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Thalassemia Minor / COVID-19 vaccine
« Last post by urja on March 26, 2021, 07:25:59 AM »
Hi friends,
Just wondering if all Thals ( minor, major & intermedia ) can safely take the COVID-19 vaccine without any unusual side effects?
There’s not any information on this as far as I know. Pls share whatever you know
The Spotlight / COVID-19 vaccine
« Last post by urja on March 26, 2021, 07:20:33 AM »
Hi Thal Pals
Has anyone with Thalassemia major, minor or intermedia taken the COVID-19 vaccine ?
Pls share your experience post vaccine regarding any do’s / don’t please.
Announcements / Re:Are Thal's immune to COVID-19??
« Last post by Jenni on March 25, 2021, 02:17:21 AM »
Have you read this article?
 It seems that Beta Thalassemia heterozygotes may be naturally IMMUNE to COVID-19!!!  This is so interesting....has anyone else been getting this kind of information?  My doctor has said nothing--maybe he doesn't know.

Thalassemia Major / Re: The Goal For Thalassemia Patients Today...
« Last post by kaleem on March 23, 2021, 08:37:43 AM »
Doctors here at a hospital in Pakistan are fine with HB 9 but they do not transfuse at 10. I usually take my kid for transfusion whenever it get slightly below 10.. such as 9.8 or 9.6 and sometimes it get fell as low as 9.2.  Is this an optimal transfusion?
Greetings / Re: On Lisa's Birthday
« Last post by kaleem on March 23, 2021, 06:44:04 AM »
Happy Birthday to Lisa.. We all are grateful to him for creating this extremely beneficial forum which helped and guided us.. And thank you so much Andy for the great work and contribution that you have been doing. We wish Lisa a happy birthday and we wish you Andy for a long, healthy and a wonderful life to keep guiding and supporting us through this challenging journey of life.
Greetings / On Lisa's Birthday
« Last post by Andy Battaglia on March 22, 2021, 10:12:36 PM »
On the Birthday of Lisa Rose Cammilleri, the original founder of this group on Yahoo in 1999, I want to share this photo of the first flowers to bloom in our garden this year, the Primrose. The petals of the Primrose represent all the phases of life, from birth to death. Lisa left us far too soon, but she told me her life was a full one and she was happy with everything she had been able to do in her life. I hope we all can learn to appreciate the world we have before we are also gone. I still think about Lisa often and miss the laughter she brought to my life. On her birthday, I wish Lisa a Happy Birthday and thank her for everything she brought to the world.
Thalassemia Minor / Re: My quest to reduce ferritin
« Last post by Slade on March 19, 2021, 11:30:55 PM »
Hello Andy,

Yes, it's quite possible but I'm unable to identify it. The gastroenterologist made a thorough ultrasound and elastography exam on my liver and also asked me to test for hepatitis B & C (both came back negative). He said the liver was OK but nevertheless asked me to stop drinking alcohol for 6 months and recheck - there was no change. I visited an endocrinologist to check my thyroid and test the hormones but everything was normal as well. Routine blood work and CRP are unremarkable.
When I tested my ferritin for the first time in 2013 it was around 600 and hasn't dropped since. I assume if there was some underlying inflammatory condition it would have developed or advanced by now. I'm a bit lost and would like some advice.
Thank you! I will look into the B-12, I've seen others post about it. I'm currently taking a B complex but I've read that's not the best way to go. Will look into the methylfolate and magnesium. I just had full bloodwork taken last week so I can't wait to hear how wacky my results are.  :rolleyes  Thanks again this was helpful!
Thalassemia Minor / Re: My quest to reduce ferritin
« Last post by Andy Battaglia on March 14, 2021, 09:35:10 PM »
Slade, is there a possibility that the higher ferritin is a result of inflammation or infection in your body? This is a common cause of higher ferritin.
The best supplements for alpha thals are L-methylfolate (the natural form) and vitamin B-12 (sublingual works best). These can help the Hb level and energy levels.You might consider magnesium to address the heart palps. My own palp vanished, but it took about 2 years of magnesium supplements before it did.
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