Rituximab treatment

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Offline Manal

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Re: Rituximab treatment
« Reply #15 on: March 02, 2009, 12:03:00 AM »
Andy, but since they didn't mention that it has vitamin E (not every one knows that DL-alpha Tocopherol is a vitamin E), i suppose it is in a very low quantity. What do you think??

I think i will email them about the quantity of vitamin E in order to reduce my son's daily total intake

manal

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Offline jade

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Re: Rituximab treatment
« Reply #16 on: March 02, 2009, 12:34:13 AM »
Hi Sharmin

I hope that with the treatment this time you get rid of the antibodies for good.
Take care
Jade

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Offline Andy Battaglia

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Re: Rituximab treatment
« Reply #17 on: March 02, 2009, 12:57:48 AM »
I do think it must be a small amount of DL-alpha Tocopherol included because it isn't listed by percentage. It may just be a vehicle that the D is attached to. Small amounts of Dl won't cause harm. My doctor said don't take more than 100 mg of synthetic E daily.
Andy

All we are saying is give thals a chance.

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Offline Zaini

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Re: Rituximab treatment
« Reply #18 on: March 02, 2009, 03:17:06 AM »
Hi,

As far as i remember Sharmin is using Osteocare liquid which does not contain any trace elements.

And this DL-Alpha thing,it isn't mentioned on the company's website,be it Chewables or liquid .Liquid description is ,

Formula
Nutritional Information   Average Per 2 Teaspoonfuls   % RDA
Calcium                                 300 mg                38
Magnesium                                  150 mg                 50
Zinc                                             6 mg                 40
Vitamin D                                    3.8 mcg                  76

Chewable contains:

Formula
Nutritional Information   Average Per 2 Tablets   % RDA
Calcium                             800 mg              100
Magnesium                           300 mg              100
Zinc                                       10 mg                67
Vitamin D3                                5 mcg               100
Manganese                               0.5 mg                 --
Selenium                               50 mcg                 --
Copper                                  1 mg                 --
Boron                                0.6 mg                 --

DL-Alpha is mentioned nowhere,i don't know why this other website has mentioned it ??? .

Sharmin i think you can switch to Chewables as it contains trace elements.

Zaini.

^*^Xaini^*^

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Offline Sharmin

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Re: Rituximab treatment
« Reply #19 on: March 02, 2009, 04:07:27 AM »
Thank you so much for your message Jade  :hugfriend  I hope that this treatment eliminates the antibody too. 

I think that I will order the chewables too, I am a little concerned about the vitamin e issue??  I will also look at a local health food store and see if I can find a comparable product that also includes the trace elements.  The lady that owns the store is extremely knowledgeable. 

I will let you all know what I find out.  Also, we have an ivig and an appt with our doctor this week to discuss our results from Oakland - at that time we can also find out what vitamins they recommended and how much of each.

Sharmin
Sharmin

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Offline Dori

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Re: Rituximab treatment
« Reply #20 on: March 02, 2009, 08:00:46 AM »
Rituximab, I am sure I have read it before. I think that I signed a petetion to get r. under insurance in UK. Isn't rituximab used by AA or Black Diamond Fan? I am sure I have heard of something before or those two medicines have the same last letters.  :dunno

Nevertheless: I wanted to say that I hope this treatment will eliminates the anitbody & it will work a bit fast.

Dore

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Offline Dori

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Re: Rituximab treatment
« Reply #21 on: March 02, 2009, 08:06:51 AM »
Rituximab, I am sure I have read it before. I think that I signed a petetion to get r. under insurance in UK. Isn't rituximab used by AA or Black Diamond Fan? I am sure I have heard of something before or those two medicines have the same last letters.  :dunno


No, I was wrong. this medicine is called: PNH, een weesziekte; eculizumab, een weesgeneesmiddel"  PHN, a orphan disease;  eculizumab a orphan medicine (PNH=paroxysmale nachtelijke hemoglobinurie, English = http://en.wikipedia.org/wiki/Paroxysmal_nocturnal_hemoglobinuria .

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Offline Sharmin

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Re: Rituximab treatment
« Reply #22 on: March 03, 2009, 01:19:24 AM »
Thank you Dore  :hugfriend

My friend's daughter has Diamond Blackfan. 

Sharmin
Sharmin

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Offline Bostonian_04

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Re: Rituximab treatment
« Reply #23 on: March 03, 2009, 03:09:15 AM »
Sharmin,

Goodluck for the treatment. Hopefully LittleA can say Goodbye to the antibodies forever.

- Bostonian
Quis custodiet ipsos custodes ? - Plato

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Offline Sharmin

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Re: Rituximab treatment
« Reply #24 on: March 03, 2009, 07:03:12 PM »
Thank you Bostonian,  I hope so too.
Best wishes to your little one too.

We look forward to meeting you in New York in the fall,

Sharmin
Sharmin

 

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