especialy to Andy question abt chelation

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #60 on: November 27, 2008, 12:01:59 PM »
hummm.... i dont know and din't point exact reason of white spots but i heard that these could b a sign of calcium deficiancy . i dont know exactly but i heard that ... i dont know wat is the normal range of calcium ... 

i reached to this site when i was searching onn white spots bcoze i saw it in my cousins as well who don't like to drink milk and other dairy products .. you may check it .... mayb it will helpful for you as welll ...

http://www.articlesbase.com/skin-care-articles/how-to-cure-white-spots-on-skin-434487.html
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The medical term for white spots on skin is vitiligo or leucoderma. It’s a skin disease in which the skin loses its color due to some genetic or environmental causes. The white spots appear as patches of white skin without pigment.

Edited : White spots on skin are common in people who suffer from autoimmune diseases. One of these diseases is adrenocortical insufficiency. The adrenal gland is responsible for producing a hormone called corticosteroid. This disease occurs when there is a deficiency of this hormone in our body. Because of this reason the most common treatment as suggested by doctors for vitiligo is corticosteroid cream.

Another treatment for the cure of white spots on skin is exposure to sunlight for long durations of time or artificial phototherapy. Cells that are responsible for pigmentation become active when the skin if exposed to light.

Melanocytes are cells located in the skin that cause pigmentation. A recent advancement in the medical science has made it possible to transplant these cells from some other part of the body to the affected skin area. As a result of this transplantation vitiligo or white spots on skin can be completely cured.

Cosmetics can also be used to cover up the white spots. However, a medical treatment should be employed to control the disease as it may become widespread and uncontrollable. It should also be known that since this disease is inherited, it cannot be prevented. Because of this reason, a good and effective treatment is required in order to avoid psychological effects, frustration and embarrassment.

There are some other skin conditions or disorders in which the skin loses its color and becomes either of lighter or darker shade. Before using any of the treatments for vitiligo it is better to consult a dermatologist and confirm the symptoms.

Most of the time only topical treatments are suggested by doctors for skin disorders including vitiligo, acne and eczema. However, some oral pills may also be prescribed if the condition is severe.

Note : i edited this post , added a link where i quote this info and added a para which i missed last time ( second para of this quote ) ....

Take Care
umair
« Last Edit: November 29, 2008, 12:45:45 PM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Ayesha

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Re: especialy to Andy question abt chelation
« Reply #61 on: November 27, 2008, 12:07:56 PM »
environmental change, yea it can be, i go out in sunlight alot too, + white spot appears n disappears, but few takes time and i dont like them  :wah
-Ayesha

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Offline jade

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Re: especialy to Andy question abt chelation
« Reply #62 on: November 29, 2008, 04:20:22 AM »
Hi there

Some white spots can indeed be vitiligo but others are not.  You have to check this with a skin specialist but you have to tell him/her that you have thal because one of the treatment for vitiligo is I believe a medicine which is used in malaria and which I think (not sure) is contraindicated in thal.  Also supplements of cod liver oil is advised and as Umair rightly said sunshine.

Hope you can find a solution.
Jade

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #63 on: November 29, 2008, 01:04:37 PM »
Hi Buddies ,
please check this thread ... thank you

Skin Care , White Heads and Black Heads related
http://www.thalassemiapatientsandfriends.com/index.php?topic=2372.0

Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #64 on: January 22, 2009, 11:59:02 AM »
Hi All Buddies ,
i got my Ferritin Report , ALHUMDU-LILLAH (All praise belongs to God) , its very much encouraging  ... i need more hard work to get my goals....

Quote
its my Latest Ferritin  report done on 15-oct-2008

                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                                3613 ng/ml

My Latest S.Fe Report , done on 20-January-2009
                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                                [bgcolor=#ffff00]2330 ng/ml[/bgcolor]
 :yay  :high5 :stars :love :party :yay  :high5 :stars :love :party :yay  :high5 :stars :love :party
 :thankyou2 :thankyou2 :thankyou2
 Thank you for the support and encouragement , i still need that  all ....

My Treatment Plan : Ferriprox 9 pills a day along with 96 hours of chelation, as two days coniiously and then rest then again two days of chelation ( 2 days = 48 hours n 2 days again = 48 48+48 = 96 hours ) between 2 Transfussions, Gap between my Transfusion is 10-12 days ....  i doubled my chelation hours somewhere at the last of december or starting of 2009 ( in other words 3-4 weeks ago )

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Zaini

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Re: especialy to Andy question abt chelation
« Reply #65 on: January 22, 2009, 12:27:09 PM »
That's great Umair  :biggrin keep up the spirit  :thumbs Keep on chelating :) .

Zaini.
^*^Xaini^*^

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #66 on: January 22, 2009, 12:29:03 PM »
 :thankyou2 Sis for encouragement and supprot  :thankyou2


Take cAre
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Zaini

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Re: especialy to Andy question abt chelation
« Reply #67 on: January 22, 2009, 12:30:07 PM »
How was your liver ultra sound?

Zaini.
^*^Xaini^*^

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Offline Manal

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Re: especialy to Andy question abt chelation
« Reply #68 on: January 22, 2009, 02:36:26 PM »
Umair, i am truely soooooooo happy for you. You have done a super job, can't imagine how i am proud of you. Keep up the good work . Congratulations my friend
Manal
 :congrats :bigparty :bigparty  :bigparty :clapcheerboy :clapcheerboy :clapcheerboy :clapcheerboy :clapcheerboy :clap :clap :yahoo :yahoo :thumbsup :thumbsup

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Offline Sharmin

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Re: especialy to Andy question abt chelation
« Reply #69 on: January 22, 2009, 03:00:17 PM »
Umair,

I am so so so so so unbelievably happy!!!!!!



Thank god!!!  You have done such a great job Umair I am so proud of you!!!!!

Sharmin
Sharmin

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Offline Dori

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Re: especialy to Andy question abt chelation
« Reply #70 on: January 22, 2009, 03:45:09 PM »
My Latest S.Fe Report , done on 20-January-2009
                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                                [bgcolor=#ffff00]2330 ng/ml[/bgcolor]

 
 Thank you for the support and encouragement , i still need that  all ....

My Treatment Plan : Ferriprox 9 pills a day along with 96 hours of chelation, as two days coniiously and then rest then again two days of chelation ( 2 days = 48 hours n 2 days again = 48 48+48 = 96 hours ) between 2 Transfussions, Gap between my Transfusion is 10-12 days ....  i doubled my chelation hours somewhere at the last of december or starting of 2009 ( in other words 3-4 weeks ago )


Hey, that's excellent news!!! Your fe is lower than mine... :hugfriend  :clap :flowers

I dunno how much ferriprox pills you took before, but when I started to take 3x3 pills a day I started to feel hungry day and night. I hope you will not have that side effect. Some people say to me 'it is not wrong with your low weight', but i found it very annoying. I earned 9 kilo's in 1.5 year  ???

Btw dont forget to take some food you really like, because you must celerate this historical achievement!!!!!  :congrats


Re: especialy to Andy question abt chelation
« Reply #71 on: January 22, 2009, 04:03:44 PM »
We are so happy for you Nice Freind. Please keep up the good work.
Regards.

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Offline Andy Battaglia

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Re: especialy to Andy question abt chelation
« Reply #72 on: January 22, 2009, 04:38:25 PM »
 :thumbsup  :thumbsup  :thumbsup  :thumbsup  :thumbsup  :thumbsup  :thumbsup  :thumbsup  :thumbsup
Andy

All we are saying is give thals a chance.

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #73 on: January 22, 2009, 09:54:47 PM »
Thank you All ,
 :thankyou2 for encouraging, helping and supporting me alot .... i m so happy today ...
 please keep encouragin and supporting me bcoze i need your help support and encouragement ..
i will comply wiith chelation a lil more till my fe come below 1000 ....

Dore , yeah me too feel hungry all the day but i controled my hunger , and i planed a short meal between y two main meals .. i love to eat fish between the meals ... yeah, its time to celebrrate.... hurrraye .... :yay

Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Andy Battaglia

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Re: especialy to Andy question abt chelation
« Reply #74 on: January 22, 2009, 10:03:01 PM »
Umair,

Many people want to give up when their ferritin is high, but you did not. Your determination should be an example to anyone who has doubts about their ability to survive. High iron can be beat with work and you're proof of this. I am so proud of you, buddy.
Andy

All we are saying is give thals a chance.

 

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