new person

  • 19 Replies
Re: new person
« Reply #15 on: May 22, 2008, 02:42:26 PM »
Hi Mel,
i also had that type of reaction when I started. what I did was to reduce the dose initially and take it during my meal not afterwards. i also took it no later than 6.00 pm with food in the evening making sure that i did not go to bed for a while later.

I was supposed to have been on combination but didnt really use the desferal as I should but guess what my ferritin is now down to 471!!!!! Woo Hoo!!!!! Finally, I was getting depressed as sometimes it felt like it would never ever drop!!! It has never been so low before.

Combination is the best treatment especially when you are overloaded, I am living proof!!!!
So keep with it my friend, we are all in this together


Offline Zaini

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Re: new person
« Reply #16 on: May 22, 2008, 03:36:36 PM »
WOW B Thal Gal

 :yaaaaaay :yaaaaaay :congrats :congrats :hi5girls :hi5girls

It's quite an achievement,i wonder when zainab's ferritin would be that low  :sigh


i think you should give L1 another chance,it was 7 years ago,start with a single tab a day,then gradually increase the dose.


Re: new person
« Reply #17 on: May 22, 2008, 03:47:24 PM »
I was questioning that it would EVER drop as it seemed to stick at one point. But it did and it WORKS!!!!! YAY!!!!!

I have also now been told that I will be able to get the Ferriprox here in canada legally!!!!!! Another plus for me!!!!! YAY!!!!!


Offline Sharmin

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Re: new person
« Reply #18 on: May 22, 2008, 04:26:40 PM »
Congratulations B Thal Girl!!  I am so happy for you! 
Your accomplishment took a lot of patience and commitment and it is inspirational to the rest of us.
We are also in Canada, we have not used L1 - I wonder if they will recommend it to us in Oakland.    I also wonder
if Exjade is an option for my son. 

I wish you continued success in your treatment!!  Keep up the excellent work!!

Mel, I hope this method will also work for you!



Offline §ãJ¡Ð ساجد

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Re: new person
« Reply #19 on: May 22, 2008, 04:50:14 PM »
That's awesome! :clap :yahoo
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