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Author Topic: NEW DOCUMENTS ,WEB SITES, & INFORM  (Read 8410 times)
aysam
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my litrtle man


« on: October 23, 2008, 02:49:52 PM »

LOOK AT THIS SITE

http://portal.ithanet.eu
www.ithanet.eu. New Publications for Dr. Ali Taher
Dear Partners,

 Kindly find below an excerpt of a letter to the editor published recently,


Correlation of liver iron concentration determined by R2 MRI with serum ferritin in patients with thalassemia intermedia.

Ali Taher,1,2 Fuad El Rassi,1 Hussain Isma’eel,1 Suzane Koussa,2 Adlette Inati,2,3 Maria Domenica Cappellini4

1American University of Beirut, Beirut; 2Chronic Care Center, Hazmieh, 3Rafik Hariri University Hospital, Beirut, Lebanon, and 4Fondazione Policlinico IRCCS, University of Milan, Italy Correspondence: Ali Taher, MD, Department of Internal Medicine Hematology-Oncology Division, American University of Beirut, Letters to the Editor

Thalassemia intermedia is a highly diverse group of thalassemia syndromes associated with anemia and a range of specific complications, such as extramedullary hematopoiesis, leg ulcers, gallstones and a hypercoagulable state, which are uncommon in patients with thalassemia major.1 The degree of anemia present in patients with thalassemia intermedia is typically mild and generally does not require regular blood transfusion therapy. However, patients can still be at risk of the clinical sequelae of iron overload (as commonly seen in regularly transfused thalassemia major patients) due to increased intestinal iron absorption triggered by chronic anemia, ineffective erythropoiesis and, possibly, decreased serum hepcidin.2,3 The principal methods of determining body iron levels are measurement of serum ferritin levels and assessment of liver iron concentration from biopsy tissue. (...)




Published Monday, September 08, 2008 1:02 PM b


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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
aysam
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my litrtle man


« Reply #1 on: October 23, 2008, 02:54:30 PM »

 Ithanet Newsletter Vol. 4 / October 2008
Article: Iron Overload in Thalassaemia and Princip... Tue, Oct 21 2008  15  Download
 
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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
aysam
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my litrtle man


« Reply #2 on: October 23, 2008, 03:00:01 PM »

Medical Centres
University of Bucharest
Address: Kogălniceanu Bd, sector 5, 70709,
Bucharest, ROMANIA
Phone: +40-21-30 77 321
E-mail: externe@unibuc.ro
URL: http://www.unibuc.ro/en/
Medical Centres
First Paediatric Clinic
Address: First Paediatric Clinic
University of Athens
Ayia Sophia Childen's Hospital
Thivon and Mikras Asias Goudi
11527 Athens
Greece
Phone: +30 210 74667000
E-mail: n/a

 
 


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Posted Tuesday, February 13, 2007 3:04 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Greece

Children's Hospital
Address: University of Ulm
Children's Hospital
Department of Paediatrics
Prittwitzstrasse 43
D-89075 Ulm
Germany
Phone: +49 73150027790
E-mail: n/a
URL: www.uni-ulm.de

 


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Posted Wednesday, June 20, 2007 6:46 AM by christof | 0 Comments
Filed under: Romania

Leiden University
Address: Leiden University
P.O. Box 9500
2300 RA Leiden
The Netherlands
Phone: +31 (0)71 527 27 27
E-mail: study@io.leidenuniv.nl
URL: http://www.leiden.edu/


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Posted Wednesday, June 20, 2007 6:39 AM by christof | 0 Comments
Filed under: Netherlands

University of Malta
Address: University of Malta
Msida MSD 2080
MALTA
Phone: (356) 21333903-6
E-mail: admissions@um.edu.mt
URL: http://www.um.edu.mt


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Posted Tuesday, June 19, 2007 12:38 PM by christof | 0 Comments
Filed under: Malta

Oxford Radcliffe Hospitals NHS Trust
Address: Headley Way
Headington
Oxford
OX3 9DU
UK
 
Phone: +01865 741166
E-mail: PALSJR@orh.nhs.uk
URL:  http://www.oxfordradcliffe.nhs.uk/home.aspx


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Posted Tuesday, June 19, 2007 12:31 PM by christof | 0 Comments
Filed under: UK

Ferrara University
Address: Ferrara University, Department of Biochemistry and Molecular Biology, Section of Molecular Biology, Via Fossato di Mortara 74, 44100 Ferrara, Italy 
Phone: +39-0532-424443
E-mail: gam@unife.it
URL: http://www.unife.it/


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Posted Thursday, June 07, 2007 1:36 PM by christof | 0 Comments
Filed under: Italy, Ferrara

Whittington Hospital
Address: Thalassaemia Unit
Whittington Hospital
Highgate Hill
Archway, London
UK
Phone: n/a
E-mail: n/a
URL: www.whittington.nhs.uk


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Posted Tuesday, February 13, 2007 3:21 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, UK

Blood Centre
Address: Blood Centre
Suleyman Demirel University Hospital
TR-07050 Isparta
Turkey 
Phone: +90 246 2112205
E-mail: n/a
URL: n/a


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Posted Tuesday, February 13, 2007 3:19 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Turkey

University College Hospital
Address: Department of Haematology
University College Hospital
98 Chennies Mews
London WCIE 6HX
UK
Phone: +44 207 679 6224
E-mail: n/a
URL: www.uclh.nhs.uk



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Posted Tuesday, February 13, 2007 3:19 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, UK

EGE University Medical School
Address: Paediatric Haematology Department,
EGE University Medical School
TR-35100 Bornova-Izmir,
Turkey
Phone: +90 232390 4917
E-mail: n/a
URL: www.ege.edu.tr


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Posted Tuesday, February 13, 2007 3:17 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Turkey

Chronic Care Centre

  The Chronic Care Center is a specialized institution for the treatment and follow up of childhood chronic Diseases: Thalassemia and Insulin Dependent Diabetes. The Center is the result of countless generous efforts. It has succeeded in giving human comfort to a continuously increasing number of children suffering from chronic diseases too hard to handle by them and their families.
 
Address: Chronic Care Center
P.O.Box: 213
Hazmieh, Lebanon 
Phone: +961 05 455101 / +961 05 455102
Fax: +961 05 455103 
E-mail: ccc@chroniccare.org.lb 
URL: www.chroniccare.org.lb


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Posted Tuesday, February 13, 2007 3:16 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Lebanon

S. Anna Hospital
Address: Divisione Pediatrica
Arcispedale S. Anna
Corso Giovecca 203
14100 Ferrara
ITaly
Phone: +390 532236934
E-mail: divisione.pediatrica@ospfe.it

 
 


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Posted Tuesday, February 13, 2007 3:13 PM by Carsten | 0 Comments
Filed under: Italy, Thalassaemia Medical Centre

Centre of Congenital Anaemia
Address: Centro Anemie Congenite
Ospedale Maggiore Policlinico
Dipartmento Medicina Interna
Via Francesco Sforza 35
20122 Milano
Italy
Phone: +390 255033752
E-mail: n/a
URL:  www.policlinico.mi.it


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Posted Tuesday, February 13, 2007 3:10 PM by Carsten | 0 Comments
Filed under: Italy, Thalassaemia Medical Centre

Hadassah University Hospital
Address: Department of Haematology
Hadassah University Hospital
Ein Karem
91120 Jerusalem
Israel
Phone: +972 2677 6784
E-mail: n/a
URL: www.hadassah.org.il 


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Posted Tuesday, February 13, 2007 3:09 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Israel

Thalassaemia and Sickle Cell Unit, Thessaloniki, Greece
Address: Thalassaemia and Sickle Cell Unit
AHEPA University Hospital
1 Stilponos Kyraikide
Street 54636
Thessaloniki
Greece
Phone: +30 231 0993400
E-mail: n/a
URL: www.ahepahosp.gr 


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Posted Tuesday, February 13, 2007 3:07 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Greece, Thessaloniki

Geniko Laiko Hospital
Address: Geniko Laiko Hospital
Goudi
11526 Athens
Greece
Phone: +30 210 7771161
E-mail: info@gna-gennimatas.gr
URL: www.gna-gennimatas.gr


--------------------------------------------------------------------------------
Posted Tuesday, February 13, 2007 3:05 PM by Carsten | 0 Comments
Filed under: Thalassaemia Medical Centre, Greece
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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
aysam
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my litrtle man


« Reply #3 on: October 23, 2008, 03:00:57 PM »

Patient Societies
The Egyptian Thalassaemia Association
Description

The Egyptian Thalassemia Association was established in 1990 to deliver quality comprehensive care to the growing number of thalassemia patients in the Egypt. The Association foresters a  comprehensive program designed to provide primary and tertiary care along with education, outreach, genetic counseling, and psychosocial care to patients, their families and those at risk for carrying the disease. Help in creating Thalassemia centers in Cairo and other Egyptian Governorates. Member of the TIF in 1992.


 


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Posted Friday, July 11, 2008 6:31 AM by christof | 0 Comments
Filed under: Egypt

Thalassaemia International Federation
Description
The Thalassaemia International Federation (TIF) is registered as a non-profit organization, under Cyprus Company Law. The Federation is governed by an 18-member Board of Directors (maximum two per country), elected for a term of 4 years. Under the terms of TIF’s Constitution, 50% of its Board Directors must be patients with thalassaemia.

TIF’S objectives and goals


Promote awareness about thalassaemia, its prevention, medical and other care
Promote and support studies and research for the continuous improvement of prevention and clinical care strategies and for achieving the total cure of thalassaemia;
Disseminate the knowledge, experience and expertise gained from countries with successful control programmes to those in need;
Procure the right of every patient for equal access to quality medical care.



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Posted Thursday, May 31, 2007 7:00 AM by christof | 0 Comments
Filed under: Cyprus, TIF

Thalassaemia Society of South Australia
Description

The Thalassaemia Society of SA is a non-profit organisation that aims to:

·         Raise public awareness for the genetic blood condition Thalassaemia;

·         Ensure that people with Thalassaemia in SA receive the optimum standard of treatment;

·         Provide advocacy on behalf of patients;

·         Support and encourage medical and social research projects designed to improve the quality of life for people with haemoglobin conditions; and

·         Obtain and distribute the latest scientific and medical information on Thalassaemia from around the World.




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Posted Friday, May 18, 2007 6:58 AM by christof | 0 Comments
Filed under: Australia

Thalassaemia Society of Singapore
Description
Thalassaemia Society of Singapore was formed by a group of parents and volunteers to meet the following objectives:



a. create public awareness and disseminate relevant and the latest medical information relating to Thalassaemia.

b. provide community support and social interaction among Thalassaemia patients and their families.

c. provide financial aid to needy families and referral of social and welfare services.


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Posted Friday, May 18, 2007 6:56 AM by christof | 0 Comments
Filed under: Singapore

Thalassaemia Society of Victoria
Description
The Thalassaemia Society of Victoria (TSV) was established in October 1979 by health professionals and members of the community affected by the condition. The TSV, which operates out of the Thalassaemia Centre in Melbourne, educates and distributes information about thalassaemia and other haemoglobin conditions, and seeks to improve the services available to those in need. The TSV is a member of the Australian Thalassaemia Association (ATA) and the Thalassaemia International Federation(TIF).

The Society works as a specialised community education service funded by the Department of Human Services (DHS). The TSV was established to provide some aspects of health care, support and counselling for people with thalassaemia related conditions and their families.

--------------------------------------------------------------------------------
Posted Friday, May 18, 2007 6:51 AM by christof | 0 Comments
Filed under: Australia, Victoria

Thalassaemia Society of Pakistan
Description
The Pakistan Society was established in 1994 and is an organization of volunteers from all walks of life, who have dedicated themselves to achieve the following goals:
1) Provide the best care and treatment for children with Thalassaemia
2) Create awareness about Thalassaemia
3) Prevention through prenatal diagnosis.


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Posted Friday, May 18, 2007 6:46 AM by christof | 0 Comments
Filed under: Pakistan

Sarawak Thalassaemia Society
Description
The Sarawak Thalassaemia Society was formed on 5th February 1994. Initially the Society comprised only of the parents of the thalassaemic children and some medical advisors. Its principal function is as a network of information and mutual support group for the parents and families. In 1995, the Society's membership expanded beyond the patient-parent-medical circle to include non-thalassaemic people.

Our primary objectives are:

To ensure that all thalassaemia patients in Sarawak are accorded full treatment
To give support to the thalassaemia families
To create public awareness about thalassaemia

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Posted Friday, May 18, 2007 6:41 AM by christof | 0 Comments
Filed under: Malaysia, Sarawak

India Thalassaemia Society
Description
With more than 150 million people carrying the Thalassemia trait in Asia alone, much needs to be done to make people aware and curb its spread to future generations.
At Thalassemics India, it is our constant endeavor to work towards a Thalassemia-free world.
Established in 1986, Thalassemics India was conceived to check and help deal with Thalassemia. A non-governmental organization, Thalassemics India is working zealously across the country, operating in close association with doctors, drug/equipment companies throughout the country and abroad, hospitals, Thalassemia associations & centers. Thalassemics India is also a voting member of Thalassemia International Federation (TIF), an international body based in Cyprus.
read more...

 
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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #4 on: October 23, 2008, 03:47:33 PM »

Please place posts under the proper boards and make sure the information is not redundant before posting. Information about thalassemia associations and treatment centers should be posted under those categories. They will only be lost under announcements.
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Andy

All we are saying is give thals a chance.
aysam
AYSAM
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my litrtle man


« Reply #5 on: October 23, 2008, 08:12:04 PM »

 Huh?   sorry didnt   see  it
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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
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