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Diet, Nutrition and Supplements / Wheatgrass Juice Dosage for 5 years old
« Last post by BobaFett on January 30, 2023, 12:48:01 AM »
Hi all,

Need some advice on how much per day should I give my child wheatgrass juice powder?
1 serving is 3 grams (for adults). Take 1 to 2 servings per day.

Attached with photos of the product.

Thanks in advance.
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Sir please suggest me, should i go for a haploidentical BMT for my single 5 years thalassemia GIRL at Appolo Hospital Delhi.

Age - 5 years
weight - 18 kgs
Ferritin  - 2200 (as on 22/10/22)

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Diet, Nutrition and Supplements / Re: IP6 dosage for 5 years old?
« Last post by BobaFett on January 16, 2023, 07:52:12 AM »
I see, thanks Andy for the feedback.

Can IP6 be consumed after she wakes up, together with Exjade, both 30 minutes before her breakfast?

As from what I read, IP6 will be best consumed on empty stomach.
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Diet, Nutrition and Supplements / Re: IP6 dosage for 5 years old?
« Last post by Andy Battaglia on January 14, 2023, 08:11:59 PM »
IP6 is a very mild supplement. I would suggest one capsule for a child, but more would not harm the child. It can be opened and mixed into food if swallowing a capsule is an issue.
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Diet, Nutrition and Supplements / IP6 dosage for 5 years old?
« Last post by BobaFett on January 14, 2023, 12:11:58 PM »
Hi,

Found an IP6 supplement but the dosage stated is for adults.

For General Wellness:

The recommended usage is 2 capsules twice a day on an empty stomach.

Each dosage contains:
IP6 - 800mg
Inositol 200mg

Wondering what's the dosage suitable for a 5 years old (16kg)?
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Thalassemia Minor / Re: Help with my test and symptoms please!
« Last post by Thalminorguy on January 11, 2023, 12:25:41 AM »
Thank you so much Andy! I just ordered B12 and Magnissuim vitamins.
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Working Towards a Cure / Re: Etavopivat/ FT-4202
« Last post by Andy Battaglia on January 07, 2023, 08:40:09 PM »
Have the doctors given you any information about how well it is working in patients already in the trial? I was also curious whether or not Luspatercept, Reblozyl has been tried yet.
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FerriscanĀ® / Re: MRI hesitation..why do it??
« Last post by Andy Battaglia on January 07, 2023, 08:30:22 PM »
Happy New Year hopefulmommy,

Has she had an MRI of the liver yet? At the least, a baseline should be done to make sure the ferritin readings accurately reflect the iron load. If the iron is proven low by MRI, I don't think that the MRI is essential annually, as long as the ferritin stays low.
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Thalassemia Minor / Re: Help with my test and symptoms please!
« Last post by Andy Battaglia on January 07, 2023, 08:27:26 PM »
Thalminorguy,
I would suggest higher doses of vitamin D and L-methylfolate. My D level is quite high, as I want it, and it took taking 50,000 IU once weekly to get it where I want it. I am on a high dose of folate daily, 8000 mcg and it is the only thing that gets me through the day. I would not hesitate to take B-12 daily. I am also on a very high, 5000 mcg daily dose. With my thyroid, I have found that folate and B-12 are required for me to get through the day. Magnesium is also recommended. As far as kidney stones, it might be advisable to avoid foods high in oxalates. Good hydration is also extremely important at all times. Turmeic capsules may help with the body pain. I take it morning and night to relieve chronic joint pain.

I want to mention that your RDW is borderline for iron deficiency and it may be helpful to make sure you have adequate iron in your diet. Even though supplements are usually contraindicated in thal minor, a diet that contains adequate iron is necessary.
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Thalassemia Minor / Re: Is lots of manual labor detrimental?
« Last post by Andy Battaglia on January 07, 2023, 08:19:28 PM »
A couple prominent thal minor athletes are tennis legend, Pete Sampras and football superstar, Zinedine Zidane.
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