Just wondering how Umair is doing and if anyone has heard from him

  • 382 Replies
  • 323484 Views
*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #165 on: March 19, 2009, 10:21:46 PM »
Sharmin ,
yes, i m taking Natural vitamin-E 400mg and synthetic 200mg ... i never saw my platelets in normal ranges in my any report to the time i bcome able to read my reports ( tothe age of 12 :grin ) is it something to worry abt ???... is it something serious ??..

Quote
What has vit. E to do with it?
Yeah,Dore ... i dnt have splleen , my spleen was removed at the age of 15 ...
WBC = White Blood Counts/Cells ....

in my reports almost everything is out to normal ranges hehhe :grin ....

Andy ,
Thank you andy for a brief reply ,  yeah i m taking vitamin-e as i mentioned above , your reply relieved me , otherwise i was worrying about high platelets , i will try to have another CBC test within 10-15 days to confirm it , not only to confirm it but that is good another aspect as i  m taking Feriprox as well ...,, Thanx again buddy ...

Thank you all ( Sharmin , Dore and Andy )
Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #166 on: March 19, 2009, 10:45:59 PM »
Umair,
Quote
always say wait until you see two high tests in a row before getting concerned.

I agree with Andy, you shouldn't worry about the test results right now - especially because they were good in January.  They will probably be better next month. 

I am glad to know that you are taking vitamin e. 

Sharmin

Sharmin

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #167 on: March 22, 2009, 05:51:40 AM »
Sharmin,
Sorry for late reply , i dont know how i missed this thread ...  yeah, i got to understand that i can't make the difference/change in my reports by worrying/concerning about it..  So, it would best to take it easy, dont worry about the reports iand look for the next test , i m planing to have another CBC ( as its sugested to keep WBC  record while taking Ferriprox,  for this purpose i would like to ave CBC again ) before my next Tx probably expected in the end of march or 1/2 april ... .... hope that will b finer than this one ...
Quote
They will probably be better next month
I hope that ....

Thanx for making me to understand that it could bcoze of wat i have passed through last month ,
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Dori

  • *****
  • 1443
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #168 on: March 23, 2009, 01:33:28 PM »
It is not relevant to this case, but I went through my results of trombo's of this last year. I don't know of it makes sense when I saw that I had high trombo's when my fe was high. Now that it has dropped, my trombo's has been dropped too. There are almost in the normal ranges. Is it coincidence?

Ok, confession: I haven't take my supplements for a month  :scratch :thumbdown :imsorry

Dore

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #169 on: March 23, 2009, 06:44:45 PM »
That's not good Dore :( supplements will help reduce oxidative stress in your body,and will protect your bones,please be regular with them.

Zaini.
^*^Xaini^*^

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #170 on: March 23, 2009, 07:38:16 PM »
Dore , Zaini is  Right , :agree to all wat zaini said . this is not good to forget your medicine or miss the medicine or taking your medicines on hold without any docotr's Advise ... soo, be regular with your medicines ...

Well, i m pretty regular with my medicines and try very hard to not miss even one dose .
A Question to Andy and all others :
does high platelets effect's the S.fe reports ?? i think yes , what do you think (Andy & all others ) ??/

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Andy Battaglia

  • *****
  • 8738
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #171 on: March 23, 2009, 08:50:09 PM »
I don't think the platelets themselves would affect serum ferritin readings, but the reason for there being more platelets might.
Andy

All we are saying is give thals a chance.

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #172 on: March 23, 2009, 11:50:06 PM »
Thank you Andy ,
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #173 on: March 26, 2009, 06:31:21 AM »
Umair,

How is the IV chelation going?
Sharmin

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #174 on: March 26, 2009, 06:53:58 AM »
Sharmin,
IV Chelation .....yeah, that is gone away to me after once i had that for 63 hours :grin .......... i have to continue that for a little long time ?????  ... :grin :grin :grin actuly, after seeing my reports i had a Tx and after that planing.... planing ... and planing to spare some time to go to visit my Doc's clinic but don't meet to succes yet and bcoze of this reason everyday is passing without chelation ... aahhhaaaa .... i will start it again just after coming back after visitng my hemotologist ..... soo, everyting is on hold ( not medicines ) ... :grin :grin

Take care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #175 on: March 26, 2009, 07:07:59 AM »
Umair,

I hope you are using pump at least,until you find time to go to clinic.

Zaini.
^*^Xaini^*^

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #176 on: March 26, 2009, 09:48:04 AM »
Hi Zaini Sis,
 :grin :grin :grin :grin
 its break time .... i will resume it soon ,...


Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #177 on: March 26, 2009, 05:11:21 PM »
Umair,

Are you at least taking L1?  You should never be without chelation for more than 48 hours, that is when the iron causes the most damage in your body.  Please be sure that you are at least taking L1 and IP6 when you are without desferal.  The free iron in your body needs to be binding to something at all times. 

This is one good thing about exjade, it remains in your body for 24hrs.  I know that in your case exjade may not be an option at this time - but please ensure that a chelator and IP6 are on board!

Sharmin


Sharmin

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2834
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #178 on: March 26, 2009, 07:51:12 PM »
Sharmin,
Thanx for your concern, ....
yeah, i m taking Ferriprox 3 tabs thrice a day ... i will resume Desferal very soon, actully i don't buy Desferals to my City , i buy desferals from Lahore when-ever i need , i usualy buy desferal while returning after visiting my doc's clinic , soo i m waiting for next appointment, there is no fault doctor, its my own fault coze of watt we are getting late to visit her clinic ... i hope to manage to go to Lahore if this friday is free of any party or anything that keep us busy with other issues ( like time and weather last time we post poned visit bcoze of stormy rainy weather otherwise everything was ready ).... onething , i m taking Ferriprox more than 100mg/kg ( i heard that 100mg/kg is highest dose ) yeah, my weight is 42-43kg and i m taking 9 tabs of 500mg, my doc reduced the no# of my tablet to 9-8 a couple of months ago , i dont know why i didn't apply that reduction in Ferriprox ... does it matter to alevate SGPT and other things that come's under LFT ... yeah, i do have IP6 in my Cabin/Cupboard waiting for NOC to start it as my doctor given me NOC but condition was wait for stomach to settle down first ... soo waiting for stopmach and her permision to start ....

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: Just wondering how Umair is doing and if anyone has heard from him
« Reply #179 on: March 26, 2009, 09:34:08 PM »
Glad to know that Umair,

When you do start IP6 you can start with a smaller dose and work your way up.  I think that it will have many benefits for you. 

Sharmin
Sharmin

 

SMF spam blocked by CleanTalk