desferal through a port at home?

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desferal through a port at home?
« on: May 06, 2010, 05:12:16 PM »
Can desferal be done through some sort of port (vs. pump) at home? Just curious.  We are going the Exjade route, first but thinking about the future.
Nicoled
Nicoler

My son, adopted from China at age 3 in April 2010, has beta thalassemia major.

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Offline Andy Battaglia

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Re: desferal through a port at home?
« Reply #1 on: May 07, 2010, 02:23:31 AM »
Desferal can be taken through a port. There are many pros and cons to ports. It is worthwhile to research the subject first, so that you can make an informed decision should desferal use come up in the future. We have a discussion about ports at
http://www.thalassemiapatientsandfriends.com/index.php?topic=1890.msg15827#msg15827
Andy

All we are saying is give thals a chance.

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Offline Dori

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Re: desferal through a port at home?
« Reply #2 on: May 07, 2010, 07:32:58 AM »
I have had that for two years. Be sure you get to learn how to work with that thing. My mother is the chef about my port and it is only because of her that mine is 6.5 years old. Nowadays I only use it for blood transfusions. But I get a port to do IV desferal at home. Mine is under my arm pit btw. In that case no one can see it. So if you do not know about it, you will never get to know about it (or I should tell it myself).

 

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