SUPPLEMENTS FOR CHILDREN

If the supplement contains any iron it is not suitable for thalassemia majors.

Narendra,

Looking over all of the other supplements - I don't think their use should be affected by the type of chelator being used.  Just make sure that she is getting her minerals because chelators tend to deplete them as well while chelating iron. 

I am also beginning to see the value of spreading out the dose of IP6 throughout the day as this way it would be most useful in binding free iron throughout the day.  The key to preventing iron related damage is to have something constantly available to bind the free iron. 

Sharmin

Re: Vitamin C and chelators.

http://www.us.exjade.com/hcp/resources/faqh.jsp#t12

Can EXJADE be taken with vitamin C?

The concomitant administration of EXJADE and vitamin C has not been formally studied. Doses of vitamin C up to 200 mg were allowed in clinical studies without negative consequences.

I have put a query into Apo Pharma about C and deferiprone. The initial response from my contact is that he doesn't know of any studies of C and Ferriprox but he is putting in further queries about it. I will update when I know more.

Vitamin C in low doses is known to be safe in thals, but it should not be taken with any iron-containing foods.

Ayesha,

There is a multivitamin with out iron i.e Becefol,but it contains 750 mg of Vitamin C,which is not suitable for you,keep looking,as i also need a multi vitamin with out iron for myself..

Zaini.

Ayesha ,

My daughter takes Vidaylin Syrup as multi vitamin,it does not contain any iron and have only 50 mg of Vitamin C,perhaps you can take Vidaylin-T tablets which contain,

From http://www.abbott.com.pk/ViDaylin.htm#e

VIDAYLIN-T

Ingredient(s): Each ViDaylin-T filmtab tablet contains: Composition 
Vitamin A 2500 IU
Vitamin D 400 IU
Vitamin E 15 IU
Folic Acid 300 mcg
Vitamin B1 1.05 mg
Vitamin B2 1.2 mg
Vitamin B6 1.05 mg
Vitamin B12 4.5 mcg
Vitamin C 60 mg
Niacin 13.5 mg

Check it out with the doctor first.

Zaini.

P.S Don't stop taking Vitamin E and folic acid seperately.

it doesn't contain Zinc, Phosphorus, Cartinine and Magnesium and Calcium  :$

m asking for too many things in just one tablet

sick of taking so many tabletsssssssss!!

There is also the Kiddie Pharmaton brand (syrup), it is an international brand found in almost all countries. It does not have iron or vitamin C but no minerals too. So i guess Ayesha you will have to have the mineral in a seperate pill

manal

Yeah that's true,you'll have to take seperate tablets for minerals,unless you have a credit card with an account full of dollars  coz there are some international brands which are fabulous.There is a multivitamin that contains all vitamins and minerals,but it also contains iron,not suitable.it's by the name of Optilets-M by the way.

Zaini.

Hi all ,
i m asking to my chemist about the brands you mentioned they dont have even one . i  asking to my abot Tkosvit to a long time ( when Zaini mentioned first time ) but they even dont have that one ..  soo i ran here to therehere and then finaly got a Vitam-E Supplement 400mg  of The Vitamin Company .. soo .. i decided to take that supplement which is available , Complusion's other name is Thanks . soo a big thanx to the chemist who have The Vitamin Company's Vitamin-E supplement ( on the supplement content's there is written that it is Natural vit-E ) .... shuh .... search is over i think i got something . i want a change only it feel's very bad to take a tablet for a long time like i was taking /merck's Vitamin-E , i wanted a little change .. ehehhe

Take Care
Umair

Andy,

Is L-carnitine the same as or similar to arginine?  Can I put my son on both?  I plan to give him 2.7g of L-carnitine, how much arginine would be good for him?

Thank you,

Sharmin

Umair,

It's really amazing why you can't find these brands,have you checked all big stores in the city?

Zaini.

Hi Zaini ,
i checked many store like Serveaid , Care Pharmacy  and local big names of medicose .. didnot find anything ... i will check again otherwise i will check for these medicines in lahore when-ever i will go to visit my doc .... i  hope i will meet to succes .... dont worry nothing serious here ... if i failed to catch these medicines here and lahore then i wil contact again to kausar medicose for the medicines as i i did in starting of Ferriprox ...


take care
Umair

Hi Sharmin,

L-carnitine is a building block of an amino acid while arginine is an amino acid. They are both important Nitric Oxide precursors. I have seen supplements that have both along with CoQ10 in a liquid formula. CoQ10 is another supplement important for heart function. The amounts in the supplements I've seen are equal for L-carnitine and arginine. You may want to check with DR Vichinsky on proper dosage, but equal amounts of each would be the place to start.
An example of this product can be seen at http://www.luckyvitamin.com/item/?itemKey=60531&site=google_base

Thanks Andy, 

I will send off an email today.  I will let you know when I get a response.

Sharmin 

guys finally after taking so many days i have bought two things:

Calcite 600 which contains:
Calcium (carbonate)   600 mg
Vitamin D                  200IU
Magnesium (oxide)     40 mg
Zinc (oxide)               7.5 mg
Copper (oxide)           1 mg
Manganese (sulfate)    1.8 mg
Boron (sodium borate) 200mcg

and
Rovigon
Vitamin A - 30,000 IU
Vitamin E - 70 mg

let me know what u think abt these two things and what else i need?