Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Sharmin on February 16, 2011, 06:06:47 PM

Title: THALASSEMIA PATIENTS IN INDIA
Post by: Sharmin on February 16, 2011, 06:06:47 PM

A young thalassemia patient in India requires a pump.  Can someone please guide us so that Ankita can get a pump.  Chelation is essential to survival and well being in thalassemia - and this young lady has been requesting information about a pump for quite some time. 

Anyone having any information please post information as soon as possible. 

I hope that everyone has access to exjade (asunra, desirox), or L1 in the meantime if they are having difficulty obtaining desferal and associated supplies - but we must make sure that no one goes without chelation as the consequences can be devastating. 

Thank you all for your help,

Sharmin

Title: Re: THALASSEMIA PATIENTS IN INDIA
Post by: Zaini on February 17, 2011, 03:34:28 AM

I was guessing our members from India would be able to guide properly,but i googled it and found this,

http://www.thalassemicsindia.org/material.html

Plz contact them as they might be able to help you.

Zaini.

Title: Re: THALASSEMIA PATIENTS IN INDIA
Post by: Sharmin on February 17, 2011, 05:05:30 AM

Zaini,

Thank you so much.  I sent her some contacts from our list of treatment centers in India - but this should be even more helpful. 

I hope she is able to get the supplies she requires.

Thanks again,

Sharmin