Thalassemia Patients and Friends
Miscellaneous Forums => Thalassemia Associations => Topic started by: alnahrahmea on March 17, 2007, 07:51:48 AM
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If there are, how will I know about it?
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Giving an answer to my own query, I found out that there is an association in the Philippines for Thalassemia patients and their family.
It is called the "Balikatang Thalassemia" whose website is accessible through the address below:
http://www.ba-tha.org.ph
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yah..just newly organized. and i'm happy for it. please email at :thalctr_tcp@yahoo.com ,
THALLASEMIA CENTER OF THE PHILIPPINES, tel # 712-0845 loc 156/158
telefax :743-1818
have yourself registered pleeasseee!!!
God bless,
jane
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Jane can I join the support group?
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hi jane,
nag email ako sa email add na pinost mo, nagfailed naman..
may iba pa bang email add..
thx..
gusto ko din magparegister..pano at saan..
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i dont think the link below still exists... im looking for organizations in the philippines for thalassemic patients
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Dennie,
Join our Facebook group at https://www.facebook.com/groups/78504283219/
My friend, Roldan has replied to my question about thal associations. There are also Facebook thal groups at
https://www.facebook.com/groups/356276784442158/356277741108729/ and
https://www.facebook.com/profile.php?id=100000225534771
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Hello!
I'm also looking for any organization/ association here in the Philippines about Thalassemia. I have Hemoglobin E/ Beta Thalassemia. For the Info just a day ago there was a forum about iron overload in one of the hospital in the city. I attended and meet also some patients. I wish to get connected with other patients who have the same condition also. I'm looking forward for any affirmative response.. God Bless everyone ang Keep safe! :wink
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Hi Cherry,
Please check the replies in the same thread before your post. Two Facebook groups are listed, along with info about thal associations and thal centers.
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Hello Andy!
Thank you! I have found the facebook page. I can get connected with patients also here in the Phiippines and from other countries. I feel very blessed to know all of you guys. I've been searching for this page since before because I felt so helpless that I had such condition and my sister didn't make it either. She didn't went to hospital because she got traumatized after a bone marrow aspiration. :(