New Book about Thalassemia (Cooley's Anemia)

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Offline Sharmin

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New Book about Thalassemia (Cooley's Anemia)
« on: May 15, 2008, 05:52:56 AM »
Hi everyone,

Dr. Arthur Bank - one of the leading researchers in the Paris gene therapy trials by Genetix Pharmaceuticals - has written a book about Cooley's Anemia.  The book is expected to be published in the fall by World Scientific Publishing. 

If you are interested in reading it you may want to look out for it in the fall:) 

Sharmin
Sharmin

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Offline red

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #1 on: May 15, 2008, 10:40:17 AM »
coool!
very great announcement! thanks , will be keeping a heads up for it

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Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #2 on: October 21, 2008, 07:28:01 PM »
This book will be published in late November.  Look out for a flyer from CAF.  I will post one too once I have it.

Sharmin
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Offline Sharmin

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TURNING BLOOD RED - The fight for Life in Cooley's Anemia by Arthur Bank
« Reply #3 on: October 24, 2008, 10:52:22 PM »
My dear thal pals,

I encourage everyone to read this book it is written by the founder of Genetix Pharmaceuticals.  Dr. Arthur Bank is also one of the kindest and most considerate individuals I have ever known.  It is now listed on Amazon.com as well as on Google. But it is back-ordered. It will be published in November but not available in the US until January 2009.

I will post the flyer as soon as I can figure out how!! 

Sharmin



« Last Edit: October 24, 2008, 11:04:48 PM by sharmin »
Sharmin

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Offline nice friend

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #4 on: October 25, 2008, 08:41:05 AM »
Hi Sharmin ,
Thanks for the Updates ,, its super :thumbsup hope to find it soon ...
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #5 on: October 25, 2008, 10:47:57 PM »
Hi Umair,

I am really trying to post the flyer - but I am still having technical difficulty.  I truly feel that every thal patient - family member and friend should have a copy of this book.  This man has studied the disease inside out for many many years and it would be so helpful for us to all have this book.   
 
Sharmin
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Offline nice friend

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #6 on: October 26, 2008, 05:08:40 AM »
Thanx Sis ,
i hoppe you will find a copy of that book realy soon ... wish you all the best ..
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #7 on: October 26, 2008, 05:22:50 AM »
Below is information from the flyer for this book:
Please click on the attachment at the bottom of this post to view the flyer! 

Quote
Turning Blood Red - The Fight for Life in Cooley's Anemia
by Arthur Bank

This book is the story of an inherited blood disease — Cooley’s anemia or beta
pathophysiology of this human hemoglobin disorder, the book describes the emotional
and medical impact of the disease on patients and their families. It also summarizes the
research on the disease at the level of the genes, DNA, RNA, and proteins. In addition, it also
includes chapters on current therapy and future approaches to the disease, such as gene
therapy, stem cell transplantation, and antenatal diagnosis. A multidisciplinary book covering the fields of
hematology, pediatrics, medicine, genetics, and molecular biology, the book details how Cooley’s
anemia serves as a model for understanding other human genetic and acquired diseases such as
cancer, neurological disorders, and heart disease. It also provides new insights which may lead to
new therapies.

Contents: Patients and Families: Love and
Loss; In the Beginning; Nunzio: One of a Kind;
Connie Paradiso; Life on the Run; Amy’s Loves.
Understanding Thalassemia: The Big Alpha;
Human Globin Messages; Finding the Genes; The
Ultimate Answers; You Can’t Go Home Again. The
Best Medicine: Current Care and Future Goals: The
Standard of Care; Dedicated Doctors; Human Beta
Globin Gene Therapy; Genetic Roulette; Modern
Times; Love Unbound.
Readership:Hematologists, molecular biologists,
clinical researchers, students and medical
personnel at all levels interested in science and
medicine.
250pp (approx.)Fall 2008978-981-283-247-4US$39.95£21.60981-283-247-5
T
Simply order the book online at www.worldscibooks.com/medsci/6926.html before xx xxx 2008 andget 20% off the list price! Please quote SLXQ070811 when you order.
TURNING BLOOD REDTheFightforLifeinCooley’sAnemiaby Arthur Bank (Columbia University, USA)

ASIA & THE REST OF THE WORLDWorld Scientific Publishing Co. Pte. Ltd.
Farrer Road, PO Box 128, SINGAPORE 912805
Fax: 65 6467 7667
Tel: 65 6466 5775
Email: sales@wspc.com.sg
About the author

Dr. Arthur Bank has been a scientist, clinician and teacher
at Columbia University and Presbyterian Hospital for over
40 years. He was Head of the Division of Hematology at
Columbia-Presbyterian Medical Center. He has been a leader
in Cooley’s anemia research, has published extensively
on the mechanisms of human globin gene regulation and
human gene therapy, and has been continuously funded by
grants from the National Institutes of Health throughout his
career. Dr. Bank is currently Professor Emeritus of Medicine
and of Genetics and Development at Columbia University. A
graduate of Columbia College and Harvard Medical School,
Dr Bank is a nationally and internationally recognized
authority in the field of hematology research.

ORDER FORM
Please complete the form and send it to any of our offices below.
Alternatively, you can order via our online bookshop at www.worldscientific.com

NORTH & SOUTH AMERICAEUROPE & THE MIddLE EAST

World Scientific Publishing Co. Inc.World Scientific Publishing (UK) Ltd.

27 Warren Street, Suite 401-402, Hackensack, NJ 07601, USAc/o Marston Book ServicesToll-free fax: 1 888 977 2665PO Box 269, Abingdon, Oxon OX14 4YN, UKToll-free tel: 1 800 227 7562 Fax: 44 (0) 123 546 5555Email: sales@wspc.comTel: 44 (0) 123 546 5500

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Printed in July 2008NEW JERSEY • LONDON • SINGAPORE • BEIJING • SHANGHAI • HONG KONG • TAIPEI • CHENNAISl.XQ.07.08.11.LS

Enjoy,

Sharmin
« Last Edit: October 26, 2008, 05:28:10 AM by sharmin »
Sharmin

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Offline nice friend

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #8 on: October 26, 2008, 10:28:20 AM »
Hi Sis ,
Great Sharing Sis , its superb . thanx for  sharing it and for the efforts to find this for us ..  :ty
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #9 on: November 03, 2008, 06:17:06 AM »
Hi thalpals - I am trying to get information from the publicist regarding how we can purchase the book.  I will keep you all posted.

Sharmin
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Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #10 on: November 05, 2008, 06:13:23 AM »
I have ordered a copy of the book - I am eagerly waiting for it to arrive!  I will let you know what I think once I receive it. 

Sharmin
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Offline Manal

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #11 on: November 06, 2008, 12:21:34 AM »
Thanks Sharmin :hugfriend

manal

Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #12 on: November 25, 2008, 08:15:09 PM »
The Cooley's Anemia Foundation website has posted an interview with Dr. Bank about this book.  It's at:

http://www.cooleysanemia.org/index.php?option=com_content&view=article&id=69:arthur-bank-book-on-thalassemia-to-be-published&catid=1:latest-news

Take care!

Craig

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Offline Sharmin

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #13 on: December 05, 2008, 04:16:36 AM »
I am still waiting for my book to arrive, I don't know why it is taking so long.  I really like reading the interview, I am glad to hear that the book is written from this perspective.

Sharmin
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Offline zahra

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Re: New Book about Thalassemia (Cooley's Anemia)
« Reply #14 on: February 19, 2009, 07:05:18 AM »
Hi everybody,
I got the book, finally :) but havent been able to find time to read much of it yet:(. Little S is pulling up to stand and walking holding on to furniture now so i spend all day chasing him around ..........unless i am busy with the other kids.
Since bones are weak in thalassemia is it serious when he falls while trying to walk? Or does that problem happen later on? He is 9 months old now and has hadtwo transfusions.
Any advice about caring for thalassemic toddlers would be appreciated. Especially how to get them to stay still for their transfusions. I am dreading the next one in early March.
Zahra

 

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