Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: Andy Battaglia on January 20, 2009, 05:28:49 PM

Title: Please Pray for Chuck
Post by: Andy Battaglia on January 20, 2009, 05:28:49 PM
In October, my employee and friend, Chuck, who is a thal minor, underwent a bone marrow transplant for lymphoma. Over the past few days, things have grown dramatically worse, as his lung function has gotten very bad and he was put on a ventilator. His oxygen level is only 86% with the ventilator. His wife sent me this message yesterday.

Quote
On the 16th, he was admitted into Strong Hospital for shortness of breath. They believe he has pneumonia and a build up of fluid on his lungs.  He is once again on the bone marrow transplant floor, and he is fighting for his life.  We are trying to be positive, but it is difficult.  I saw the CT scan, and the doc. said she had never seen anyone with such a compromised lung system look and sound as good as he does.

Chuck has a wife and three children. Please pray for his recovery.
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 20, 2009, 05:34:18 PM
My prayers are with Chuck and his family.  He has come such a long way - I hope that he gets through this crisis unscathed.

Please keep us posted,

Sharmin
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on January 20, 2009, 05:45:42 PM
I pray for Chuck for a speedy recovery.

Andy, please convey our prayers to chuck's family (if you can) and assured them that they have friends praying for him.

Title: Re: Please Pray for Chuck
Post by: Manal on January 21, 2009, 12:33:19 AM
I hope that we soon can hear good news about him. So many times such  critical situations change. He and his family are in my prayers, i wish him a strong will to live and all the luck, may God bless :pray :pray :pray :pray :pray :pray :pray :pray

manal
Title: Re: Please Pray for Chuck
Post by: Zaini on January 21, 2009, 03:09:05 AM
I am really sorry to hear that,it's very disturbing,My all prayers are with him and his family  :pray :pray :pray.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Lyanne on January 21, 2009, 05:50:46 AM



    My prayers are with him and his family..I hope for his speedy recovery.....  :pray :pray :pray :pray :pray
Title: Re: Please Pray for Chuck
Post by: Danielle on January 21, 2009, 07:00:49 AM
Oh dear.  :(  My prayers are with him and his family, Andy.  I hope he will pull through.   :sadyup
Title: Re: Please Pray for Chuck
Post by: nice friend on January 21, 2009, 12:17:20 PM
My Prayers are with Chuck and his Family , i hope Chuck would b fine soon ...
 :getwell for you Chuck , .....

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on January 21, 2009, 02:57:21 PM
This morning's update.


Quote
Chuck is on a ventilator to keep his lungs moving so he can fight the
infection.  The next 24 - 48 hours are critical to see if he can regain his
strength.  He is on the Pulmonary intensive care unit, where they can help
him the most.  We will keep you updated.  thanks. dd

We will continue to pray he makes it through this.
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 21, 2009, 04:29:16 PM
My prayers are with Chuck and his family :pray
I hope that he regains his strength and comes home to his family safely.
Title: Re: Please Pray for Chuck
Post by: Zaini on January 21, 2009, 05:39:39 PM
May God give him the strength to fight it of,may God's blessings be with him.

Zaini.
Title: Re: Please Pray for Chuck
Post by: nice friend on January 21, 2009, 07:59:14 PM
A Message For Chuck :
i hope that he will be fine soon ,  GET WELL SON CHUCK , You're okiey and doing we, We r wating for this NEWS  very very eagerly  , May god give you strength to come out of this situation and fight against the infection . :getwell :getwell :getwell  my prayers are with you & your family ...

Best Regards For you Chuck
Take Care and hope for the best
Umair

Title: Re: Please Pray for Chuck
Post by: Kathy11 on January 21, 2009, 09:48:13 PM
For Chuck and Family  :flowers :flowers :flowers :flowers
Kathy
Title: Re: Please Pray for Chuck
Post by: Manal on January 22, 2009, 12:12:28 PM
Thanks Andy for the update, we are all praying for him, keep us informed :hugfriend
manal
Title: Re: Please Pray for Chuck
Post by: nice friend on January 22, 2009, 12:21:23 PM
Andy ,
how is chuck today ?/,,, please keep us informed ..... best regards and :getwell message for Chuck.....

Take cAre
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 22, 2009, 06:39:24 PM
Andy,

Have you heard anything from Chuck's family today?  We are all praying that he has begun to show signs of improvement. 

Please give the family our best,

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on January 23, 2009, 04:56:24 PM
I heard from Chuck's wife this morning. Nothing has changed much, which can be seen as a positive, since it isn't worse.

Quote
He hasn't changed significantly.  They were able to do a bronchoscopy
Wednesday and we should have the results today so they can fight the
infection with the right anti-biotics.  They've been treating him with a
combination of anti-s. and with the results of the culture they got during
the bronk. they should be able to home in on it more efficiently.

He still looks great; great color, etc.  but he's still under and will stay
that way until there's a big improvement.

Thanks.
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 23, 2009, 05:36:30 PM
Thank you for the update Andy,
I am glad that things haven't gotten worse, I pray that they begin to get better now.

Sharmin
Title: Re: Please Pray for Chuck
Post by: nice friend on January 23, 2009, 09:55:25 PM
praying the same ,

Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on January 26, 2009, 01:25:44 AM
On Friday, the update was not good. The doctors were afraid that Chuck had Diffuse Alveolar Hemorrhage, which is an often fatal side effect of bone marrow transplant. I did not want to share this until the doctors were sure. Sigh of relief. I just received this message.

Quote
OK, it seems it is not dah (which is NOT a good thing to have).  Now they are leaning more toward Idiopathic Pneumonia Syndrome.  Not as harsh a recovery time, and it's being treated.  They've lowered his ox. dependency on the machine to 40%, and lowered the PEEP too, so hopefully, he will continue to do well on this regimen.  I'll keep you updated!  Thanks, Andy.

Idiopathic Pneumonia Syndrome in BMT patients appears to be related to the pre-BMT conditioning with radiation treatments and can also be harsh. However, DAH is worse and Chuck is making some progress in regaining his oxygen independence.

Let's pray that Chuck continues to improve and gets through this soon.
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 26, 2009, 01:46:26 AM
Andy,

My prayers are with Chuck and his family - I hope that he continues to improve and makes a complete recovery very soon. 
 :pray
Sharmin

Title: Re: Please Pray for Chuck
Post by: Zaini on January 26, 2009, 03:16:03 AM
                                (http://i297.photobucket.com/albums/mm220/ZAINY_2008/54a383f6.gif)

Zaini.
Title: Re: Please Pray for Chuck
Post by: Dori on January 26, 2009, 10:05:17 AM
I hope his health will improve pretty soon. :getwell Thank you for the updates, Andy.
Title: Re: Please Pray for Chuck
Post by: jade on January 26, 2009, 01:00:53 PM
Nice to hear that he is improving.  Hope he keeps on this trend.  Waiting to hear good news soon.
Title: Re: Please Pray for Chuck
Post by: nice friend on January 26, 2009, 01:56:11 PM
Hi Andy ,
its very nice to hear that he is healing-up now , i m hoping and praying for the good news in soon future ... i hope he will be :getwell ... alot of good wishes and prayers for chuck .
thank you Andy for the update , please keep updating  ..
(http://www.storesonline.com/members/514179/uploaded/a_touch_of_get_well_soon_sunshine_care_package.jpg)

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 26, 2009, 11:19:41 PM
Dear Chuck,
(http://www.cassidyshope.com/imglib/inMyThotsPrayersGirl.jpg)

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on January 27, 2009, 03:28:13 AM
For Chuck and his family,

                     (http://i297.photobucket.com/albums/mm220/ZAINY_2008/be2dad08.gif)

Zaini.

Title: Re: Please Pray for Chuck
Post by: Poirot on January 27, 2009, 10:20:17 AM
Andy,

Very sorry to hear about the tough times that your colleague and friend is going through.

Here is hoping that he makes a complete recovery soon. My best wishes to him and his family.

Poirot
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 28, 2009, 05:32:28 AM
I am hoping that it was a good day for Chuck and that he is showing signs of improvement.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 28, 2009, 10:12:09 PM
Dear Chuck,
(http://i205.photobucket.com/albums/bb113/fuwithu57/GetWellSoon1.jpg)

Sharmin
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on January 28, 2009, 11:51:34 PM
Chuck is in my thoughts, I pray for his quick recovery. I am sure he will recover, looks like he is a fighter.
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on January 29, 2009, 04:02:46 AM
Chuck continues to show some improvement. I just got the latest update.

Quote
Good news today.  Chuck's PEEP has been lowered to 8, and he's tolerating it well.  They may wake him up soon, but I don't know when.  It'll be a big transition, so I'm a little wary, but I'm excited too.

I didn't go see him today, b/c the weather has been dangerous. 

Thank you for all your prayers, food and good wishes! 

I'll keep you posted. And for those who don't really "get" snow, the reality is what she said. The weather is dangerous. It's been snowing for the past 24 hours and the roads are a mess. Even my cat is cursing the weather.
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 29, 2009, 04:58:48 AM
Andy,

Thank you for the update.  I am so glad that Chuck is showing some improvement.  I wish him continued improvement. 

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on January 29, 2009, 07:37:44 AM
Wishing Chuck a speedy recovery  :getwell

Zaini.
Title: Re: Please Pray for Chuck
Post by: Manal on January 29, 2009, 07:39:54 AM
I am happy hearing these encouraging news Andy, i wish him a faster recovery.
Quote
They may wake him up soon,
, but why they are making him sleep????

Sorry for the weather, hope it gets better soon :wink

manal
Title: Re: Please Pray for Chuck
Post by: nice friend on January 29, 2009, 09:50:12 AM
 :getwell :getwell :getwell :getwell :getwell
 :getwell    Its great to hear this    :getwell
 :getwell GET WELL SOON CHUCK   :getwell
 :getwell :getwell :getwell :getwell :getwell


Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on January 30, 2009, 09:13:11 PM
Andy,

Do you have any further updates on Chuck?  Have they woken him up yet?  I pray that things will improve and that they will wake him up soon.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on February 03, 2009, 04:17:55 PM
There continues to be slow improvement and Chuck has been taken off the meds that have kept him under for two weeks, in anticipation of removing the ventilator. It's slow and there is much to do just to get him breathing on his own again, but honestly, this could have easily gone the other way, so today we are thankful and have hope that tomorrow will be brighter.

The family thanks everyone for their prayers and wishes.
Title: Re: Please Pray for Chuck
Post by: Dori on February 03, 2009, 06:52:17 PM
Andy, I am glad to hear that there is a slow improvement! Si, let tomorrow be brighter.  take care and keep us up to date, Dore
Title: Re: Please Pray for Chuck
Post by: nice friend on February 04, 2009, 11:19:27 AM
Hi Andy ,
Wow, That's Great to hear that he is recovering ,, keep it up Chuck :getwell we r wating to hear from you ... and Andy Thanx for sharing an update about Chuck , please keep it contieud untill Chuck bcome's able to come and have some words with us here on this forum ..... may it will happen soon :pray ..... Best Wishes, Best Regards and Alot of prayers for Chuck .... i hope to hear some more good news regarding chuck's health and recovery ......

Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Manal on February 04, 2009, 11:03:25 PM
So happy to hear the good news. I wish him a full recovery soon. He is a real fighter

manal
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 07, 2009, 08:39:23 PM
Andy,

I hope that Chuck is continuing to improve.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on February 08, 2009, 12:25:07 AM
Chuck is now conscious but still on the ventilator. A tracheostomy was done to minimize the damage done by the tube to the throat and vocal chords. Once he can be weaned off the ventilator he will be sent back to the bone marrow transplant floor because is his immuno-compromised. Very slow progress and his lungs are still being treated for both pneumonia and DAH. Hopefully he can get off the ventilator soon.
Title: Re: Please Pray for Chuck
Post by: Manal on February 08, 2009, 01:33:13 AM
Very good news Andy, hope in the coming days he will do much better. He is in my prayers

manal
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 08, 2009, 07:17:26 AM
Andy,

I am glad that Chuck has shown improvement and is receiving the treatment that he needs.  I can also see what a difficult road it has been for he and his family.  I hope that he recovers from all of this soon and safely returns home to his family. 

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on February 08, 2009, 01:48:18 PM
It must be really really hard for himself and his family,May God grant them strength.

Zaini.
Title: Re: Please Pray for Chuck
Post by: cherieann on February 09, 2009, 06:08:18 AM
Please accept my prayers and love to Chuck and his family.
Kia Kaha (be strong)
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 11, 2009, 04:32:44 PM
Andy,

I hope that Chuck continues to improve.

Sharmin
Title: Re: Please Pray for Chuck
Post by: nice friend on February 12, 2009, 07:16:42 AM
HI Andy ,
Its very good to hear that Chuck is continously showig improvemeent day-by-day . i hopw he will get discharged and back to home very soon ... GET WELL SOON MESSAGE for Chuck  :getwell

Best Rebards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on February 13, 2009, 04:47:55 AM
Wednesday, Chuck spent 8 hours off the ventilator. Thursday he was scheduled for 12 hours breathing on his own. In addition, he is talking. the doctors are amazed because there was concern about damage to his vocal chords from the ventilator tube. He is no longer in the intensive care ward but he is still being treated for pneumonia and DAH. He will eventually be transferred to the bone marrow ward. Khalifa and I conferenced in with Dr Polchi on messenger recently and Dr Polchi told me that when BMT is used for treating lymphoma that some host vs graft disease is necessary for the lymphoma to be wiped out. So, Chuck will have that to look forward to. It's a long road after BMT as we saw with Abdulwahab and it's a dangerous road at times. At least for the moment, things are looking up.
Title: Re: Please Pray for Chuck
Post by: Manal on February 13, 2009, 04:52:09 AM
Congratulations Andy, i am really happy that he was able to pass this critical stage. Please congratulate his family for me. Though the road is long, but it seems that he is a fighter and he will overcome it. Good luck in everything

manal :congrats :yay
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 13, 2009, 05:17:40 AM
Andy,

I am glad that Chuck has made it through this hurdle - I understand that more hurdles may need to be encountered in the future - I hope that he pulls through all of them.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on February 13, 2009, 07:37:20 AM
Andy,

It's a very good news that he is on the road to recovery,things will take time but i am sure after that he'll be happy and healthy.

Best wishes for Chuck  :getwell

Zaini.
Title: Re: Please Pray for Chuck
Post by: jade on February 14, 2009, 01:35:46 AM
It is good to hear that he is better.  Wish him good luck with the coming ordeals.
Jade
Title: Re: Please Pray for Chuck
Post by: nice friend on February 14, 2009, 06:04:53 AM
 :congrats Andy , and alots of best wishes and regards for chuck to have a speedy recovery .... GET WELL SOON CHUCK :getwell

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Dori on February 14, 2009, 08:32:59 AM
I am glad to hear this good news!  :getwell
Title: Re: Please Pray for Chuck
Post by: poo gill on February 17, 2009, 08:24:07 AM
Please Almighty(NS), improve Chuck's health and give his body  the strength to handle the treatment well. WE are all looking up to Chuck. Please make him strong. Please heal him.

Thank you Lord for wathcing us and always being there for us.

Love
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 20, 2009, 10:29:37 PM
Andy,

Are there any updates on Chuck?  Has he been released to go home yet?  Wishing him strength and luck in getting through this entire procedure. 

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on February 21, 2009, 12:58:59 AM
Chuck has been off the ventilator for a few days now and has been breathing on his own with no trouble. He has been eating and has a good appetite, which is good because he lost 50 pounds. His muscle mass is gone and he can't move much on his own, so he will need a lot of physical therapy. He won't be going home soon because he needs to rebuild some muscle and also strengthen his immune system before he is exposed to the outside world. He has been moved to the bone marrow ward so that conditions are basically more sterile. When his wife stopped by yesterday, the sense of relief was obvious. She's been through so much the past few months but is holding together really well, but she can use a break.

Thank you all for your prayers and wishes.
Title: Re: Please Pray for Chuck
Post by: KHALIFA on February 21, 2009, 02:39:48 AM
that true this kind of operation need to wait and slowley treatment i didn't replay before because i know it's very defecult to say any thing because i was in the same setuation and i wait almost 13 month to get my son Abdulwahab back to me .now i can say to Chuck CONGRATOLATION and be a way a way from chunk food also an oily food just boiled food and some easy exersise at home ,,,,,
                 :stars :clap :yaaaaaay :yay :thumbs :flowers :party
                            khalifa
Title: Re: Please Pray for Chuck
Post by: nice friend on February 21, 2009, 03:30:04 PM
Andy ,
 :congrats buddy , i hope that he will back home very soon ... best wishes and best regards for chuck :getwell and :goodluck

Umair
Title: Re: Please Pray for Chuck
Post by: Zaini on February 21, 2009, 06:26:46 PM
A very very good news indeed,please convey our warmest wishes to Chuck and family.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Manal on February 21, 2009, 08:14:28 PM
Congratulations :yahoo, I hope that he continues to do better and that soon he will be released back home

manal
Title: Re: Please Pray for Chuck
Post by: Sharmin on February 27, 2009, 01:33:34 AM
Andy,

I hope that Chuck is doing well, best wishes to he and his family. 

Sharmin
Title: Re: Please Pray for Chuck
Post by: maryo0m on March 02, 2009, 09:10:48 PM
 wow I hope chuck is doing better
Title: Re: Please Pray for Chuck
Post by: nice friend on March 05, 2009, 01:01:00 PM
Hi Andy ,
I hope that Chuck will b fine and recovering very fast . please update us abt him ...

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 12, 2009, 03:07:43 PM
Andy,

I hope that Chuck is doing well now.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 12, 2009, 03:23:40 PM
After having a couple good weeks off the ventilator and starting some physical therapy, Chuck has had a setback. He has pneumonia again. He isn't on the ventilator but on a ventilator mask this time. I heard from his wife this morning and he is slightly improved today. Let's pray this is just a temporary setback.
Title: Re: Please Pray for Chuck
Post by: Zaini on March 12, 2009, 03:42:44 PM
Andy,

I hope he'll recover soon,my prayers are with him and his family.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 12, 2009, 04:03:59 PM
Andy,

I hope that Chuck recovers very soon.  It is unbelievable how many ups and downs there are with bmt.  I hope that he gets through this soon.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Manal on March 12, 2009, 04:15:43 PM
Praying for him  :pray :pray :pray :pray

Andy,
Was it wise for Chuck to go to BMT at his age?? was this his only solution??

manal
Title: Re: Please Pray for Chuck
Post by: nice friend on March 12, 2009, 04:37:48 PM
Praying for him , i hope that he will Recover to it all  very soon ..

Best Regards for Chuck :
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 12, 2009, 04:41:51 PM
Frankly, I advised him against it and told him to get a second opinion but he never did. I thought he is too old and also that BMT was overkill for what he had. Stubborn guy.

Even though I can go to a conference and speak to the best bone marrow transplant doctors in the world, and have very close familiarity with BMT cases, and do know a thing or two, people outside the thal world often think I am just blowing hot air. I can't do anything about the people who think that if you're not a doctor, you can't know anything. I've had that happen here too. We had a thal minor make a hasty exit when she learned I was not a doctor. Her loss, because I know far more about thal minor than 99.9% of the doctors on earth. We can only help those who are willing to listen.
Title: Re: Please Pray for Chuck
Post by: Zaini on March 12, 2009, 04:58:47 PM
Quote
people outside the thal world often think I am just blowing hot air. I can't do anything about the people who think that if you're not a doctor, you can't know anything.

It happens with me too,i can't claim i know so much,but i want to share whatever knowledge i have,but people never listen,we can only hope for their best.

Zaini.
Title: Re: Please Pray for Chuck
Post by: nice friend on March 12, 2009, 05:10:07 PM
Quote
We can only help those who are willing to listen.
:agree

Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 12, 2009, 05:13:21 PM
Andy,

You definitely know more about thal than most general practitioners - you even know more than most doctors that treat thal.    I think that those of us who have learned from you and incorporated it into our lives have benefitted greatly - and those who haven't have missed out on an opportunity to live a healthier and better life.  You advise patients on a daily basis, you save lives and you give us support - I think that you are more than a doctor.  Maybe the thal minor who left will go back taking her iron pills and living her anemic, iron overloaded life - her loss entirely.  

I really hope that the outcome of Chuck's bmt is good in the end.  His wife and children need him.  I will keep his family in my prayers.

Sharmin


Title: Re: Please Pray for Chuck
Post by: Manal on March 12, 2009, 06:54:33 PM
Andy, i totally agree with you, but at the end we must confess that all your information, dedication, ability to research are all unique and it is hard to find another ''Andy'' like you and therefore it hard for people to believe. We are blessed Andy for having you  :hugfriend

manal
Title: Re: Please Pray for Chuck
Post by: Kathy11 on March 12, 2009, 10:46:55 PM
Zaini :flowers :flowers :flowers :flowers :flowers

I suggest you never argue with idiots. it's a waste of time and energy.

I think you are awesome :wub :wub :wub
take care'
Kathy
Title: Re: Please Pray for Chuck
Post by: Zaini on March 13, 2009, 02:03:01 AM
Awww Thank you Kathy  :wub :wub :wub we are lucky to have you here. :hugfriend

Zaini.


Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 13, 2009, 05:12:08 PM
Today's news is not good. Chuck's lung function is not good and he has to be put back on the ventilator. Now the doctors believe it is DAH, which is life threatening.

The family is requesting your prayers.
Title: Re: Please Pray for Chuck
Post by: Zaini on March 13, 2009, 05:28:34 PM
Oh God,my prayers are with Chuck and his family  :pray :pray :pray.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 13, 2009, 06:06:37 PM
Oh no, I hope that Chuck will pull through.  I am praying for Chuck and his family.

Sharmin
Title: Re: Please Pray for Chuck
Post by: nice friend on March 13, 2009, 08:27:45 PM
Hi Andy,
I m Always praying for chuck ,  i hope that he will be fine soon, my prayers are with him ...
please convey my ( our messages to Chuck and his family) , May God Bless Chuck with fast recovery and good health  in soon future :pray :pray ....

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 14, 2009, 11:25:32 PM
Well, I learned today that they did not put Chuck back on the respirator yet, but have stayed with the ventilator mask for now. I guess this is good news somewhat. The problem is his lungs are not functioning well and this is likely due to side effects from radiation and chemo before the BMT. These side effects can be deadly, so it is still a very tenuous situation, at best. We will continue to pray that stubbornness will prevail, and that Chuck will continue to tell death to take a hike.
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 14, 2009, 11:38:57 PM
I am glad that the situation is better than it originally appeared.  I hope that Chuck gets past this rough time soon.  My wishes to his family.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Manal on March 15, 2009, 12:03:18 AM
Andy, please send them my sincere wishes of speedy recovery

manal
Title: Re: Please Pray for Chuck
Post by: nice friend on March 15, 2009, 07:04:23 PM
Andy ,
please convey my Good wishes and best regards to chuck :getwell

Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: nice friend on March 26, 2009, 04:03:17 AM
Hi Andy,
How are  you ?. i hope that you will b fine ... how is Chuck doing ?? ... is he out of danger now??... please update us ASAP ... and convey Alot of good wishes and regards to him ... and a :getwell message as well ..... i hope he will  b also fine and doing better day by day  ...

Best REgards
Take Care ( you too )
Umair
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 26, 2009, 04:15:09 AM
The last news I got on Chuck was on Monday and was not good. Chuck was put back on the ventilator on Saturday because his lungs are not functioning well enough on their own. I am very worried.
Title: Re: Please Pray for Chuck
Post by: nice friend on March 26, 2009, 04:21:06 AM
Andy,
i hope, He will be fine soon , he is always in my prayers , may GOD bless his Family with Good healthy and  walking and Talking, Chuck ..... :pray :pray ...

Best Regards
Take Care
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 26, 2009, 04:25:31 AM
Oh dear, I hope that his lungs begin functioning properly very soon.  What a difficult situation this has been for he and his family.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on March 26, 2009, 05:42:43 AM
I hope he comes out of this situation soon,this whole experience must be devastating for his family,i wish he'll recover soon so they can forget it as a night mare.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 27, 2009, 05:17:29 AM
I hope that Chuck is recovering.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on March 27, 2009, 05:26:23 AM
There's a slight improvement as the week has gone along and the drugs are working faster on his lungs this time. Let's hope he's not on the ventilator much longer.
Title: Re: Please Pray for Chuck
Post by: nice friend on March 27, 2009, 05:53:42 AM
Andy ,
i hope he will recover very fastly and his lungs will start woorking 100% , :pray


Best Regards for Chuck
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 27, 2009, 05:56:16 AM
I am glad to know that there is some improvement - I hope that a complete recovery comes soon.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on March 27, 2009, 01:25:34 PM
Andy,

Please convey our best wishes to Chuck's family. I sincerely pray he comes out of this ordeal very soon. I am keeping my fingers cross to hear good news.

Regards to Chuck and his family.
Title: Re: Please Pray for Chuck
Post by: Dori on March 27, 2009, 09:04:57 PM
Thank you for the news. I hope it too.

Title: Re: Please Pray for Chuck
Post by: Manal on March 28, 2009, 03:06:33 AM
Thanks Andy for the update, i really hope everything will be back to normal soon

manal
Title: Re: Please Pray for Chuck
Post by: Sharmin on March 29, 2009, 06:32:49 PM
Hi hope that Chuck continues to show signs of improvement. 

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on April 13, 2009, 03:15:33 AM
I was able to visit Chuck today. I hadn't seen him since January because I had a cold that wouldn't leave and by the time it did, he was back on the ventilator. Chuck's family and friends were gathered in a family room in the bone marrow ward, just down the hall from his room, for an Easter buffet meal. Chuck was brought into the room in a large adjustable hospital chair where he was able to sit up in a reclining position. For what he's been through, Chuck looked better than I thought he would. He was lucid and coherent and we talked for quite awhile. He also ate quite a bit over a 2 hour period. It was good to see him getting real food again. He is able to raise his arms up and use his hands which is a big improvement. We both agreed that his stubbornness was responsible for him still being alive. It's still too early to tell if his lungs will recover this time but he is doing better and they're being slower about lowering his prednisone dose this time. If all continues to improve, he will most likely be in a rehab home for a short period until he is strong enough to come home.

My biggest impression was that Chuck has improved quite a bit since he was taken off the ventilator the second time. His arms and hands were stronger than I expected and his mental awareness and ability to communicate were both good. If his lungs recover, I think he'll be back home within a month.
Title: Re: Please Pray for Chuck
Post by: Sharmin on April 13, 2009, 04:43:08 AM
Andy,

Thank you so much for the update.  I am so glad to hear that Chuck seems to be doing well, I hope that he recovers completely very soon and that you are pleasantly surprised when you see him next. 

Best Wishes and Happy Easter to Chuck's family,

Sharmin
Title: Re: Please Pray for Chuck
Post by: nice friend on April 13, 2009, 04:48:54 AM
Quote
Chuck looked better than I thought he would. He was lucid and coherent and we talked for quite awhile. He also ate quite a bit over a 2 hour period. It was good to see him getting real food again. He is able to raise his arms up and use his hands which is a big improvement
Its Really satisfying to hear this all, I Wish Him a Fast Recovery ....
Quote
My biggest impression was that Chuck has improved quite a bit since he was taken off the ventilator the second time. His arms and hands were stronger than I expected and his mental awareness and ability to communicate were both good.
Its nice to hear this, Andy ... he's recovering ....
Quote
If his lungs recover, I think he'll be back home within a month.
I hope, Pray and wish that His lungs will recover on fast rate and will be recovered sooner as possible & he wwill back to home as shortly as you're expecting ... :pray ....

Lots of Good Wishes &
Bes Regards for Chuck ....

Umair
Title: Re: Please Pray for Chuck
Post by: Manal on April 13, 2009, 05:27:22 AM
Good to know this Andy, i know how hard the situation is,but being able to see him is a good sign, wishing him the best of luck :goodluck

manal
Title: Re: Please Pray for Chuck
Post by: Zaini on April 13, 2009, 08:19:31 AM
Thanks God, A very good news finally,i hope he'll be home soon.

Thanks for the update Andy.

Zaini.
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on April 13, 2009, 09:39:19 PM
Hi Andy,

This is great news. I was thinking of Chuck just yesterday and good to hear that he is recovering. We can imagine how tiring and stressful his time in hospital but he is a fighter.

Please continue to update us.

Regards
Title: Re: Please Pray for Chuck
Post by: Dori on April 14, 2009, 07:30:29 AM
Thank you for telling us this good news. I am glad he is recovering!

Lots of Best wishes,

Dore
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on April 24, 2009, 07:49:48 PM
Thanks to Umair for reminding me to do an update.

Chuck has been steadily improving and today he was released from the hospital to a rehab center in the same hospital, so technically, he is no longer hospitalized. This is wonderful news and if all goes well, once he is strong enough and able to walk on is own, he will be released to go home. He is very much looking forward to this, as he has been back in the hospital since January.

Let's hope the worst has now passed.
Title: Re: Please Pray for Chuck
Post by: nice friend on April 24, 2009, 08:00:38 PM
Hi Andy ,
 Your Welcome ,
i hope chuck will back home and he will be able to walk on his feet in soon futur  ..
please convey my Lots of Prayers, Wishes and regards to him .. :getwell Chuck ..

Best Regards
Umair
Title: Re: Please Pray for Chuck
Post by: Sharmin on April 24, 2009, 10:41:57 PM
Andy,

What wonderful news, I hope that Chuck gets through all of this and recovers soon.  I look forward to hearing that he is able to go home.  All the best to Chuck and his family.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Manal on April 25, 2009, 12:18:11 AM
Thanks Andy for the update, i am really happy that Chuck has passed the dangerous state, may he continues to be better. Greetings to Chuck and his family

manal

(http://www.csabo.com/SpeedyRecovery.JPG)
Title: Re: Please Pray for Chuck
Post by: Zaini on April 25, 2009, 02:01:19 AM
Thanks for an update Andy,its finally a good news,hope he continues to do well.Please convey our wishes to Chuck and his family.



                                 (http://i237.photobucket.com/albums/ff183/heidivc42/get_well_graphics_20.gif)

Zaini.

Title: Re: Please Pray for Chuck
Post by: Dori on May 03, 2009, 02:43:49 PM
I have been thinking about him during my vacation. I am glad he continues to doing well.

For Chuck:  :flowers :thumbup
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on May 14, 2009, 03:43:34 PM
Chuck's going home today. He can't walk yet because his body got so weak while he was on the ventilator but he's doing physical therapy and coming along. I hope he can stay healthy this time.
Title: Re: Please Pray for Chuck
Post by: Sharmin on May 14, 2009, 04:50:55 PM
That is great news Andy!  I hope that Chuck stays healthy once he gets home. 
Title: Re: Please Pray for Chuck
Post by: Dori on May 14, 2009, 07:43:35 PM
Indeed GOOD news!!! I wish him all the best with therapy. There is NO PLACE like home!!!
Title: Re: Please Pray for Chuck
Post by: Manal on May 14, 2009, 10:15:25 PM
Congratulations To Chuck and his family, this is really great and i hope he continues to better and betteruntil he is back to his normal life, welcome home :wink

manal
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on May 15, 2009, 12:09:55 AM
Great News, Praying that chuck continue to improve.

Welcome home.

Title: Re: Please Pray for Chuck
Post by: nice friend on May 15, 2009, 05:17:34 AM
Great News , Congrats to Chuck and his Family , i hope he will conteu improving on more fast rate ,  and very soon he will recover completely ... God bless you Chuck ..
(http://www.ics.uci.edu/~eppstein/pix/j4p05/WelcomeHome-m.jpg)

Best Regards
Umair
Title: Re: Please Pray for Chuck
Post by: Zaini on May 15, 2009, 03:58:49 PM
A very good news finally,hope he stays well.

Zaini.
Title: Re: Please Pray for Chuck
Post by: KHALIFA on May 15, 2009, 05:07:01 PM
Hi Chuck
      congratolation hope and i pray for your health to be good ,,, and asi said before no chunk food for at least one to two years up to your health ( if you stop it for ever is better ) (hope Andy show you this MSG) try to make some exersise light one healthy food (boiled) even fish white meat no oily food no chips or fried chips ...  :wink
                           khalifa
                      state of kuwait
Title: Re: Please Pray for Chuck
Post by: Sharmin on June 22, 2009, 03:35:19 AM
Andy,

How is Chuck doing now? 

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on June 22, 2009, 03:53:48 AM
Chuck's doing well. He has been having physical therapy and is walking with a walker but hopes to be rid of it within a month. His lungs have been doing good, so he may finally be out of danger from that problem. His white cells are back to normal, which is great. Strangely, so far his hematocrit is only 28, even though the BMT should have cured his thal minor. Maybe it will improve as time passes. Overall, he is recovering well.
Title: Re: Please Pray for Chuck
Post by: Sharmin on June 22, 2009, 04:28:38 AM
I am very happy to hear that Andy - may he continue to improve.

Sharmin
Title: Re: Please Pray for Chuck
Post by: Zaini on June 22, 2009, 07:31:48 AM
Its always great to hear a good news :) many wishes for Chuck and his family .

Zaini.
Title: Re: Please Pray for Chuck
Post by: nice friend on June 22, 2009, 07:55:26 AM
Andy,
its Really make me glad, its great to hear this news ... lots of good news for today hummmm ... its seem's like a good day .... Have a nice to you all .. and :getwell message for Chuck ... :goodluck you all ...

Best Regards
Umair
Title: Re: Please Pray for Chuck
Post by: mohamed on June 22, 2009, 10:26:51 AM
happy to hear good news about chuck and waiting for the better and better. :goodluck  :goodluck  :goodluck
Title: Re: Please Pray for Chuck
Post by: Manal on June 22, 2009, 05:32:45 PM
Way to goooooooooo :wink

manal
Title: Re: Please Pray for Chuck
Post by: Sharmin on September 02, 2009, 02:50:38 PM
I hope that Chuck has made more progress in his recovery,

Sharmin
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on October 22, 2009, 05:26:45 AM
It's been awhile since I updated about Chuck. I see him every week and he has made good progress. In fact, he was deemed well enough for surgery and had his gallbladder removed today. Things went well and he should be released tomorrow. He continues to have low hemoglobin, in the 8-9 range, but hopefully this will eventually improve. All in all, he's doing pretty good. His recovery from the lung problems was amazing and his lungs have healed well. It's good to see an older adult make it through a bone marrow transplant and gives much hope to those who explore this for their children. The techniques continue to be refined and BMT's become safer every day.
Title: Re: Please Pray for Chuck
Post by: Manal on October 22, 2009, 05:31:13 AM
Thanks Andy for sharing the wonderful news, I am happy to know that he is doing well. He had passed actually through a lot of challenges ( i was too worried about his age) but he seems to be a fighter

manal
Title: Re: Please Pray for Chuck
Post by: Dori on October 22, 2009, 01:47:00 PM
I'm happy too he's doing well.
Title: Re: Please Pray for Chuck
Post by: nice friend on October 22, 2009, 02:04:23 PM
Glad to hear this all , to hear abt Chuck's health and abt a succesful BMT of and older adult. ... :) aothher ray of hope .... lots of best wishes n regards  for chuck ...

Umair
Title: Re: Please Pray for Chuck
Post by: Dori on November 22, 2009, 02:58:38 PM
Andy, how is Chuck doing? Did he recover from the gallbladder operation?
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on November 22, 2009, 05:46:57 PM
Chuck actually came into my shop this week (wearing a mask) and is slowly recovering. He was moving a bit slower but he's recovering from surgery.
Title: Re: Please Pray for Chuck
Post by: Prets on November 22, 2009, 06:21:56 PM
This is nice to hear that Chuck is doing better now.

How old is he? I didn't find it in the posts.
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on November 22, 2009, 06:30:41 PM
Chuck is in his mid 50's.
Title: Re: Please Pray for Chuck
Post by: Dori on November 22, 2009, 10:34:44 PM
I am glad he is recovering and especially that he's out of the hospital. There is no place as home!
Title: Re: Please Pray for Chuck
Post by: Keep Smiling on November 23, 2009, 05:44:40 AM
Good to hear about Chuck............
Title: Re: Please Pray for Chuck
Post by: nice friend on November 26, 2009, 03:50:03 PM
 :getwell Chuck :) ...
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on November 26, 2009, 04:30:06 PM
Chuck is a fighter. So glad he is recovering and doing fine.
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on October 14, 2012, 06:43:55 PM
It is with a very heavy heart that I announce that Chuck has passed on Friday, October 12 at the age of 60. The BMT had cured the lymphoma, but it did so much damage to his lungs and organs that he never fully recovered. The latest bout of pneumonia was too much for his body.

Chuck had returned to work a few hours a week for me. This is heartbreaking news, Prayers are requested for his wife and three children.
Title: Re: Please Pray for Chuck
Post by: Pratik on October 14, 2012, 07:51:13 PM
This is very sad to hear and a grief moment.

Rest in peace, chuck and may god give his family enough strength to survive this heavy loss.

I am feeling shame in asking or saying at this moment, but Andy, from what I know lymphoma is of lymph nodes, and I too have enlarged lymph nodes and recently I always have problem in nose in breathing, more like sneezing/cold. Should I be concerned? Can lymphoma happen to me?

-P.
Title: Re: Please Pray for Chuck
Post by: Sharmin on October 15, 2012, 01:48:30 AM
This is very heartbreaking Andy.  It feels like we went through the entire experience with him and we all feel the loss.  Sending prayers to his family and to you - as you have had to say good bye to so many people close to you recently.

Sharmin

 :sorrow
Title: Re: Please Pray for Chuck
Post by: Andy Battaglia on October 15, 2012, 02:04:41 AM
Pratik,

Anyone can get lymphoma. My 18 year old neighbor just finished chemo for it and is doing well. I really wish Chuck had stayed with the traditional treatment, rather than allow an irresponsible doctor do the BMT so he could have a big pay day.

You can read about symptoms and testing for lymphoma at http://www.cancer.org/Cancer/Non-HodgkinLymphoma/DetailedGuide/non-hodgkin-lymphoma-diagnosis

It is best to talk to your doctor if you have concerns.
Title: Re: Please Pray for Chuck
Post by: Canadian_Family on October 15, 2012, 03:29:57 PM
This is sad and heartbreaking. I feel for the family and the pain endured by Chuck.

Prayers for the Chuck's family.