Yes, I have the book and have shown the website to my wife. She does do many of the things suggested and it may be why she is still alive at the present.

Hello,
Doctors here at Oakland Children's Hospital are wanting to enroll child for Etavopivat clinical trials to increase Hg by 1.5 points, hence increasing the gap between transfusions.

It's  a clinical trial, more trips to hospital, and more MRI scans needed, so thinking about it.

Does anyone have any experience with it or inputs?

Thanks

Happy New Year all,

I'm starting to have more symptoms as a Thal Minor in the last 3 years. I am 40 years old, 5' 11' and weight 200lbs. I go to the gym twice a week and walk 30min on average daily. In the past 3 years I am noticing symproms I have never had, some of them could be related to my condition and some could be the result of aging. I was wondering if anyone else is experiencing the following symptoms below.

1. Extreme Fatigue
3. Severe Dry eyes specially at night (Dr. Says it's MGD and Belaphritis)
4. Pain in ribs and joints
5. Having a hard time losing belly fat.

Blood test resutls:
White blood cell count: 7.3
Red Blood cell count: 6.6
Hemoglobin: 12.5
Hematocrit: 39.6
MCV: 60
MCH: 18.9
MCHC: 31.6
RDW: 18.4
Platelet: 253

Vitamin B12: 350 pg/ml
Vitamin D: 30 ng/ml

Any help would be greatly appreciated.

Daily Vitamins I take:
D 1000 iu
Folate 1000 MCG
Zinc 50 MG

Questions: Can I take methyfolate 15mg daily along with folate?

Should I take B12 vitamin daily or change my diet and get it through food

Should I start getting L-Arginine daily?

I have passed 2 kidney stones in the past year. I think because I was taking creatine and whey protein and eating kale and spinach. Would I develop a kidney stone if I take more vitamins daily?

Thank you so much!

20 pullups is amazing!
Your diet sounds good.

I hate aerobic exercise too vs strength training or activities where i can stop to recoup.
Would love to see a study on how many athletes have Thal, there are a few.

What time do you go to bed? Thats an important factor, lots of factors though. I usually feel better if i sleep before 2230.
Lots of carbs can make you sleepy too.
If you can nap though great.