Vitamin and Mineral Supplementation in Thalassemia

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Offline desperate

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #120 on: June 16, 2011, 03:21:09 PM »
Hi,

my son s physicians never recommended any vitamins and mineral supplementation. He is about 192 cm tall and weights only 64 kg. He eats al lot of meat, rice and noodles. occasionally he will eat beans and some veggies and salad. He has been diagnosed with lactosis intolerance and thus he is limited to the type of cheeses he may eat.  What supplementation and vitamins should he take?

Desperate

Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #121 on: June 24, 2011, 09:07:06 PM »
Andy: 

Thank you for going into detail about which vitamins and supplements Beta Thal's should be taking.  I am a Beta Thal Minor and just within the last couple of years my fatigue has gotten really really bad and I am sick with colds, flu pneumonia or something almost 9 months out of the year and my job is now in jeopardy.  I have been to so many different doctors and finally stumbled on a Hematologist that gets it.  I have just ordered and am looking forward to seeing the results of:

Supershots Wheatgrass from Grassfactor
Vitamin B Complex; Calcium with Magnesium & D; and the Natural Vitamin E-400 IU Mixed Tocopherols
 (These are ALL FROM PURITAN)

I also just started Folic 1mg from my Hematologist.

Thanks, dcan8823


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Offline komal

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #122 on: August 01, 2011, 08:21:53 PM »
Hi  Andy
         Pls  suggest   dose  of  Osteocare  tablet,along  with  is  it  necessary  to  take  centrum silver tablet   for  other  Vitamins?osteocare  alone   is  enough   to    fulfill   requirements  of  vit?
komal

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #123 on: August 01, 2011, 09:30:32 PM »
Hi Komal,

I would suggest taking both since Osteocare provides minerals and Centrum provides vitamins.
Andy

All we are saying is give thals a chance.

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Offline mummy_timmy

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #124 on: November 29, 2011, 05:59:48 AM »
Salam and Hai to all,

I'm writing in this forum to get an advice from others on my son supplement intake.

He is confirm HBE/BETA thalasemia intermedia.He had gone through his 1st transfusion on 13 Oct 2011.He will be 1 year on 22 december.

He current diet are as follows:

1. Breast milk
2. Rice Porridge with vege and fish
3. Fresh cut fruit-papaya and banana

He current supplement are as follows:

1. Acis folic 2.5ml
2. Multivitamin without iron 2.5ml
3. Drwheat grass supershot 2.5ml <he just started taking this on 22 November,as this product doesn't available in Malaysia.I get it from Singapore.the nearest country>

I need other advice on other supplement that we should include for 1 year old baby.His last HB is 7.5 and our next appointment is schedule on 9 Dec 2011.

Thank you for time.


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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #125 on: December 01, 2011, 02:43:37 AM »
His diet is very good and the only other supplement I would suggest is 100 IU daily of natural vitamin E. Do not use synthetic vitamin E. And keep him eating healthy foods like he is now.
Andy

All we are saying is give thals a chance.

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Offline mummy_timmy

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #126 on: December 05, 2011, 06:06:14 AM »
hai Andy,

thank you for your reply.I will look into this. have a great week ahead.

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Offline Waleed

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #127 on: July 26, 2012, 12:22:27 AM »
Hello Everyone,

Please review following supplementation I bought today after being convinced by reading this thread that I must do this. Please note that I have never used multivitamins/minerals before except once, so guide me in whatever area you may think is necessary, like pill timings - dosage - precautions etc. etc.
I never had any major complications or side effects and my spleen is intact, and eat like normals. Are these supplements to be taken life-long? About when the supplements start showing their positive effect in our bodies?


Here's what I bought:

1. Neuro-B
Per tablet: Vitamin B1 100mg + B6 100mg + b12 0.15mg. Pharmacist said this is Vitamin B- Complex

2. Osteocare
2 tablets: Calcium 800mg + Magnesium 300mg + Zinc 10mg + Vit D (D3 200iu) 5ug

3. Vitamin D3
Each 1 ml drop contain - Cholecalciferol Vit D3 2800IU

4. Good 'n Natural
Omega-3 Fish Oil 1000 mg - per softgel - cholesterol 5mg

5. Folic Acid - 1mg

6. GNC
Natural Ultra E 400: Per capsule: Vitamin A 400IU + Vitamin E 400IU (d-alpha tocopherol

7. GNC

Mega Men Sport

Per 2 tablets :

Vit A               2500IU                      
Vit C         60mg                          
Vit D      200iu      
Vit E (d-alpha)      15iu                        
Vit K         80mcg                  
Vit B1 Thiamin 1.5mg
Vit B2 Riboflavin  1.7mg                        
Niacin        19mg
Vit B6     2 mg
Folic Acid          200mcg                      
Vitamin B-12 2mcg                      
Biotin        300mcg
Pantothenic Acid    5mg                      
Calcium       200mg                      
Iodine       150mcg      
Magnesium           50mg                      
Zinc           15mg                        
Selenium      55mcg    
Copper                 2 mg                      
Manganese    2mg                        
Chromium   120mcg    
Guanidinoacetic acid 100mg                
L-Isoleucine    50mg                      
L-Leucine       50mg
L-Valine                50mg                      
Glycine        30mg                    
Alpha Lipoic Acid 25mg
L-Methionine        20mg                      
L-Glutamine 15.22mg                  
Taurine       15.22mg    
beta-Alanine 12.5mg                          
Choline        10mg                          
Inositol        10mg    
L-Carnitine (fumerate) 7.06mg              
Silica             4mg                          
Boron           2mg
Coenzyme Q-10       950mcg                
Lutein         950mcg                      
Astaxanthin 50mcg    
Vanadium              10mcg



Please guide for best dosages and their timings, if I need to add anything or I may skip anything? I'll surely miss IP6 , i couldnt find it here in Riyadh, Saudi Arabia.





« Last Edit: July 26, 2012, 12:31:00 AM by Waleed »
Waleed

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #128 on: July 26, 2012, 01:41:44 PM »
It looks like an excellent program. I tend to take all my supplements after meals, as it makes them easier to digest. It is important to work out a routine that is agreeable to you and your stomach.
Andy

All we are saying is give thals a chance.

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Offline Waleed

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #129 on: July 26, 2012, 01:48:26 PM »
Dear Andy are you satisfied with the calcium / magnesium ratio? Please guide me how to take those pills (dosage and timings)  because they are 'many', and I am a baby in this field  ???
Waleed

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #130 on: July 26, 2012, 02:07:04 PM »
The ratio is OK. You an strive for a 2:1 ratio but it doesn't have to be exact.
Andy

All we are saying is give thals a chance.

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Offline Waleed

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #131 on: July 26, 2012, 02:18:57 PM »
Pardon me. I am having problem in dividing these 7tabs of supplements plus 3 tabs of kelfer. Set kelfer aside, I have to take these supps together after a meal in breakfast/lunch/dinner once or i can randomly take supps round the clock in divided doses . for e.g. Folic Acid, Calcium, Vit D once after breakfast ... then Vit E, Vit B after lunch  ... and last the day with left over fish oil/multivitamin ? Or there has to be some directed approach.
Waleed

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #132 on: July 26, 2012, 02:29:51 PM »
Find what works for you. You can split them up and take them with meals throughout the day. I generally take after breakfast and dinner, but whatever works for you is the way to do it.
Andy

All we are saying is give thals a chance.

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Offline Waleed

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #133 on: July 30, 2012, 02:51:31 PM »
Its now 4th day I am taking those supplements and its gr8.

On breaking fast: Vit B- Complex , Vit E and Multivitamin
On starting fastL  Folic Acid, Osteocare, Vit D, Fish Oil

I cant even imagine we forgot to buy MILK THISTLE  :banghead

Its a must I guess for my liver health ...
 
Waleed

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Offline Pratik

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #134 on: August 05, 2012, 08:15:14 AM »
Waleed,

"2. Osteocare
2 tablets: Calcium 800mg + Magnesium 300mg + Zinc 10mg + Vit D (D3 200iu) 5ug"

You sure you want to take 1600 calcium and 600 mg Magnesium/daily ? Isn't it high?

And oh, what is Osteocare? Is it some brand name for a tablet? If so let me know so I can purchase it as well. :)
Every child is special.

 

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