Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: Manal on January 07, 2007, 02:18:15 AM

Title: That gave me hope
Post by: Manal on January 07, 2007, 02:18:15 AM: Last week, i was watching the inside edition and they were talking about an american girl that had aplastic anemia for many years, done several transfusions, took dozons of medicnes and male hormones( that completly changed her face and appearence) to stimulate the bone marrow to try to work again. Her case was deteriorating from the side effects and her only hope was a BMT and she got a donor and everything was organized. Two weeks before the transplant, her bone marrow worked, every single thing in her body became normal again. All her CBCs were totally normal. No one could ever explained how did it happen. No doctor claimed he ever saw a case like that, but it happened and the girl went back home and after a while her appearance was back to the girly look she had before. I guess that this is a miricale, but the program showed us the girl before,during and after the disease. It is very comforting to watch things like that.
So i guess you do your best and leave the rest for GOD.
I wanted to share what i watched with you all

Manal

Manal
Title: Re: That gave me hope
Post by: KHALIFA on January 07, 2007, 01:00:39 PM: Dear Manal
The GOD always have the mercy for us ,,i'll tell you a story a bout a prophets (MOSES) who talk to the GOD ...
One day he was seting in his place and there is a women come to him asking him to talk to the GOD to let her pregnane and to have a baby after she left he ask the GOD he replay she will never get pregnane her womb is not good after one year she came to him and she is carying a baby and also asking him a gain to ask the GOD to have a baby he ask the GOD after she left and the replay was she will not going to have a baby because her womb is not good ..after one year same thing is happened she came with another baby .. he ask her what happened she said i don't know i aleays pray to the GOD that what i do normally ...after she left he talk to the GOD how come am asking you to let this women to have a baby and you answer me NO THIS WOMEN WILL NEVER BE PREGNANE and after a while i saw her with two child tell me what happened ,,, The GOD replay WHEN YOU ASKING ME TO LET THIS WOMEN TO HAVE A BABY I KNOW SHE WILL NEVER GET PREGNANE BECAUSE I WRITE IN MY BOOK SHE WILL NEVER GET PREGNANE..BUT WHEN SHE LEFT YOU SHE PRAY TO ME AND SHE SAID IN HER PRAY (OH GOD WHO IS MOST MERCIFUL LET ME BE A MOTHER FOR THIS REASON MY MERCY I GAVE IT TO WHO ASKING ME ...BECAUSE AM THE GOD AM WHO GREAT YOU ALL AND ALL OF YOU IS MY SLAVES ..
for this reason my dears we are pray to the GOD every one in his way and asking him to give us the mercy and easy life ... :biggrin
KHALIFA
STATE OF KUWAIT
Title: Re: That gave me hope
Post by: Canadian_Family on January 07, 2007, 02:17:39 PM: Hello All,

I suggest not to give any religious examples, religion to me is a private matter and sometimes cruel debates can happen.

Regards
Title: Re: That gave me hope
Post by: §ãJ¡Ð ساجد on January 07, 2007, 03:29:33 PM: Hi Canadian Family,

There's nothing wrong with this example. It can relate to any religion; that all you need is to have faith, that one day your prayers will be answered.

Take care, Peace!
Title: Re: That gave me hope
Post by: Andy Battaglia on January 08, 2007, 01:11:58 AM: I do think we have to have some tolerance when it comes to religion. People have many different beliefs and some believe there is no God at all. But we can also have reasonable discourse to which no one should take offense. I don't think a general suggestion to have faith in God should offend, even to those who do not believe in God.

I do have some guidelines that I follow when it comes to religious matters. When someone speaks of their faith, there is no problem. However, when one tries to proselytize and tells others they should believe their religion, that post will be deleted. I have done it before at MSN and felt that no matter how strongly the member believed that we should all follow their beliefs, I would not allow the post, as many would be offended by being told they should follow another's beliefs. Also, when things become inflammatory as they did with the Mumbai bombing thread, I feel that as administrators, Danielle and I have an obligation to step in and calm things down.

I hope we can remember the spirit in which these posts were made and accept that those posting have a strong faith that God's will must be accepted, and that we can accept their faith without it troubling us. As much as I question God's plan for my own life, in the end I have to accept what happens. I may never understand what and why and why everything has to be so difficult for people, but when my mind finds peace I see that it is always God's plan that has been at work, whether I agree with the immediate results or not. If in your life you don't have this belief or regardless of what beliefs you do have, I hope that in our forum people can feel free to express their own faith without criticism.

I do also feel that there is, as Canadian Family has pointed out, the potential for things to get out of hand, but I hope you all know that Danielle and I will do everything we can to keep this family together and step in where needed. I have never seen where arguments about religion have been productive in any setting, and I think we should refrain from it here. Have some faith that people joined for a common purpose can find ways to get along.
Title: Re: That gave me hope
Post by: Danielle on January 08, 2007, 02:57:26 AM: I absolutely agree, Andy. :thumbsup

Everyone is entitled to their own religious beliefs, and are able to state them in this forum, as long as they don't try to push it on others. Unfortunately, religion is one of those topics that tend to get heated, so as long as you guys can respect the beliefs of one another, the discussion will go smoothly. If not, then we will have no choice but to lock the thread. :( We don't want you guys to argue. :sadnope
Title: Re: That gave me hope
Post by: Sharmin on January 08, 2007, 03:06:28 AM: Thanks for the happy story Manal, it is nice to hear something nice and miraculous has happened for someone:)
Sharmin
Title: Re: That gave me hope
Post by: Manal on January 08, 2007, 12:19:21 PM: Thanks a lot Sharmin for your nice words. Happiness is what i wanted anyone to feel when he reads this story and nothing else. So sad this post took another direction.

Manal
Title: Re: That gave me hope
Post by: Danielle on January 08, 2007, 04:14:49 PM: Quote from: Manal on January 08, 2007, 12:19:21 PM
So sad this post took another direction.

It's ok, Manal. Not everyone is going to agree with everything that someone posts. It's not the original poster's fault for that, especially when that wasn't their intention. :hug
Title: Re: That gave me hope
Post by: KHALIFA on January 08, 2007, 06:21:53 PM: OK ,,,,,,,, THAT IS'T
ENOUGH AND ENOUGH WHAT I WROTE IS WRETIN IN THE MUSLIM BOOKS AND CRISTIAN BOOK AND ALSO IN JEWISH BOOK ...ALSO I DIDN'T WRITE ANY THING TOUCH SOMTHING SINSETIVE ..AND IF Mr AND Mrs Canadian_Family FEEL BAD A BOUT WHAT I WROTE I JUST WANT FROM EVERY BODY TILL ME WHAT WRONG I DID AND DID I CALL ANY BODY TO BE JMUSLIM OR CRISTIAN OR JEWISH.... I THINK Mr AND Mrs Canadian_Family THEY OWNE FOR ME AN A PPOLOGISE BECAUSE AM REALY UPSET AND REALY ANGRY FROM WHAT AND HOW THEY THINK
AND IF THERE IS NO A PPOLOGISE I FEEL SOORY Mr Andy TO TELL YOU AM GOING TO DELET MY A COUNT ..
BYE
Title: Re: That gave me hope
Post by: Danielle on January 08, 2007, 06:48:40 PM: You didn't do anything wrong, Khalifa. :hug
Title: Re: That gave me hope
Post by: Andy Battaglia on January 08, 2007, 07:51:52 PM: Khalifa,

I don't understand what concerns anyone had about your post either, as the whole point was simply that each person prays in his own way. It's nothing for anyone to lose any sleep over. I seriously hope you will reconsider as the managers of this site are not who upset you and we both think you're a great guy and the best dad, and your input in this site has been very valuable and your humor is second to none.

As your big brother I'm gonna say to just relax and let it go. I am sure this is a simple misunderstanding and that no offense was meant. Chill :cold
Title: Re: That gave me hope
Post by: KHALIFA on January 08, 2007, 08:46:46 PM: OK
:biggrin
KHALIFA
STATE OF KUWAIT

ALL FOR ONE AND ONE FOR ALL
Title: Re: That gave me hope
Post by: Christine Mary on January 08, 2007, 09:43:49 PM: khalifa,

I look forward to reading your posts! You are an inspiration to Thal parents (like myself) and I value your opinions and experience!!!!
I think if you go, Ill get a round trip ticket to Kuwait! :bat :biggrin

Love,

Christine
Title: Re: That gave me hope
Post by: KHALIFA on January 08, 2007, 10:15:03 PM: Christine
:kiss :kiss I LOVE YOU TOO AND I LOVE YOU ALL :kiss :kiss
misunderstanding always happened between even the brothers and sisters even your stomach make sound that mean there is sombody :catfight inside your stomach ..
am not going to leave this site and am going to protect it against any bad or any offense ..
And if you wish to come to kuwait plz you will be my guest in my home so just feel free if you wish to come any time ..
khalifa
state of kuwait
Title: Re: That gave me hope
Post by: Kathy11 on January 08, 2007, 11:16:11 PM: Hi everyone,

The reason I like this web-site is because we all seems to accept each other and support each other with good intention.
from time to time we agree to disagree like any disfunctional family,
Lets bygone be bygone,focus our eneygy on the most important issues here, its our children and our health,and the bond of friendship.
Please lets not waste our precious time on petty things .
We are family and the love for one another is our motto.

" What do we live for if its not to make life less difficult to each other."by George Eliot

Khalifa you are a wonderfull father and you bring good humour to this web-family and you are appreciated , :hug :hug :hug :hug :hug :hug :hug :hug
Canadian_Family your are entittled to your opinions ,and you are also part of this family
Two wrong doesnt make a right, :hug :hug :hug :hug :hug :hug :hug :hug
I wish that no-one leaves ,remember our strength lies in us being a group we are interdepandant,
I love you all and I enjoy and look forward to read from every singly one of you
:kiss :kiss :kiss :kiss :kiss :kiss :kiss :kiss :kiss :kiss :kiss

Ps Daneille I too love the smileys thank-you,

Kathy
Title: Re: That gave me hope
Post by: Sharmin on January 08, 2007, 11:26:46 PM: Khalifa and Manal,
I look forward to more inspirational postings from you both. We have so much to learn from your experiences!
:hug :hug :hug :hug :hug :hug :hug
Title: Re: That gave me hope
Post by: Danielle on January 08, 2007, 11:28:23 PM: Quote from: Kathy11 on January 08, 2007, 11:16:11 PM
Ps Daneille I too love the smileys thank-you,

Awww, shux. :blush You're very welcome. Anything for you guys. :bighug
Title: Re: That gave me hope
Post by: Canadian_Family on January 09, 2007, 12:22:54 AM: I apologize for anyone I have offended, but it was certainly not my intent as such.

My earlier comments were CERTAINLY NOT against the religion, I myself is a deep religious person, I respect religious people and their opinion. The only reason I said because I had seen it before and I just cautioned it, one classic example is my simple post and it got out of hand.

There was nothing wrong to what was said or in a example, I think I was taken wrong.

Khalifa dear, I like what you say, so don't feel bad.

Rest assured I guess I am pardoned, AM I??????

Regards
Title: Re: That gave me hope
Post by: Andy Battaglia on January 09, 2007, 12:33:11 AM: Canadian Family,

I was quite sure what your motives were as we have had the situation get out of hand before and I know all you were asking is that we don't let that happen again and I agree.

I hope everyone will always remember that with so many different nationalities represented here, that sometimes there may be communication problems, so I hope people will refrain from jumping to conclusions. :hug?
Title: Re: That gave me hope
Post by: Canadian_Family on January 09, 2007, 12:43:39 AM: Thanks Andy, that takes a load of my mind.

Regards
Title: Re: That gave me hope
Post by: KHALIFA on January 09, 2007, 01:45:00 AM: SALLAM ,SHALOM , PEACE BE OPEN YOU ,HALLO Canadian_Family
i forget everything and as what i said even the brothers in one house they have some problems and some fighting :catfight am realy i don't mean any thing when i said that what i mean on that story is only we must have some faith what ever you belive .. any way it's gone ..
now time to have some party :cheer :stars :party :love :veil and some rest
take care my brother and my sister Canadian_Family
all my love to you and your family
:kiss
khalifa
state of kuwait
Title: Re: That gave me hope
Post by: Kathy11 on January 09, 2007, 01:58:51 AM: I AM SO PROUD OF THIS GROUP :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap
Kathy
Title: Re: That gave me hope
Post by: Manal on January 09, 2007, 02:08:39 AM: Thanks God everyone is happy now. At some time i felt guilty that i started this post, but when i post any thing in this site i really don't think of what i am writing or how other takes it because i really consider you my big family so i just right what ever comes in my mind. Of course one should consider other nationalities like Andy said, . But to be in the safe side, i want to declare that what ever i might write in the future is not meant to offend anyone or doesn't have any bad intentions at any level.
Anyway as dear khalifa said, its time to party.

Manal
Title: Re: That gave me hope
Post by: Danielle on January 09, 2007, 08:46:56 PM: Quote from: Andy on January 09, 2007, 12:33:11 AM
Canadian Family,

I was quite sure what your motives were as we have had the situation get out of hand before and I know all you were asking is that we don't let that happen again and I agree.

I hope everyone will always remember that with so many different nationalities represented here, that sometimes there may be communication problems, so I hope people will refrain from jumping to conclusions. :hug?

:exactly

I love you all. :wub