ur suggestions about chelation

  • 8 Replies
  • 8554 Views
*

Offline Rani pk

  • **
  • 32
  • Gender: Female
ur suggestions about chelation
« on: June 12, 2007, 03:19:18 PM »
Hi 2 all
Members of the forum
I m starting this thread with this hop that each n every1 of u will give their
Suggestion…. cause I know most of u r having combination therapy n this
thread is also about it..
I got the tablets 4 iron chelation… know what I want from u all members                                                                                                                                                                                                                                                                                           That :
how much useful is combination therapy???
How much it decreases ur iron level???
N in what time period??
from when u started this combination therapy???
Ill wait 4 ur replies…
Aneela[/glow]

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: ur suggestions about chelation
« Reply #1 on: June 13, 2007, 08:15:39 AM »
HI Aneela,

Zainab is using combination therapy,and it's really usefull,i remember your iron was about 10000.start it  with out any doubt it will definitely help you InshAllah,you'll see difference in your ferritin level in a couple of months,not necessarily a big difference ,but there will be some.

ZAINI.
^*^Xaini^*^

*

Offline Rani pk

  • **
  • 32
  • Gender: Female
Re: ur suggestions about chelation
« Reply #2 on: June 14, 2007, 10:44:07 AM »
Hi Every1
Pls Pls Plssss....
Kindly Those Who R Using Combination Therapy
Pls Post Ur Suggetions Here.. Im Waiting 4 Maximam
Replies
Aneela[/glow]

*

Offline Smurfette

  • ***
  • 242
  • Gender: Female
  • Me and my Goddaughter
Re: ur suggestions about chelation
« Reply #3 on: June 22, 2007, 04:25:29 AM »
Hello,

I am only on L1 and doing really well on it...My ferritin levels are no higher than 500... I have been on the combination for the first 6mths of starting it...Then my ferritin dropped dramatically and was taken off the desferal...I have been on just L1 for the last 1.5 yrs..

Hope this helps..

Take care

*

Offline §ãJ¡Ð ساجد

  • Beta Thal Major
  • *****
  • 1991
  • Gender: Male
  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: ur suggestions about chelation
« Reply #4 on: June 22, 2007, 04:53:43 AM »
Wow!

Way to go Smurfette! :thumbsup No more needles! :party

Take care, Peace!

اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
Web Site

*

Offline Andy Battaglia

  • *****
  • 8740
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: ur suggestions about chelation
« Reply #5 on: June 22, 2007, 05:19:03 AM »
Smurfette's low ferritin level is the result of many years of chelation compliance. It's been many years of desferal for her and that included problems with an allergy to one brand of desferal. She did the work. She didn't make excuses to avoid chelation. She did it and she has become a great demonstration of what it means when it is said that thal is a manageable chronic condition.

Parents of younger thals should take heart in knowing that their kids are growing up with much better treatment than what was available when Smurfette was young. With proper care and compliance to all facets of treatment, today's young thals have tremendous potential for good lives. Thal is manageable but compliance with treatment is essential for this to happen.
Andy

All we are saying is give thals a chance.

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: ur suggestions about chelation
« Reply #6 on: June 22, 2007, 07:58:32 AM »
I wish we can only use L1 for chelation,Zainab's ferritin checked last month was 1657,i want it to be below 1000,her hemo insists on doing combination therapy, i know she isn't wrong,but if her ferritin goes below 1000 i think we'll be able to drop desferal for a while,it will be a relief,we are working hard for it.

ZAINI.
^*^Xaini^*^

Re: ur suggestions about chelation
« Reply #7 on: June 22, 2007, 03:56:32 PM »
Andy,

I could not agree more with your post, we know the importance of chelation now after so many years of experience.

Regards
Regards.

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: ur suggestions about chelation
« Reply #8 on: September 11, 2008, 01:45:21 PM »
AOA Sis :
i m on combination therapy and you can see the results in my post  .. there is a link below to find that post :

http://www.thalassemiapatientsandfriends.com/index.php?topic=1689.0;highlight=especialy+to+andy

i m replying to an old post bcoze i thought that you are using the same pills to the same source ICI karachi west wharh   .. i m using ferriprox 9 (tablets)  and desferal 6-9 vial a week  ... i hope it will help you to find out the result and your answer ....


best regards
Take care
umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

 

SMF spam blocked by CleanTalk