Did U Know That

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Offline Narendra

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Re: Did U Know That
« Reply #15 on: May 29, 2008, 04:01:17 AM »
Did You Know That - In a human body, out of the 23 pair of chromosomes, Beta thalassemia is caused by mutations on chromosome number 11

From:- http://www.thalassemia.com/beta_thal.html

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Offline Danielle

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Re: Did U Know That
« Reply #16 on: May 29, 2008, 07:33:44 AM »
What about making it a section of the site under the name ''did you know...'' as you have mentioned

I really like this idea, Manal.   :happyyes

And Narendra, I really like the overall idea that you gave in the first place.   :hugfriend

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Offline §ãJ¡Ð ساجد

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Re: Did U Know That
« Reply #17 on: May 29, 2008, 07:41:25 AM »
:hmm

The "Basics of Thal." seems to be a nice place for it. The existing sub-board "What is Thalassemia and How is it Treated?" looks pretty lonely all by itself. :biggrin
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Offline Narendra

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Re: Did U Know That
« Reply #18 on: June 06, 2008, 03:02:54 PM »
Did You Know That:- Prognosis Of Thalassemia Major has changed drastically due to the use of Iron Chelator's which removes the excess iron. Patients can grow and develop normally, with relatively normal heart and liver functions. This is in contrast with the early 70s and 80s when thals were said to have a short life span. So, now if any doctor's says that your child might live only in their teens, contrast them with the updated data.

From:- http://www.thalassemia.ca/viewarticle.asp?aID=31&searchQ=F.A.Q

Re: Did U Know That
« Reply #19 on: June 06, 2008, 05:16:28 PM »
The sub board "What is Thalassemia and How it is treated" is more comprehensive and presents the picture in one shot. The reader does not have to wander around to piece together the information to solve the puzzle.

The efficacy of the sub board is evident by the fact that it is read 4834 times (Re. Beta Thalassemia Major, Intermedia and Minor) and 593 times (Re. Thalassemia).

Narendar,

You are right, I still envy the first doctor we met in 2004 who gave us really grim picture of thalassemia. My wife resigned from a lucrative job as knee jerk reaction because of the stupidity of that doctor. She was never able to got the same paid job untill now.
Regards.

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Offline Andy Battaglia

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Re: Did U Know That
« Reply #20 on: June 07, 2008, 06:52:40 PM »
Not to pat myself on the back, but I do agree that our site has the best explanation of thal that you will find on the net and done in a way to give parents a true picture of the current state of treatment for thalassemia and hope for the future.

I have also now begun working on the explanation of alpha thal. Hopefully, it will soon be completed..
Andy

All we are saying is give thals a chance.

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Offline §ãJ¡Ð ساجد

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Re: Did U Know That
« Reply #21 on: June 08, 2008, 04:09:27 AM »
:agree :yes :clapcheerboy

You are doing great!
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Offline Danielle

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Re: Did U Know That
« Reply #22 on: June 14, 2008, 05:21:12 AM »
I agree.  You are doing an excellent job, Andy. :thumbs

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Offline nice friend

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Re: Did U Know That
« Reply #23 on: June 29, 2008, 09:39:57 PM »
Did You Know That :

Hypoglycaemia is the more Dangrous condition than the Hyperglycaemia....

Hypo]glycaemia :
                    Abnormally low blood sugar usually resulting from excessive insulin or
                    not   maintained diet ( low food intake than the needs of body ).

Hyperglycaemia :
                    Abnormally high blood sugar usually associated with diabetes ..
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline cherieann

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Re: Did U Know That
« Reply #24 on: June 30, 2008, 04:45:34 AM »
Hey Nice friend you cheated :rotfl I thought we were doing Thal? :wink

Okay I'll do an easy one...

Did you know that....

The Beta & Alpha tells us which protein is affected in the haemoglobin  :idea
Thalassaemia is a lifestyle not a burden.

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Offline nice friend

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Re: Did U Know That
« Reply #25 on: June 30, 2008, 01:52:16 PM »
hi cherian :
sorry but i thought that many thals face the problem of diabeties .. so i thought giive a knowledge base lesson to those thals who r suffering to diabeties ... so that they can live managed and quality life what is one of the mission of this site " GIVE THaLs A CHANCE TO LIVE GOOD LIFE " ...SOO

thanx for correction but i think it is usefull for the thals ...
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Andy Battaglia

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Re: Did U Know That
« Reply #26 on: June 30, 2008, 02:26:29 PM »
Did you know that an iron overloaded pancreas cannot function properly and that the result is often diabetes among thalassemics, which can be very difficult to regulate resulting in wild swings of blood sugar levels?


(I hope this successfully ties this in as an issue of interest to thalassemics).
Andy

All we are saying is give thals a chance.

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Offline cherieann

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Re: Did U Know That
« Reply #27 on: July 01, 2008, 08:38:57 AM »
Thank you to both nice friend & Andy.

To nice friend I was only being cheeky. :hugfriend

Do you have any info on other Thalassaemia related diagnosis? or iron overload?

and can you start with..

Did you know.....

and I promise to stop being cheeky. :rotfl
Thalassaemia is a lifestyle not a burden.

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Offline nice friend

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  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Did U Know That
« Reply #28 on: July 01, 2008, 01:06:33 PM »
hi cheriean :
No prob .....

i got something to share ..

Did You Know That ......

With T2*, a bigger score means there is LESS iron in your
heart. With R2, a bigger score means there is MORE iron in
your liver.
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline cherieann

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Re: Did U Know That
« Reply #29 on: July 02, 2008, 05:48:00 AM »
Now I'm scared :wah to see my results.  :scared

Just kidding. Now maybe I can understand my lab results better. :biggrin

Did you know......

That most patients with a major form of thalassemia receive red blood cell transfusions every two to three weeks, amounting to as much as 52 pints of blood a year

 :medicine :coffeestat :coffee :medicine :coffeestat :coffee :medicine :coffeestat :coffee


Thalassaemia is a lifestyle not a burden.

 

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