helo every one

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helo every one
« on: July 06, 2008, 02:48:06 PM »
hello!i am asila 16 years from Maldives.i just login to this site today so im very new

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Offline Andy Battaglia

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Re: helo every one
« Reply #1 on: July 06, 2008, 03:48:23 PM »
 :welcomewagon  Asila!!!!!!


Shilpa and I met Asila on our trip to Maldives for International Thalassemia Day. Since then, Asila has undergone a successful bone marrow transplant.

I am really happy to hear a success story and I am asking Asila to give us her whole story.  :biggrin

I really hope I can get a chance to return to Maldives but travel is so expensive these days, it makes almost anything impossible for me now. Some of the kids are going to ask SHE to bring us back again and I hope that SHE will consider it. It means a lot more than some people realize that we came to visit and gave our support to the thals there. I still talk to so many Maldivians regularly and they all want to see us again, so SHE, please listen up.
Andy

All we are saying is give thals a chance.

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Offline nice friend

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Re: helo every one
« Reply #2 on: July 06, 2008, 08:07:10 PM »
HI Asila :
how r u?.  :Welcome to the site Asila ... plz tell us ur sotry of sucesful Bone marow transplant  ... i m waitning for ur story .
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair

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Offline §ãJ¡Ð ساجد

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Re: helo every one
« Reply #3 on: July 07, 2008, 05:03:13 AM »
:welcome

Nice to have you here.
اَسّلامُ علیکم Peace be Upon you
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Offline Sharmin

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Re: helo every one
« Reply #4 on: July 07, 2008, 05:05:21 AM »
Hi Asila,
Welcome to our site!  I am happy to hear about your successful BMT.  I am sure that you have had to fight hard and that you are a trouper.  It is a pleasure to have you here!!
 :welcomewagon :welcomewagon

Love,
Sharmin


Sharmin

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Offline nice friend

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Re: helo every one
« Reply #5 on: July 07, 2008, 06:34:11 AM »
hi aslia :
nice to hear that u r  good now after succesful BMT .. wish u a life full of happiness n health ...
waiting for ur story of succesful ....
how wwas ur experience ??...
 
best regards
umair
« Last Edit: July 07, 2008, 09:11:03 AM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

Re: helo every one
« Reply #6 on: July 07, 2008, 09:23:04 AM »
hi,this is my story..I was diagnosed as a case of thalassemia major at the age of 9 months .I received my first blood  tranfusion at the age of 19 months and had been on transfusion at an interval of once every 20-45 days since then with a pre-transfution hemoglobin of annual 8g%.i have received approximately 250 units of packed red cell transfutions.i was started of chelation therapy with desfarrel around the age of 2 years and had been on the same still along with kelfer tablets from 2005 onwards.as my younger sister was histocompatible the parents obted for bone marrow transplantation as curative therapy.the rist and benifits of BMT were discssed in details with my family..when i went to vellore cmc hospital on last year my serum ferritin level pre-transplant was 7400ng/ml/clinically i had 6cm's hepatomegaly at admission.liver biopsy was done and this showed grade 4 iron overload with server bridging febros and incomplete nodularuty(lucarelli-class 3)
Bone marrow transplant was performed on 17th october 2007.my donor was HLA matched sister.my family have 4 members my mum, dad  me n my younger sister.i was lucky because she is the only one and i match to her...  When i was dischaged  my hemaglobin was 10.1g and my platelet count was 62000/mm3.(Now my platelet is 91000/mm3.)
      so this is some from my long story.if you have any question you all are wellcome.

Re: helo every one
« Reply #7 on: July 08, 2008, 11:16:10 AM »
there is a little mistake it is not 19months It is 9 months.sory 4 the mistake.waiting for the members to replys and ur questions. 
     
 
 
    asila

Re: helo every one
« Reply #8 on: July 10, 2008, 06:52:19 PM »
hy!i am waiting for ur questions.
    this saturday i am going for my 2nd check up.im going to cmc vellore.
           

  once again i am waiting for a question.
                     thnx



                                                       -ASILA-

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Offline nice friend

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Re: helo every one
« Reply #9 on: July 12, 2008, 08:59:42 PM »
hi aslia :
 i m know tooo late to answer .... and still nothing to ask .... i willl definitely contact to u if any further info will b needed  ... thanx 
« Last Edit: July 12, 2008, 09:18:22 PM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

 

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