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Author Topic: THALASSAEMIA NATIONAL CONFERENCE IN KARACHI  (Read 12551 times)
jatinder
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« on: November 03, 2008, 09:40:13 AM »

DEAR MEMBERS,

I WANT TO INFORM ALL THAL PAL MEMBERS AND MY BROTHERS AND SISTERS

THERE IS A CONFERENCE IN KARACHI ABOUT THALASSAEMIA ON 4-6 NOV

VENUE:-
          KOHINOOR HALL REGENT PLAZA KARACHI PAKISTAN
DATE:-    4  to 6 NOVEMBER 2008
 
FOR ANY INQUIRY  CAN CONTACT ME VIA MAIL

              jkcrk4@hotmail.com
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JATINDER KEWLANI
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Zaini
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« Reply #1 on: November 03, 2008, 11:37:18 AM »

Jatinder,

Are you going? Is everyone allowed an entrance?

Zaini.
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jatinder
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« Reply #2 on: November 03, 2008, 12:21:11 PM »

yup every one can attend
if any problem can contact me
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JATINDER KEWLANI
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Ayesha
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« Reply #3 on: November 03, 2008, 05:09:31 PM »

grmm? I heard not everyone can join???  Undecided Undecided
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-Ayesha
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« Reply #4 on: November 04, 2008, 06:45:52 AM »

HEy Ayesha

i have confirmed that every one can go and conference will start at 4.00 pm on 4th nov 2008

so plz come and i will be there
and plz inform all of your friends who are thal patient

any problem dont hasitate to contact me

thankx and rgrds,
jatinder kewlani
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Ayesha
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« Reply #5 on: November 12, 2008, 10:23:39 PM »

hey

i cudnt make it for the conference :/ but whats the update guys? who went? and how was it!?? any update??
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-Ayesha
Zaini
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« Reply #6 on: November 13, 2008, 03:15:14 AM »

I think Tariq was going,Tariq?

Zaini.
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« Reply #7 on: November 13, 2008, 05:43:49 AM »

Yeah , me too heard that Tariq was going , and he confirmed me that he went there only for few hours  but he didn't attend any complete session bcoze he went right on time and function started a little bit late ... 
Hey Tariq !!! oveer to you buddy ... share your memories of Thal conference ...

Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair
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« Reply #8 on: November 13, 2008, 05:04:28 PM »

Hi everyone,

Yes i did attend the last day of the conference, actually i targeted the parent patient session looking for some valuable Q/A between
patients and doctors. Session was scheduled for 9 - 11 am but started at 10:45 am (miserable punctuality). There were three patients  from different cities on stage, 3 doctors including Dr Tahir Shamsi and our favourite Dr Javeria Mannan, and three representatives from different thal centers.

Nothing new in what i heard and what i was told about other two days of the conference, except that i personally met Dr Tahir (the one in picture with our dearest Sajid giving him certificate). He gave some valuable advices which no one else mentioned to me before about getting regular eye and ear checkups reason being using high doses of desferal can affect both areas and damage to eye can be irreversible. Also i was usually told that we thals should dring more tea as it reduces iron absorption from food we eat, but a doctor there said tea itself is not very good for health and amount iron from food is not much to worry about. Also Dr Javeria Mannan mentioned that combination therapy of Asunra + Desferal is not yet prescribed as long term effect of it is still under trials.

Other than that same old research is in progress on gene therapy like stories and prevention methodologies etc.

I will try to collect some more information from serious attendees and will share with you guyz when i get them

Regardless of the serious stuff, special fun programs were arranged for patients @ Aladin park and McDonalds and kids did enjoy that.
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« Reply #9 on: November 14, 2008, 01:57:49 AM »

Hi Tariq ,
it sound's like that was a great day yaar ,..
Quote
I will try to collect some more information from serious attendees and will share with you guyz when i get them
yeah sure , eagerly waiting for more details ...

Take care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair
jatinder
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« Reply #10 on: November 14, 2008, 11:56:01 AM »

friends it means that tea is good for thalassaemic childs

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Andy Battaglia
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« Reply #11 on: November 14, 2008, 05:22:35 PM »

Tea is good for health. In addition to inhibiting iron absorption, tea is a natural iron chelator and a powerful antioxidant. Tea is highly recommended for thalassemics, especially green tea.
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Andy

All we are saying is give thals a chance.
jatinder
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« Reply #12 on: November 15, 2008, 06:05:40 AM »

thanx andy sir,

thankx for informing me.

sir i am taking ferriprox 500mg 6 tabs daily.
and with combination of 1.5mg desefral  daily

my weight is 48kgs so is this dose is right
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JATINDER KEWLANI
www.thalspoint.com
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