Thalassemia Patients and Friends

Discussion Forums => Thalassemia Minor => Topic started by: Zaini on September 22, 2007, 11:40:43 AM

Title: Having some problems!!
Post by: Zaini on September 22, 2007, 11:40:43 AM
Hi Everyone,
,
I just wanted to share a little bit of the medical problems i am facing right now,as you people are the best advisers for me :) since last month i was not feeling very well,tired and sleepy,just wanted to get some sleep,all the time ,though i was taking my regular sleeping hours,and that was keeping me low,not able to do any thing hard,didn't even wanna go shopping  :biggrin, i started taking nap (a thing i rarely do),no improvement still, then had a very bad case of flu,i was feeling like my hb is low,then the month of Ramadan came,and i got busy ,didn't have time to go and check my hb at the lab,but then yesterday afternoon,when i woke up after taking a little nap,my right foot was swollen ,and badly,i was limping around my flat, :( skin around my foot was so tight,and it was painful,i went to the doctor in evening,he right away checked my uric acid ( i don't know what gave him the idea),and it was 6.9 , now i don't know the normal range, but he said it's not high high,but moderately high,i told him about my situation of polysistic ovaries,and that i am taking glucophage since last 4 months,as according to the doctor my insulin level was also high (checked 4 months ago) it was 15.9,though it was with in the normal ranges,but my ob said at that time that it's quiet high,now the GP said that fluctuatuion of insulin and uric acid is causing me this swelling.

I don't know if it's true,bcoz last time when i had a swelling on my foot, i was using Diane 35,and he said that it can cause deep vein thrombosis,then i replaced it with NOVODOL (Levonorgestrel with ethinylestradiol),which is supposed to be a low dose tablet serving the same purpose,but it also contains the warning of deep vein thrombosis,so i don't know that swelling was due to uric acid,i hope it was,bcoz deep vein thrombosis is a bit scary concept.

Then i told him about my sleepiness and feeling down , he tested my hb and it was 9.7.which came as a lil shock even to me, as i was assuming that it would be low but not that low,may be in between 10.5 and 11,now i don't know what to do to raise my hb, doctor asked me to have apples and raw spinach ,hello??raw spinach??,i don't even like cooked spinach let alone raw,and as my uric acid is high ,i am not supposed to take animal protiens,which was already restricted to chicken for me, as i don't like red meat much,and plus i haven't checked my ferritin yet,but what level of ferritin should be considered as low? Doc has given me some meds to lower my uric acid,i hope they'll work,as swellin in my foot is slowly going away,but i want to be sure that what caused it,enough ranting i guess  :rotfl.

TAKE CARE,

ZAINI.
Title: Re: Having some problems!!
Post by: §ãJ¡Ð ساجد on September 22, 2007, 03:03:50 PM
Hi Zaini,

Swollen feet are usually associated with kidney malfunction according to the local myths. I think your doctor is suspecting the same.

I'm not sure if drinking lots of water will fix the problem with flushing the system or add to the workload to the kidney ???
Title: Re: Having some problems!!
Post by: Andy Battaglia on September 22, 2007, 05:18:44 PM
High uric acid can be caused by different factors and often is a sign of gout. It can be related to diet or the use of certain medications. Sajid is correct about drinking plenty of water.

http://www.labtestsonline.org/understanding/analytes/uric_acid/test.html

Quote
Many drugs can increase or decrease the level of uric acid. In particular, diuretic drugs like thiazide drugs can cause uric acid levels to go up.

Aspirin (and other salicylates) have varying effects on uric acid. At low aspirin levels (as may occur in persons taking aspirin only occasionally), aspirin can increase blood uric acid. On the other hand, in high doses (as may be used to treat rheumatoid arthritis), aspirin actually lowers the concentration of uric acid.

For people who have uric acid kidney stones or gout, foods that are high in purine content should be avoided, including organ meats (like liver and kidneys), sardines and anchovies. Alcohol also should be avoided, because it slows down the removal of uric acid from the body. Fasting, a starvation diet, and strenuous exercise all raise uric acid levels.

Drinking plenty of water can help. I think that even if you are fasting, that you should not include water in your fasting. I know medical exceptions are allowed during Ramadan and I think this would be allowable.

For a guide to what foods should be avoided see

http://arthritis.about.com/cs/gout/a/foodstoavoid.htm

Quote
    * Obesity can be linked to high uric acid levels in the blood. People who are overweight should consult with their doctor to decide on a reasonable weight-loss program. Fasting or severe dieting can actually raise uric acid levels and cause gout to worsen.

    * Usually people can eat what they like within limits. People who have kidney stones due to uric acid may need to actually eliminate purine-rich foods from their diet because those foods can raise their uric acid level.

    * Consuming coffee and tea is not a problem but alcohol can raise uric acid levels and provoke an episode of gout. Drinking at least 10-12 eight-ounce glasses of non-alcoholic fluids every day is recommended, especially for people with kidney stones, to help flush the uric acid crystals from the body...Foods very high in purines include:

    * hearts
    * herring
    * mussels
    * yeast
    * smelt
    * sardines
    * sweetbreads

Foods moderately high in purines include:

    * anchovies
    * grouse
    * mutton
    * veal
    * bacon
    * liver
    * salmon
    * turkey
    * kidneys
    * partridge
    * trout
    * goose
    * haddock
    * pheasant
    * scallops

Dietary adjustments can make a big difference in uric acid levels.

From http://arthritis.about.com/od/gout/a/foodstoeat.htm

Quote
Recommended Foods To Eat

    * Fresh cherries, strawberries, blueberries, and other red-blue berries
    * Bananas
    * Celery
    * Tomatoes
    * Vegetables including kale, cabbage, parsley, green-leafy vegetables
    * Foods high in bromelain (pineapple)
    * Foods high in vitamin C (red cabbage, red bell peppers, tangerines, mandarins, oranges, potatoes)
    * Drink fruit juices and purified water (8 glasses of water per day)
    * Low-fat dairy products
    * Complex carbohydrates (breads, cereals, pasta, rice, as well as aforementioned vegetables and fruits)
    * Chocolate, cocoa
    * Coffee, tea
    * Carbonated beverages
    * Essential fatty acids (tuna and salmon, flaxseed, nuts, seeds)
    * Tofu, although a legume and made from soybeans, may be a better choice than meat

Foods considered moderately high in purines but which may not raise the risk of gout include: asparagus, cauliflower, mushrooms, peas, spinach, whole grain breads and cereals, chicken, duck, ham, turkey, kidney and lima beans. It is important to remember that purines are found in all protein foods. All sources of purines should not be eliminated.

Once again, a good diet with plenty of fruits and vegetables and plenty of fluids is a key to good health.
Title: Re: Having some problems!!
Post by: Kathy11 on September 22, 2007, 09:10:55 PM
Hi Zaini .
I am sad that you are currently experiencing these uncomfortable health problems.
I know that that hormone Novodol has this kind of side effect(DVT)When I worked At family planning many woman had the same complaints .Maybe it would be wise to look into another methods.

You didnot mentioned how is your bloodpressure?.this as well can make you feel sick and lethargic.
Your post indicate that you are diabetic too,because you are
taking glucophage to help with you insuline.this too can makes you feel so sick.high uric acid  causes pain, swelling and
can
make you tired at all times.
with all these problems ,in turn, it depresses you.

I know what i'm about to suggest will offend some people I do appologize in advance.

I believe, if a person, has diabetic or a life and death chronic illness ,the person must not fast ,because the person is putting his/her life at more risks.you need to eat small meals to maintain your metabolic system to balance you insuline or else you might fall in a diabetic coma.It is serious.
I said that with care and kindness,take care sweetie.
Love Kathy :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers



Title: Re: Having some problems!!
Post by: Andy Battaglia on September 22, 2007, 09:42:21 PM
Kathy,

I agree and would like to add that this is also true of other medical problems, such as low thyroid. I take synthroid and not eating isn't an option. If I don't eat regular meals, I get very weak and have almost passed out several times, when I didn't eat when I should have. Not fasting because of medical conditions is accepted. Muslims who cannot fast for medical reasons are expected to perform an alternative, such as giving food to the poor.

Title: Re: Having some problems!!
Post by: Kathy11 on September 22, 2007, 09:53:07 PM
Thank Andy , you are all heart :wink
 Maybe Sajid will give me some of the cake :rotfl :rotfl :rotfl :rotfl
I dreamt about those virtual cakes  yes I know, I'm a sad case :rotfl :rotfl :rotfl :rotfl
Kathy
Title: Re: Having some problems!!
Post by: Sharmin on September 23, 2007, 12:25:10 AM
Sorry to hear that you are not well - I hope that you feel better really soon my friend.

 :getwell

Sharmin

Title: Re: Having some problems!!
Post by: §ãJ¡Ð ساجد on September 23, 2007, 06:31:00 AM
Hi Zaini,

Ask your doctor about Fasting. You can postpone them after till you get better to make up the fast that you leave due to medical condition. I have to do it too as my doctor has put me on antibiotics for the sinus and chest infection :(

For Kathy,

I wish your dreams turn to reality...

(http://www.floriweb.com/images/cake1.jpg)
Title: Re: Having some problems!!
Post by: Kathy11 on September 23, 2007, 07:50:55 AM
thanks Sajid
 Now, now you are really tormenting me. :evilplan :evilplan Wow!! wow!! this is a lovely cake :wub :wub :wub :wub :wub :
 :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
 :wink
kathy
Title: Re: Having some problems!!
Post by: Manal on September 23, 2007, 10:35:19 AM
Zaini, you are in my prayers :hugfriend :hugfriend

Manal
Title: Re: Having some problems!!
Post by: Zaini on September 23, 2007, 11:49:22 AM
HELLO,

Thanx Andy,

For your knowledgeable post,the thing is the list you provided of high purine food ,i am already avoiding them,i am a very selective person while it comes to eating and i don't like red meat much let alone organ meat ,i can't even cook them for other people to eat,and my doctor did asked me to drink plenty of water,he asked me to manage it between IFTAR(at the sunset) and SEHAR(a lil before sunrise),he didn't say that i should avoid fasting,i'll ask him again,if he'll say so then i'll surely consider it,as postponing or even not fasting at all due to medical problems is definitely allowed in Islam, i have an uncle who doesn't fast at all due to his kidney problems.

Kathy,

My friend,nothing you said offended me,not fasting when having medical problems is allowed in Islam,and we can compensate it by giving FIDYAH (money or food ) to poor people,I am not taking NOVODOL for family planning purposes,it was supposed to regulate periods for me as i was missing them for months in a row due to polycystic ovaries,same is the reason for my taking glucophage,as insulin level and polysistic ovaries are somehow related,when my ob prescribed me that medicine i asked her about diabetes and she said that no you are not a diabetic but it is to lower your insulin level which is causing you to have polysistic ovaries which will make coception hard ion the future,if i want to concieve,then i asked my cousin who is a resident doctor in family medicine about glucophage,and she said that no my insulin problem was not related to diabetes.
But when i searched about both problems ,that is,polycystic ovary syndrom and hyperinsulinism,i found that diabetes is considered as a possible risk ,

http://www.annecollins.com/carbs-excessive-insulin-health.htm

Quote
The combination of insulin-insensitivity and insulin over-production typically leads to one of two results:

Either, the pancreas gets worn out and insulin production slows down to abnormally low levels. Result? We develop type 2 diabetes. (About 30 percent of cases)

Or, the insulin-resistant patient doesn't develop diabetes (because the pancreas continues to produce sufficient insulin) but, instead, contracts hyperinsulinism (abnormally high levels of insulin in the blood), which can cause chronic obesity as well as high blood pressure, high levels of triglycerides, low HDL (good) cholesterol, heart disease,

http://www.medicinenet.com/polycystic_ovary/page2.htm

Quote
A malfunction of the body's blood sugar control system (insulin system) is frequent in women with PCOS, and researchers believe that these abnormalities may be related to the development of PCOS. It is known that the ovaries of women with PCOS produce excess amounts of male hormone known as androgen. This excessive production of male hormones may be a result of the abnormalities in insulin production.

http://www.medicinenet.com/polycystic_ovary/page3.htm

Quote
What treatments are available for polycystic ovarian syndrome?

Treatment of PCOS depends partially on the woman's stage of life. For younger women who desire birth control, the birth control pill, especially those with low "androgenic" (male hormone–like) side effects can cause regular periods and prevent the risk of uterine cancer.Glucophage is a medication used to treat type 2 diabetes. This drug affects the action of insulin and is useful in reducing the symptoms of PCOS.

I think this post is getting long enough,now another thin g bothering me is my hb,coz it's keeping me down,living with hb of 9.7 is quiet hard.

Sajid,sharmin and manal, thanx for your concerned replies,

LOVE ALWAYS,

ZAINI.
Title: Re: Having some problems!!
Post by: Cath_07 on September 23, 2007, 04:21:06 PM
Dear Zaini :getwell

Am sad to hear of your health problem.  I will lift you up in my prayer.  Hope you get better soon!  Please take good care ok. 

Hey Kathy, Don't get tempted by that 'cake'.  Hahaha..  :rotfl

"Health is Wealth"

Your friend,
Cath
Title: Re: Having some problems!!
Post by: Kathy11 on September 23, 2007, 09:54:59 PM
Dear  Zaini ,
I hope today, is better than yesterday :getwell :getwell :getwell :getwell :getwell,
Kathy
Title: Re: Having some problems!!
Post by: Kathy11 on September 23, 2007, 10:00:30 PM
To Danielle, and Courtney
I hope you are doing better.   I 'm praying for you both
Take care : :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers
much love
Title: Re: Having some problems!!
Post by: Zaini on September 24, 2007, 10:41:26 AM
Hello Cath,

Thanks so much for your wishes,i am feeling a bit better today,thanks Kathy,

I hope Danielle and Courtenay are doing well.

ZAINI.
Title: Re: Having some problems!!
Post by: §ãJ¡Ð ساجد on September 24, 2007, 03:42:37 PM
I hope Danielle, Chrisrtine and Courtenay are doing well, It's been a while we've heard from them.
Title: Re: Having some problems!!
Post by: Andy Battaglia on September 24, 2007, 03:50:36 PM
I did get a short message from Danielle. She had food poisoning on top of everything else. She never catches a break.  :sadnope

And her computer is also broke.  :lousycomputer

Hopefully she'll be back around soon. We all miss you Danielle.  :getwell
Title: Re: Having some problems!!
Post by: Zaini on September 25, 2007, 11:02:07 AM
OH MY !!

This girl needs a break,,i am so sorry Danielle,you are in my prayers,i hope you would recover soon,you and your pc also,we miss your posts and presence on this site terribly.  :bighug :getwell :hug :hug :kiss

ZAINI.
Title: Re: Having some problems!!
Post by: §ãJ¡Ð ساجد on September 25, 2007, 01:56:56 PM
Oh dear, I really pray she'd get well and be back soon. We miss her a lot :(
Title: Re: Having some problems!!
Post by: Sharmin on September 26, 2007, 12:50:16 AM
Zaini,
I hope that you feel better really soon!

Danielle,
I have missed you very much - I hope that you feel better and will be online very soon!

Sharmin
Title: Re: Having some problems!!
Post by: Zaini on September 26, 2007, 11:16:09 AM
Thanx Sharmin,

I am alright,if you minus the pain in most of my body parts, :biggrin other then that i am fine.

ZAINI.
Title: Re: Having some problems!!
Post by: Lyanne on September 26, 2007, 12:08:40 PM

  I hope Danielle's doing better now. Do take care, Danielle ! Take it easy........ my prayers are with you.... and to zaini glad you are feeling better now.... :hugfriend :biggrin
Title: Re: Having some problems!!
Post by: Zaini on September 27, 2007, 11:14:31 AM
Thanx Lyanne, :hugfriend

ZAINI.
Title: Re: Having some problems!!
Post by: Zaini on November 14, 2007, 02:22:33 PM
Hi,

I wanted to ask something (as usual  :wink), TSH or Thyroid Stimulating Harmo,is this test enough to know that a person's thyroid glands are working alright?

ZAINI.
Title: Re: Having some problems!!
Post by: Andy Battaglia on November 14, 2007, 02:32:22 PM
Yes, the TSH test will tell if the thyroid is functioning normally. A high reading means the thyroid is under active. More TSH is produced to try to stimulate the thyroid so the level will be high. In an over active thyroid, the TSH level will be below normal.
Title: Re: Having some problems!!
Post by: jzd24 on November 15, 2007, 05:20:35 AM
Zaini,

I hope you are feeling better. Some of the worst times in dealing with health problems is when you don't know what they are, and doctors can't figure it out. Hang in there and I hope you find out what is causing your problems. Best wishes to you, Jean
Title: Re: Having some problems!!
Post by: Zaini on November 15, 2007, 07:10:26 AM
Thanx Andy and Jean,

One of my biggest problems is weight gain,i am going for walk daily and watching my diet,still i don't loose weight,when my polysistic ovaries were detected i lost 5 kg after starting the medication,according to doctor high insulin level can be one of the reasons of weight gain,but now i am thinking about taking Reductil,a weight loss med,and i read it on the internet that before starting it you should check your thyroid levels,so i've done a test ,now let's see what are the results.

Thanx once again.

ZAINI.
Title: Re: Having some problems!!
Post by: Zaini on November 16, 2007, 03:21:54 PM
Hi Guys,

I got some tests done on 12th november and got the results today,i wanted to share them with you,first of all my hb was checked,it was 9.7 in september and now it has increased to 10.7,my doctor was asking me to take iron due to the low hb, but i wanted to get my ferritin checked before taking any iron, so my ferritin is 50.2 ng/ml,and lastly i  did a Serum TSH test,so my Serum TSH is 2.44 uIU/mL,now i need a lil bit of guidance here,i think my hb is slightly low,ferritin is normal,but i am unable to understand the readings of TSH, so i'll wait for your replies.

ZAINI.
Title: Re: Having some problems!!
Post by: Manal on November 17, 2007, 01:34:27 AM
Zaini

The normal ferritn starts from 72 to 180 unless your lab has other reference range. Did they mention the reference in your tests?

Manal
Title: Re: Having some problems!!
Post by: Zaini on November 17, 2007, 06:04:45 PM
Hi Manal ,

I am really confused,the ranges you provided are totally different from the ranges provided on my lab reports,it's written here F: 6-159 I s that wrong,according to these ranges i assumed that my ferritin is normal.Andy, plz can you tell me anything about the thyroid readings?

ZAINI.
Title: Re: Having some problems!!
Post by: Andy Battaglia on November 17, 2007, 07:35:14 PM
From http://www.nlm.nih.gov/medlineplus/ency/article/003490.htm

Quote
Normal Results   

Male: 12-300 ng/mL

Female: 12-150 ng/mL

Note: ng/ml = nanograms per milliliter

The lower the ferritin level, even within the "normal" range, the more likely it is that the patient does not have enough iron.

This range can vary some and slightly different ranges will be used around the world.

From http://www.nlm.nih.gov/medlineplus/ency/article/003684.htm

Quote
Normal Results   

Normal values are from 0.4 to 4.0 mIU/L for those with no symptoms of an under- or over-active thyroid.

If you are being treated for a thyroid disorder, your TSH should be between 0.5 and 2.0 mIU/L. This means that you are being treated appropriately.

Some people with a TSH value over 2.0 mIU/L, who have no signs or symptoms suggestive of an under-active thyroid, may develop hypothyroidism sometime in the future. Anyone with a TSH above 2.0 mIU/L, therefore, should be followed very closely by a doctor.

Normal value ranges may vary slightly among different laboratories.

Your ferritin is in the normal range. Your TSH is also below where treatment is needed, but it is in the range that requires regular monitoring (once per year).

Exercise can help metabolism (I need to follow my own advice here).
Title: Re: Having some problems!!
Post by: Zaini on November 18, 2007, 11:06:09 AM
Thanx a lot Andy,

ZAINI.