Thalassemia Patients and Friends
Discussion Forums => Thalassemia-related Issues => Topic started by: catchR on April 18, 2017, 07:26:59 AM
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Dear all,
Has anyone come across Macular Cone degeneration as a side effect of chelation (deferasirox)??
After recent observation of marked change (reading, seeing fine written things) in vision for lil Miss H, we went for vision evaluation, only to learn that both her eyes had Bulls Eye Maculopathy (Cone degeneration).
However, unable to ascertain whether the cause of this, could it be the chelator?? doctors at the eye center dont know much about side effects from chelators and hence completely rejecting this possibility.
we are in much anxiety & distress. Your inputs will be much appreciated...
History - Please note Lil H's vision was reported completely normal @ ~15 months back eye evaluation.
warm regards,
R
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Andy, others,
Please advise.
recent ferritin came back as 403ng/ml. Deferasirox dose was roughly ~30mg/kg
warm regards,
R