Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: Parin on November 24, 2015, 12:23:06 PM

Title: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Parin on November 24, 2015, 12:23:06 PM

Dear All,

Can anyone from USA guide me the procedure of Blood transfusion for thalassemia Patient? e.g. if i am visiting USA how I approach to doctor/Hospital? A entry point?

Thank you in advanced

Regards,
Ashutosh

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Parin on November 25, 2015, 12:25:27 PM

is it i have posted in right category?

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Bostonian_04 on November 25, 2015, 04:28:21 PM

Parin2005,

Which city will you be visiting? as an US resident, we have a dedicated Hematologist for our child who prescribes the transfusion and related care. The Hematologist sits at the children's hospital so we just go to him to get everything coordinated - type/cross, transfusion, all other lab work, chelator prescription etc.

As a visitor, I suggest you send an email to Patient Services Manager: Eileen Scott (eileen.s@thalassemia.org) from CAF to get some insight into how to get it started. Or, may be someone else on the forum as additional advise.

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Canadian_Family on November 25, 2015, 08:10:16 PM

I don't live in the US, but I know that international travelers have to buy medical insurance if they are travelling to the US. I know people who had to pay expensive premiums to buy medical insurance in the US as they are not citizens or residents of the US.

Specially, it would be hard to find insurance company if somebody has pre-existing condition.

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Parin on November 26, 2015, 04:45:51 AM

thank you Bostonian_04 and Canadian_Family for your information.

Regards,
Ashutosh

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: elegantkunal on April 09, 2016, 09:52:16 PM

Even my wife would be travelling to usa next month.please let me know where can i start to get the blood transfusion.I will be in new jersey and cooley anaemia foundation is 40 minutes drive. Can i visit the org and consult?

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Sharmin on April 11, 2016, 04:01:31 PM

ElegantKunal,

Perhaps call the Cooley's Anemia Foundation so that they know what your visit will be about.  Best of luck.

Sharmin

Title: Re: Blood Transfusion Procedure in USA for Thalassemia Patient
Post by: Bostonian_04 on April 11, 2016, 09:27:43 PM

ElegantKunal,

You can also email Patient Services Manager: Eileen Scott (eileen.s@thalassemia.org) before you travel to get details.