Hi.......I'm new here.

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Offline Cee

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Hi.......I'm new here.
« on: September 24, 2007, 07:28:12 AM »
Hello everyone. I am new here but I guess sooner or later we'll all be friends. I am a mom of 3. I have a daughter who is a Thalassemia Major since aged 4 mths. As far as I can remember........at first she has been having fever every now & then but we thought it was normal. But as the months go by, fever kept coming back and she looked pale so we brought her for check-up at a baby specialist centre. After blood test was done on her, we got the results from the doctor my daughter's hb was only 3.0. The doctor told us that she has to be admitted immediately for transfusion. I felt like the world just collapsed on me and I wanted to cry but tears just got choked in my throat. I didn't know what to do, where to go, whom to confide in. From that day onwards, for almost 3 years I couldn't accept the fact that my daughter (Trefe) has Thalassemia Major and everytime I tell someone about her illness I would surely cry. Luckily for some friends' consolation that I manage to pull myself together and began to accept my daughter's fate. She is now 11 and has been having complete blood transfusion every month ever since. Although she misses class a lot of times for appointments and transfusions, she does quite well in school and she did get high marks in English and got 2nd in class when she was in Primary 2 & 3. I am proud of her though sometimes she gets on my nerves because she is so talkative. I guess God must have a reason for giving us a 'special' child. The only thing that worries me is that whenever she tries to clean her nose, it will bleed. We had her check by the doctors in the hospital but there say it's normal eps. when the weather is hot. Cee (Malaysia).
« Last Edit: September 27, 2007, 04:21:46 AM by Cee »

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Kathy11

Re: Hi.......I'm new here.
« Reply #1 on: September 24, 2007, 08:21:32 AM »
 :welcome  Cee,
Make yourself at home,
Your daughters fate is in gods hand,and no one can predict the future,she has as much chance as anyone else,these day there are lots of possibilities.look on the bright side ,here on this forum we have some wonderfull young people and they are great acheivers in their chosen fields and decent
human being.their disability hasnt stopped them.I hope you get to know them, it will assist you with your worries
Kathy

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Offline §ãJ¡Ð ساجد

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Re: Hi.......I'm new here.
« Reply #2 on: September 24, 2007, 09:20:09 AM »
Hi Cee,

:welcome to the site.

Have faith in yourself. Your daughter indeed seems very special. Take good care of her and she will grow up to be one of the greatest person you've ever known.

Feel free to ask any question that you have in mind.
اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
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Offline Zaini

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Re: Hi.......I'm new here.
« Reply #3 on: September 24, 2007, 10:59:08 AM »
Hello Cee,

Welcome on the forum,  :welcome it's really nice seeing new people joining this wonderful forum everyday,you'll get all the help and support you need,

Lots of hugs and kisses for your daughter, :kiss

ZAINI.

P.S, Do share with us what is her ferritin level,and what mode of chelation are you using.

^*^Xaini^*^

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Offline Lyanne

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Re: Hi.......I'm new here.
« Reply #4 on: September 24, 2007, 11:51:46 AM »


   Hey there Cee! welcome to the site!!!!!! please feel free to ask anything you are in good hands....  I know you will love it here....... do take care!!!!
LYANNE :yahoo

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Offline Zaid

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Re: Hi.......I'm new here.
« Reply #5 on: September 25, 2007, 11:28:43 AM »
Hi Cee,

Welcome to the forum !! It's great having more people here.

Medical practices have advanced so much over the years that thals have as good a chance as anybody so you dont need to worry. So dry up those tears and wander around in the forum archives where you'll find a wealth of information regarding Thal and how people have overcome the disease by leading very normal lives.

Take care,

Zaid

Re: Hi.......I'm new here.
« Reply #6 on: September 25, 2007, 11:40:29 PM »
sometimes she gets on my nerves because she is so talkative.

Welcome to the forum. Looks like your daughter is just like mine  :rotfl  :rotfl, My daughter is so talkative that she says the other day "Mom, I am tired of talking but I want to talk". Yep!! Nothing can stop her at the age of 4.
Regards.

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Offline Zaini

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Re: Hi.......I'm new here.
« Reply #7 on: September 26, 2007, 11:14:57 AM »
Hey,

I s this somethi ng to do with thal  :rotfl :rotfl :rotfl coz my daughter is so talkative that i think she can win a competetion of talking ,we sometimes have to beg infront of her "zainab plz stop now"in order to let any one else talk  :rotfl.

ZAINI.
^*^Xaini^*^

Re: Hi.......I'm new here.
« Reply #8 on: September 26, 2007, 09:56:05 PM »
Hi Cee,
welcome to the group,Its great you have found us here to gain support & friendship,it truly is a great comfort!
I have thal major myself i am in my late 20s now,i know as a parent it must have been hard for you
to accept your daughter as thal & see her go through all the pain of needles & transfusions,But with the right treatment such as transfusions monthly & now we have the oral chelators such as L1/kelffer or exjade this helps minimise the pain of more needles.which we didnt have 10 years ago.
Try to think postive you & your daughter will be fine.take care,wishing you all the best.
 :hugfriend

 

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