help needed please !!!!

Mickey

Has anyone in your family been diagnoised with HLH before whether primary or secondary??

Please be strong, i know this is a hard time for you and your family. I really hope that things will be much clearer in the coming hours. Hope that she can be diagnoised in order that you can deal with the sitiuation right away. Your family is in my prayers

Waiting for your update

manal

Mickey,

I am praying for a treatable diagnosis and best outcome for your baby.  I am praying also for relief and peace of mind for your whole family as she recovers.  God bless.

Sharmin

Micky,

Your little baby is in my prayers,i know its a hard time,but i pray that it will pass soon,please be strong,may God help you.

Zaini.

Mickey,

We are all praying for a positive outcome.

Mickey,

My thoughts and prayers are with you and your family.

Sharmin

Mickey,

I just don't know what to say...My prayers are with you and your family.All my blessings to your baby girl.

Hi Mickey

I hope things get better.  Keep us updated.
I wish you  get to know what is going about.
Take care and bon courage


What is HLH?

Mickey,

I hope doctors are able to determine what ever is going on,wishing your baby a healthy future.

Jade,

Check this link,

http://www.criderfamily.org/shannon/about1_hlh.htm

Zaini.

Hi Micky
How is your baby today? Have the doctors come to any conclusion? I hope they have been able to diagnose her condition and started treatment accordingly.

take care
Maha

hi
nothing diagnose yet. doc are trying to take our lymp node by some process they can see lymphnodes near bone and abdomenal so they are looking either to do surgery to take out or bone diopsy to sudy it. HLH test they are looking this aswell we had done bone marrow before also in that they had not seen HLH but doc. says results are 70% only sometime they cant see it. dont know yet but by tomaro they will do something .

Mickey,

Thank you for the update.  Our thoughts and prayers are constantly with you. 

Sharmin

Mickey,

Did the docs ever check for Duffy & Kell system antibodies?

Sharmin

PLEAE ANY ONE KNOW ABOUT DR. MM CHANDI  contact infromation. of cmc vellor? i need to snd now reports to him to go throught it. still nothing.
spleen is 10 cms and live is 9.6
platletts - 3 lacks.
hb - falling down after 1 week

so just seeing what to do.

Hi Micky
You will get Dr Mammen Chandi`s contact info in the foll url
www.thalassemicsindia.org/treatment.html

take care
maha

Micky

I hope you can find out what is going on soon. What about the HLH, is it excluded now???

manal