O.K first the GOOD NEWS!!
JSF can arrange Asunra for me
![:yaaaaaay](https://www.thalassemiapatientsandfriends.com/Smileys/classic/DySnag062DClappingSmilie2DYay.gif)
Now the series of BAD NEWS
![:(](https://www.thalassemiapatientsandfriends.com/Smileys/classic/Frown.gif)
It's available ONLY on self finance basis; so even the lowest dose for my weight will cost me a fortune every month and makes it impossible for me to take it for long as the price is variable with the price of the U.S $ and it keeps going up sky high. Currently it would cost me about Rs. 18,000 per month at the lowest starter dose of 20 mg/kg.
The next bad news (thanks to the availability of Asunra) is that Desferal is now less available and my Desferal quota is reduced to half. Novarti$ want$ to make $ure that everyone eventually $hift$ to A$unra
![:mad](https://www.thalassemiapatientsandfriends.com/Smileys/classic/icon_mad.gif)
This automatically leads to another bad news that the Desferal that was once available in the market to be purchased is now also starting to disappear. So I won't eventually get the remaining half dose of Desferal from the market.
![Undecided :-\](https://www.thalassemiapatientsandfriends.com/Smileys/classic/undecided.gif)
Finally; since the last several weeks I only got half of my Desferal dose from the market which seems to be causing an increase in the Iron overload. I would randomly get increased pulse with many beats missing and get really nauseous and light headed. My doctor is so much worried about my Iron overload and I would have to look into this heart condition seriously, but it's a bit hard to do it as I just can't tell my mom yet about it.
Things are getting gloomy here with all these issues and what this country is coming up to and to add to that; it's really hard to tell my mom since my dad passed away in the same manner (heart disease).
I need all the prayers I can get from you guys. Let's see what happens in the near future.
![Undecided :-\](https://www.thalassemiapatientsandfriends.com/Smileys/classic/undecided.gif)