extra mileage :biggrin
I bet it's the unconditional love and support of this group that gives me hope and will-power to not let myself give up to Thalassemia. We have a long list of friends that are inspiration to each and everyone else that are grouped together on this site.
So, tell us about yourself and feel free to ask anything that you have in mind.
Take care, Allah Hafiz!
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Hi Danielle,
After the 2 g/dl episode several years ago, these current levels feel nothing :)
I'll try to meet my doctor as soon as I find him (Looks like I have to camp outside his clinic till then :rotfl )
The Serum Ferritin levels of the Lab is limited to 1000ng/ml It says >1000ng/ml on the machine output.
Today I went to this new Thal. Center "Jamila Sultana Foundation" thanks to one of our new member "Asim" who guided me there and introduced me to the staff. They took a blood sample and told me that they will send it to their special lab to get the exact SF reading which will take some time. So, I'll have to wait for it for a while.
I have to say that I am really impressed by both Asim and the Foundation. Asim is such a nice fellow and he has a lot of passion to help Thal. patients.
The Foundation is The Best private organisation that is operating for Thal. in the city. They have such a wonderful setup and is superbly operated and managed by passionate staff who work with all their dedication for the welfare of Thal. Patients. I'm really impressed. :clap
Thanks for your advice about these joint pains, I definitely need more refueling to do. 8.8 g/dl is really putting a stress on my body no matter how strong my will is.
Take care, Peace!
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hello Sajid
My heart goes for you . Wish you will be well soon and i am sure you will inshallah.
Please keep us updated
Take care :wink
Manal
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Hi all,
Just here to tell you about my crazy physique. My Hb is not going up these days, in fact it reduced down one point after a transfusion from 6 g/dl to 5 g/dl. Although I feel like a million bucks :biggrin
except for the part of climbing up a flight of stairs which seem to kill my legs half way through.
My doctor prescribed me a battery of tests after two transfusions and today I got the results. Here they are:
Serum Urea: 40mg/dl (normal 10-50 mg/dl) This one is clear
Serum Creatinine: 0.9 (<1.4 mg/dl) Below the max mark but a bit high.
SGPT(ALT): 128 u/l (norm 0-43 u/l) This is high!!
Hb: 8.8 g/dl (norm 14-18g/dl) After two Tx. it is still too low.
WBC (T.L.C) 2200 /cmm (norm. 4000-11000/cmm) Quite low but I don't feel sick, in fact I am the only healthy person in the house!! everyone else in the house has caught a cold except me :grin
E.S.R: 38(norm 0-9) I am experiencing pain in joints these days. Maybe this is the reason why.
Serum Ferritin: >1000 ng/ml (norm 17.9-464 ng/ml) Off-scale reading!!! :o Now I know why the metal detectors at the airport go berserk when I pass through them!!! :rotfl
It's a good thing that the doctor wasn't in his seat (like always in a govt. hosp.) otherwise the lab technician had classified me as a REALLY SICK person and the doc. would have admitted me. Even though I feel nice! (Like sugar and Spice! :wink) I really love that song by the Great (Late) James Brown.
Well, that's it for now. I have to visit my doctor's private clinic and show him the results. Let's see if I am able to go tonight or some day else. I hate following doctors and I should have settled it this morning if he had been in his office at the hospital.
Take care guys, Peace!
Wow Sajid, you inspire me a lot!!! :biggrin Just keep it up. Even if they say you are a REALLY SICK person at least you're not showing it and that brings hope for everyone else around you and joy to those who are assisting you in the hospital. :wink God Bless you! :smiley
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Thanks Manal and Lei,
I'm doing fine.
Last night I finally caught up with my doctor in his private clinic and showed him the test results. After reading them and a couple of Hmmms... later he just said that, "You need some liver treatment and come to the Hospital after weekend for a blood Transfusion and I'll tell you there what to do."
:mad What does he mean by saying that?!?! :pissedoff
Well, I'm off again to another wild Doc. chase and lets hope that I will be able to catch him this time in his Hospital office.
When I asked him about the pain in my joints, he just say that take MultiVitamin pills and I'll be fine.
So, that's about it for now.
Thanks for your motivating messages.
Take care, Peace!
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Good to hear that Sajid!
Anyway, I also experience pain in my joints ocassionally, especially the part near my shoulder blades, and my doctor said I have osteoarthritis. I am not just sure if that's normal for Thals in general.
I hope your liver treatment goes all well. God bless still! :smiley
Thanks Manal and Lei,
I'm doing fine.
Last night I finally caught up with my doctor in his private clinic and showed him the test results. After reading them and a couple of Hmmms... later he just said that, "You need some liver treatment and come to the Hospital after weekend for a blood Transfusion and I'll tell you there what to do."
:mad What does he mean by saying that?!?! :pissedoff
Well, I'm off again to another wild Doc. chase and lets hope that I will be able to catch him this time in his Hospital office.
When I asked him about the pain in my joints, he just say that take MultiVitamin pills and I'll be fine.
So, that's about it for now.
Thanks for your motivating messages.
Take care, Peace!
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Osteo problems are common in thals. It's important to take a calcium supplement which includes magnesium. Vitamin D is also necessary for calcium absorption. It is recommended that thals have bone density scans, especially if osteo is suspected. Bone pain can also be related to low hemoglobin, which in turn can lead to osteo.
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Hello,
Today I went to the hospital for a blood transfusion. I asked for the doctor since he told me in his private clinic to meet him here today.
Guess what happened?
Yep, he was NOT THERE AGAIN!!! :tantrum
Anyway another doctor came to our ward and I showed her the above mentioned reports. She did the physical examination of my spleen and liver and both of them were 8 cms. She also said that I required splenectomy :quiver
Is the report THAT BAD? :wah
This has lowered my morale very much and I feel beat :( :sigh
Take care, Peace!
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Sajid,
Your spleen is enlarged but not yet near the size where it would normally be removed. However, your recent low Hb indicates that your spleen is most likely filtering out your red blood cells at a faster rate than previously. I don't think you should rush to have it removed unless it continues to enlarge and your Hb remains low. Has there been anything recent that may have stressed your body? Changes in diet, nutrition, eating habits, exercise, sleep, colds or infections, etc? Many people live with enlarged spleens and it doesn't help with the low HB in many people who do have it removed. If it does become too large you won't have a choice but right now you should talk to others, read the many posts about splenectomy and find out more why your doctor thinks it should be removed.
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I agree with Andy, Sajid. My spleen is 14cm and my doctors STILL do not want to remove it. We should hold onto it as long as we can, until it's really necessary to have it removed. I don't understand the need for you to have a splenectomy at that size, unless you cannot keep your counts up at all with regular transfusion. How long do you wait between transfusions? ???
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Hi guys,
I normally go fortnightly for transfusions but since the last month I have to go weekly as first my Hb before the Transx was 6.2 then 5.8 and finally 8.8 and yesterday I got another Transx. I don't know what my Hb is will get it checked soon when the weather gets better for me to get out. Now I will go after 2 weeks and get a fresh blood (own donor) transfusion as I have a hunch that since the last transfusion made a sudden boost in Hb; the ones before it were not as fresh as they should be.
I really need to find some solid points to convince my doc. to not to take my spleen out, but they only believe that low T.L.C and PLT + no infections = Bad Spleen
:(
Take care, Peace!
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Hello,
Today I went to the hospital for a blood transfusion. I asked for the doctor since he told me in his private clinic to meet him here today.
Guess what happened?
Yep, he was NOT THERE AGAIN!!! :tantrum
Anyway another doctor came to our ward and I showed her the above mentioned reports. She did the physical examination of my spleen and liver and both of them were 8 cms. She also said that I required splenectomy :quiver
Is the report THAT BAD? :wah
This has lowered my morale very much and I feel beat :( :sigh
Take care, Peace!
Hey Sajid don't feel so bad about your large spleen mine is 9.3 cms., but so far I feel alright! :smiley
Don't feel beat with sad news like that, you see your attitude counts a lot when you are with Thalassemia. Take it from me! :wink
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Hi guys,
I normally go fortnightly for transfusions but since the last month I have to go weekly as first my Hb before the Transx was 6.2 then 5.8 and finally 8.8 and yesterday I got another Transx. I don't know what my Hb is will get it checked soon when the weather gets better for me to get out. Now I will go after 2 weeks and get a fresh blood (own donor) transfusion as I have a hunch that since the last transfusion made a sudden boost in Hb; the ones before it were not as fresh as they should be.
I really need to find some solid points to convince my doc. to not to take my spleen out, but they only believe that low T.L.C and PLT + no infections = Bad Spleen
:(
Take care, Peace!
I am just curious, why is your transfusion so often? Is it not bad for your liver?
My doctor moved me out of the regular every 3 months transfusion because she said too much transfusion can create complications on my liver. Actually my doctor lets my body adjust to low hemoglobin instead for as long as i can manage. Her justification is the body and the organs can adjust to the level of hemoglobin a person has. So as of now even if my hemoglobin drops to 5 or 6 grams i don't undergo transfusions. Yes, I get dizzy and feel weak when that happens. Sometimes my asthma and allergy even gets triggered. It's just that I am advised to avoid stress and watch my diet plus an increase in my folic acid intake. Can you believe that without transfusions at that level, my body can recuperate and reach 7 to 8 grams again when I visit my doctor again? In fact I can manage my normal activities at that hemoglobin level already. I'm even pregnant! It is like my body system fends for itself most of the time. :smiley
Anyway, I hope they save your spleen and everything will go well for you! Just keep your spirits high Sajid! The body is a temple of the spirit! Miracles do happen. God Bless you! :wink
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Thanks Lei,
I really needed that :biggrin
I know I will get over it in a day or two.
I wish the doctors would have a look at this site more often and learn from the more experienced persons from around the world than their text books.
As far as having low Hb is concerned; then I have a fair share of that experience too, like I said in the earlier post that even in these low HB (5-6) I don't feel much different, further more check out this post of mine and you'll see what I mean:
http://www.thalassemiapatientsandfriends.com/index.php?topic=71.msg276#msg276 (http://www.thalassemiapatientsandfriends.com/index.php?topic=71.msg276#msg276)
Take care, Peace!
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I am just curious, why is your transfusion so often? Is it not bad for your liver?
My doctor moved me out of the regular every 3 months transfusion because she said too much transfusion can create complications on my liver. Actually my doctor lets my body adjust to low hemoglobin instead for as long as i can manage. Her justification is the body and the organs can adjust to the level of hemoglobin a person has. So as of now even if my hemoglobin drops to 5 or 6 grams i don't undergo transfusions.
Lei,
Sajid is having Thalassemia(Major), so he would need transfusions more often unlike you(which seems to be Thalassemia(Intermedia)). With Intermedia, the doctors try to avoid the transfusions as much as possible and see if a person can maintain the low Hb and do OK. Your doctor is right about compications with regular transfusion as that might lead to unwanted Iron Overload and the Intermedia's body might shutdown Hb production and might become Transfusion dependent
Readers --> Please try to understand the difference in every other person's post. If there is a Thal(Intermedia) talking about his adjustments, that does NOT neccessarily means a Thal(Major)can do it. Our doctor's are our best judge and as much as I hate when some doctors are Ignorant and lazy to read and understand the latest deverlopment, we should respect them with their understanding. We can read and get more information and help ourselves and the doctors, but listen to our doctors and let them explain why something is being done or why something is NOT being done. Sure, we can relate other Thals with us when we feel the same but just do NOT do things on our own, it might hurt us because everyone's body is different and the doctor's can look at the complete results in details and have a clearer picture.
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The difference between major and intermedia here is that an intermedia's Hb level will level out in the 6-7 range, but a major's Hb would just continue to drop without transfusion. An example of the latter would be my little "brother" in the Maldives who "forgot" he was thal and stopped transfusing. His Hb dropped to 3 and he ended up in the hospital for a couple weeks getting his Hb and platelets back up.
Genetically, majors and intermedias appear very similar as they normally both have two defective hemoglobin genes, but intermedias usually don't have the same severity of mutation as majors nor the same severity of symptoms. Because they both have two defective genes there is sometimes some confusion as to the classification, but the most commonly accepted definition has been that intermedias do not need transfusions as children and are able to maintain a hemoglobin level of at least 6 without transfusion.
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Hi Sajid
I am sure you are going to pass all this soon. I know how confusing the situation is. The most important thing is to have high spirits as Lei said, it really makes a difference.
Take care
Manal
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Sajid,
If your bilrubin level is much higher than what it used to be in past, then it can be a indication that speen is malfunctioning. Did you get your bilrubin level checked recently?
--Hallu
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Hi Hallu,
Nope, Bilirubin test was not the test prescription. The only thing that the doctor assumed for a malfunctioning spleen was the low TLC, Platelets and no infections.
Thanks for the info, I'll keep it in mind :)
Take care, Peace!
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Thanks Lei,
I really needed that :biggrin
I know I will get over it in a day or two.
I wish the doctors would have a look at this site more often and learn from the more experienced persons from around the world than their text books.
As far as having low Hb is concerned; then I have a fair share of that experience too, like I said in the earlier post that even in these low HB (5-6) I don't feel much different, further more check out this post of mine and you'll see what I mean:
http://www.thalassemiapatientsandfriends.com/index.php?topic=71.msg276#msg276 (http://www.thalassemiapatientsandfriends.com/index.php?topic=71.msg276#msg276)
Take care, Peace!
Ey Sajid I read your previous post! You're actually a living miracle! So keep the spirits high! As I said in my earlier post you do inspire a lot of Thals including me! :biggrin
I also need more miracles now. I just discoverd I have a faster bleeding time and a longer clotting time. If I deliver my baby I may have problems hemmorrhaging according to the OB-gyne. Now I am not only Thalassemic, I am also Hemmorrhagic! :rolleyes Scary but I leave all things in the mercy of God. I am still up for the fight though! :wink
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Dear Sajid,
I wish I knew more about what your lab tests mean - all I can offer is support and love. I am thinking about you and hoping the doctors know what they are doing. Keep asking them questions, and hang in there. Love you, Jean :heartpink :bighug
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Hi Lei,
Welcome to the site. :welcome I wish the best for you with your pregnancy. Take care, Jean
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The difference between major and intermedia here is that an intermedia's Hb level will level out in the 6-7 range, but a major's Hb would just continue to drop without transfusion. An example of the latter would be my little "brother" in the Maldives who "forgot" he was thal and stopped transfusing. His Hb dropped to 3 and he ended up in the hospital for a couple weeks getting his Hb and platelets back up.
Genetically, majors and intermedias appear very similar as they normally both have two defective hemoglobin genes, but intermedias usually don't have the same severity of mutation as majors nor the same severity of symptoms. Because they both have two defective genes there is sometimes some confusion as to the classification, but the most commonly accepted definition has been that intermedias do not need transfusions as children and are able to maintain a hemoglobin level of at least 6 without transfusion.
Andy, I am just wondering, if I am an Intermedia, why do my Hb level drops to 5 sometimes? Is that normal? Or is it something I have to ask my doctor as well?
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Hi Lei,
Welcome to the site. :welcome I wish the best for you with your pregnancy. Take care, Jean
Thanks Jean! :smiley
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Hi Lei,
If your Hb drops as low as 5 at times, it may be the result of some stress, especially physical stress like a cold or illness. You should try to avoid letting it get so low and transfuse before you reach that point. You can talk to your doctor about transfusing more frequently when needed if this becomes a regual issue.
You're walking a fine line with your Hb levels. However, as long as you normally are maintaining an Hb of 7-8 with only infrequent transfusions, you won't run the risk of becoming transfusion dependent. If your Hb begins to regularly drop to 5 you won't have any choice but to begin a regular transfusion program. Many intermedias who transfuse are still able to transfuse less frequently than majors but dependence does result, because the bone marrow activity will greatly reduce and the body may cease making red blood cells completely.
I was re-reading an early post of yours and wanted to address iron supplementation. It is virtually unheard of in intermedia and major to take iron because both transfusions and hyper-absorption of iron in the gut raise iron levels to dangerous levels and adding iron only adds to the problem. It is very important that you have regular serum ferritin tests to determine your range. The iron will not have a bad effect on your baby but it will continue to add to your own iron load. I think a good diet during your pregnancy might be better than taking iron. Folic acid should be continued after the birth as it helps build red blood cells.
Your doctors should be prepared for any event during the late stages of your pregnancy. Spleen size should be closely monitored along with Hb levels. If the spleen begins to rapidly enlarge, a c-section should be considered. Transfusion preparations should be made in case blood is needed during the birth. These are precautions to ensure both your health and the health of the baby, and in most cases, the most that is ever required is a transfusion at some point, but it is important to be prepared.
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Sajid-
Your spleen has not swelled that badly, as Andy and Danielle have said - but is there another reason they might want to remove it? If your RBC count and platelets are low, and the spleen has swelled significantly since you've had to have more transx lately, it might be munching on all those goodies you need to feel healthy. Mine was 19 cm when they took it. Can you convince them to hold out? :dunno
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Hi Lei,
If your Hb drops as low as 5 at times, it may be the result of some stress, especially physical stress like a cold or illness. You should try to avoid letting it get so low and transfuse before you reach that point. You can talk to your doctor about transfusing more frequently when needed if this becomes a regual issue.
You're walking a fine line with your Hb levels. However, as long as you normally are maintaining an Hb of 7-8 with only infrequent transfusions, you won't run the risk of becoming transfusion dependent. If your Hb begins to regularly drop to 5 you won't have any choice but to begin a regular transfusion program. Many intermedias who transfuse are still able to transfuse less frequently than majors but dependence does result, because the bone marrow activity will greatly reduce and the body may cease making red blood cells completely.
I was re-reading an early post of yours and wanted to address iron supplementation. It is virtually unheard of in intermedia and major to take iron because both transfusions and hyper-absorption of iron in the gut raise iron levels to dangerous levels and adding iron only adds to the problem. It is very important that you have regular serum ferritin tests to determine your range. The iron will not have a bad effect on your baby but it will continue to add to your own iron load. I think a good diet during your pregnancy might be better than taking iron. Folic acid should be continued after the birth as it helps build red blood cells.
Your doctors should be prepared for any event during the late stages of your pregnancy. Spleen size should be closely monitored along with Hb levels. If the spleen begins to rapidly enlarge, a c-section should be considered. Transfusion preparations should be made in case blood is needed during the birth. These are precautions to ensure both your health and the health of the baby, and in most cases, the most that is ever required is a transfusion at some point, but it is important to be prepared.
Thanks Andy! I'll be updating everyone after I see my doctors. At least now I know what to ask them again.
I'm really bothered with the Iron medication, up to now I was wondering why they gave me Iron supplements when my hematologist knew I have spleeenomegaly and I had high SF levels from their last test. In fact, i'm more worried of its possible impact after I give birth.
My OB-gyne decided for a C-section since the highest that my blood Hb reached is only 8 grams that was 2 weeks ago and last Saturday my Hb is only 7.2. She said I could not go for normal labor at that level of blood since I also have a tendency to hemmorrhage (A few days ago they tested my blood's clotting and bleeding time and they discovered that I have a faster bleeding time and my clotting time is longer). I'll be having blood transfusion this 30th of March, I'm not yet sure how many bags though since it will be confiremed on the 29th. I am also to undergo another round of pre-natal testing and they are closely monitoring my sugar levels since I have gestational diabetes.
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Hi everyone,
I got the results of another battery of tests and most of them look pretty normal. I still don't know what's wrong with my blood counts and why my joins are in pain when I walk or have little exertion!?!?
The two LFTs are pretty high:
Serum ALT=179 which should be <42 U/l
Serum Alkaline Phosphate=405 which should be in between 65-306 U/l
Bone profile seems o.k but not that good:
Serum Calcium=2.19 which should be in between 2.1-2.65 mmol/l
Serum Phosphate=1.87 which should be in between 0.8-1.67 mmol/l
Thyroid profile looks nice and good and was relived to see them as I was most worried about it. I thought I had under active thyroid that is causing all the troubles :biggrin
Serum Free T4= 14.8 which should be in between 8-24 picomol/l
Serum TSH=2.9 which should be in between 0.4-4.0 mIU/l
This morning I woke up suddenly and found my nose bleeding like crazy! This is the second time in 15 days. My nose and throat feel dry as a rock especially eversince I am using the medicine for my stomach infection.
I'm going in tomorrow for another Trans X and discuss the medicine since my mouth turns into rubber when I take the medicine especially the one which contains attapulgite. I hate that one as it sticks to the tongue and throat and refuses to go down! :rotfl
This has been a rough month for me approx 5 TransX!!!
I hope that everyone else stays well!
Take care, Peace!
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I hope you feel better Sajid,
We all pray that you will get past this and your hg will remain stable without so many tx.
My son's tx requirement increased last year because of a warm antibody - which has been controlled with prednisone (when taken the way Andy suggested) has brought his tx requirement to once a month. I'm not sure what is causing your hg to be so low but I hope your doctor's figure it out and resolve the problem.
All the best Sajid,
Sharmin
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hi Sadjid,
I admire your courage and strength, you are so strong and you portrait your struggles as if its easy.when we all know that it 's so hard for you.I know you endure lots of pain and in the meantimes you are always and unselfishly giving your time and encouragement to this website and all of us members
Its a person like you thats gives hopes and makes life easier for all other thal patients.
I hope your health improve and the amount of transfussion decrease. be strong'Take care because we all care for you and thank-you for being the great person you are, :getwell :getwell :getwell
Kathy
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Hi Sajid
I am sorry to hear that you are not well. I hope you can find a solution to your problem soon. It seems as if you have an infection. I have heard that throat infection may lead to joint pains when it gets complicated( don't know if it is true). Are you on antibiotics? What are your doctors' opinions.
Hope you get well soon
Jade
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Thanks everyone for your concern! :grouphug you guys are the best!
Hi Jade,
Funny as it may sound, I feel great!! except for the stomach problem which is getting better day by day ever since I started the remedy from mum's kitchen clinic :biggrin (For those interested, here is the recipie: some yogurt, a banana, some Plantago Husk (ispaghol) and a some mint leaves. Mash them together and enjoy being turned into a baby and eat this yummy baby food! :food :yum)
I'm not on antiboiotcs and don't have throat infection, but the joints still hurt.
With the TransX every week, my Hb is increasing by 1g each week so I hope that this week will be last one in the series before I go back to the 15 day between the TX plan.
I'll report the update tomorrow. Till then,
Take care, Peace!
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Hi Sajid
Keep the high spirit, as i told you before you ara a fighter :wink
keep us updated
Manal
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Sajid,
I wish you were feeling better. Such low hemoglobin levels, joint pains, stomach infection, nose bleed, etc. - wow, you've really had a lot to deal with. It's easy to feel down with all that going on. I'm sending you some strength and good wishes, and hope you get to feeling better soon.
I worry about those low hemoglobin levels. I wonder if it was from the infection, or if your spleen is causing the trouble. I hope you can find some answers. Please take care of yourself and know we are here for you. :grouphug :getwell love, Jean
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SAJID,
as i always say you are an inspiration to us all,a real fighter as manal so rightly said,i wish u all the luck and happiness in world. :hugfriend
ZAINI.
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Hi everyone!
Thanks a lot for your prayers as they have been answered!!! :yahoo
After five TransX this month. My Hb has finally touched 12g/dl but my Platelets were only 60K before the last transX, which made my doctor very concerned and put me on daily PLT monitoring (ouch!!) and said that if it dropped further then I might require Platelet transfusion. Well, the next day they had increased on their own to 80K and the next day to 102K!!! :yahoo which relieved the doctor that everything is getting normal gradually.
One thing that amazed me(but not my doctor who explained the clear picture to me) on the last test was the Hb. It had increased from 12.7 the previous day to 13g/dl!!! She told me that I was dehydrated and that's why the Hb concentration had increased! Anyway, she said that most probably I won't require a TransX which is scheduled this Tuesday but I must come there to get my HB tested again to confirm that.
Ah well :dunno , it was pretty exciting to know that for the first time EVER my Hb increased (virtually) on it's own.
Thanks everyone for your prayers and wishes.
You guys are the BEST!!! :grouphug
Take care, Peace!
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That's wonderful news Sajid,
I hope that your health continues to improve! I am glad that everyones good wishes and prayers were answered!
Sending lots of more goodluck your way!
:goodluck :goodluck :goodluck
Sharmin
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Sajid.
good news I happy for you. :clap :clap :clap :clap
Kathy
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Thanks God Sajid, i am so happy for you, keep it up.
But what caused this drop in the first place? Did the doctor explained why so that this can be avoided in the future??
Manal
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Hi Manal,
Yes, I have found out the reason for the drop of Hb. It was the blood in my previous blood center that had the problem. I clearly remember that I was getting very less quanity of blood per bag and that too had large clumps of clots in them. The quality of that center has dropped a lot. My Hb remained same after the TransX and I would get a date no earlier than 15 days which caused the drop. Furthermore the doctor was never around to be found!!
Thank God, for this site! where I met Asim who told me about the new center. It is the best center I've seen in Rawalpindi. They are doing an impressive job, providing totally free treatment with the highest quality!
So, the credit goes to Jamila Sultana Foundation and this wonderful site which led me there! :party
Take care, Peace!
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Hi Sajid,
Congrats,hope you'll get better and better from now on.
LOVE,
ZAINI.
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Thanks God Sajid, take care
Manal
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Hi everyone,
Thanks for your wishes!
I went in today for the TransX but was denied as my Hb is 11.2 g/dl :grin however my platelets were down again to 63K :(
It looks like my Platelets are on a roller coaster ride. Going up and down up and down! :pissedoff
The TransX is postponed till Saturday and I hope the PLT counts go up this time!
Take care, Peace!
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Hi sajid,
Glad to know that your hb is good. For the platelets I have read somewhere (don't remember where) that peanuts may boost them up. Can anyone confirm this?
Wish you well
Jade
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Hi Jade,
Thanks for your concern. My platelet counts are still fluctuating. This week they were up to about 86K.
About peanuts, well that was me. I told about them when I had the severe drop in my PLT count few years ago. A nurse told me about them.
These days, it's too hot to have peanuts and I'm into other alternatives such as bananas. They seem to work as well. :biggrin
Take care, Peace!