Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: rutuja2000 on April 05, 2007, 01:30:09 PM

Title: stem cell transaplantation in thalasseamia major
Post by: rutuja2000 on April 05, 2007, 01:30:09 PM

Tell me the result about stem cell transplantation in thalasseamia major disease.

Title: Re: stem cell transaplantation in thalasseamia major
Post by: dlevy on April 18, 2007, 04:04:04 AM

It depends on the person's age and general condition.

Title: Re: stem cell transaplantation in thalasseamia major
Post by: §ãJ¡Ð ساجد on April 18, 2007, 06:55:50 AM

:yeahthat :agree

I was denied because of my age :(

Take care, Peace!

Title: Re: stem cell transaplantation in thalasseamia major
Post by: Christine Mary on April 30, 2007, 04:47:43 AM

what is the general outcome for infants?? say in lauryns case? 8 mos. where do we start? HLA matching?

Title: Re: stem cell transaplantation in thalasseamia major
Post by: §ãJ¡Ð ساجد on April 30, 2007, 05:02:22 AM

Hi Christine!

The sooner you do it, the better it is because of less complications due to fewer transfusion and no Liver fibrosis due to Iron overload. Plus a smaller child needs lesser amount of the precious stem cells.

Take care, Peace!

Title: Re: stem cell transaplantation in thalasseamia major
Post by: Christine Mary on April 30, 2007, 05:20:15 AM

what are the steps we take sajid??? what is the process??

Title: Re: stem cell transaplantation in thalasseamia major
Post by: §ãJ¡Ð ساجد on April 30, 2007, 11:17:35 AM

Well,

The first thing to do is to find the donor whose HLA matches with your baby. The chances are the highest in the siblings. However you can even find a match in an unrelated donor if you are lucky. The next step is choosing the right place for the transplant. Italy has the highest reputation for successful BMT. Next step is to manage the funds for it. You need to contact the doctors of that hospital for them to consider your case etc.

Take care, Peace!

Title: Re: stem cell transaplantation in thalasseamia major
Post by: Narendra on April 30, 2007, 06:30:45 PM

Christine,

First step is to get the HLA match up done with the siblings(if any)? There are 25% chances of a sibling HLA matching.

Also, along with the BMT, you might want to get her HLA in the registry for finding possible donor's

This website might give you some info - http://www.marrow.org