Study Finds Thal Minors do Have Symptoms

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #165 on: August 02, 2015, 05:39:52 AM »
Hey guys !!!!!!
Check it out this study made in 2013!!!!
 http://informahealthcare.com/doi/abs/10.3109/08880018.2013.771388 :wink
Daniela

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #166 on: August 02, 2015, 07:25:08 AM »
Another study 1975 by AB reign . Learning difficulty for children thalassemia carriers!!!
http://www.ncbi.nlm.nih.gov/pubmed/1206388
Daniela

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Offline Andy Battaglia

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #167 on: August 02, 2015, 03:12:36 PM »
For those who can't get to the link, I had posted this article in its entirety previously in this thread. Just scroll up to April 4, 2015 and you can see the article and my comment.
Andy

All we are saying is give thals a chance.

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Offline sofear

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #168 on: August 02, 2015, 03:33:57 PM »
That post seems to include the same excerpt the link leads us to. Should there not be six pages? ("Pages 742-747")

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #169 on: August 03, 2015, 01:38:59 AM »
One  of the links is about learning disability I hope this goes to the full text from A.B. Reign article from 1975

http://www.tandfonline.com/doi/abs/10.1080/00221325.1975.10533959?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&
Daniela

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Offline sofear

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #170 on: August 03, 2015, 07:09:41 PM »
I does not. I'm not sure how you think it would. You simply have to click on the link to confirm whether it leads us to a full text or not.  :scared

We now basically have the same articles in a ton of topics and we can't even read them, lol.

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Offline Andy Battaglia

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #171 on: August 03, 2015, 11:29:32 PM »
Sofear,

That is typical of online articles. We often see just the abstract or a preview. If you want more, it usually involves buying articles or subscriptions. The abstracts generally show the results and conclusions, which is quite pertinent information.
Andy

All we are saying is give thals a chance.

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #172 on: August 06, 2015, 08:33:47 PM »
I'm sorry sofear
I'm able to see the articles when in a class I'm doing on library research ,but while logged  on class I wasn't able to print it to share it ,I will try to do it as soon as possible ,but I still behind on my chores and joggling work school plus being a mon ,wife and having to deal with symptoms righ now.( doc visits)  so bear with me a little I sure want a copy of everything I found out and I will cause I want my doctors to know it too.
Daniela

Re: Study Finds Thal Minors do Have Symptoms
« Reply #173 on: September 08, 2015, 06:40:07 AM »
Dear all,

It's such a relief to read that others with Thal minor also report the same symptoms. I am 35 years, have two children and just this year was told that I am Thal minor. But yes all seem to say it's assymptomatic and don't reccomend any supplements. But I have severely bad memory and am easily fatigued. My levels for folic acid b12, iron etc are all fine. So the doctor reccomenda nothing. Does that mean this is me at max capacity. That is awfully daunting. I am often yelled at my friends and family for forgetting simple things. I have become very good at writing everything down but that's just not a way of living. I'm tired easily and get breathless easily. Don't get me wrong I'm active. I exercise three times a week. I'm currently training for running a 10k and I'm worried I won't be able to do it. I just completed my second masters in public health and work for the World Health Organization. But at times ( often) I get tired and cannot concentrate.

What can help? Should I take folic acid supplements eventhough my levels are ok?

Thank you for your help!

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Offline lighthumor

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #174 on: September 24, 2015, 04:09:02 AM »
Kav79,

Good luck on your running!  I'm a minor and I've done a couple full marathons and a dozen half marathons as well.  It can be done, I just think maybe it takes us a little more time and training than the average person :)  I too am scheduled for a 10K (mine's in a couple weeks).  You'll be fine :) Just have fun!  Also, make sure you focus on your pace... and when the race starts, stay on your pace.  If you go out too fast in the beginning it could backfire later in the race.  Best of luck! :biggrin

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Offline n

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #175 on: March 28, 2016, 10:36:58 PM »
I've gathered a few of the articles mentioned here, and more. It is important for everyone to have access to this information.

Asthma and Allergic Rhinitis in Patients With BTM
https://mega.nz/#!AAIREaKb!I0g3ykzW74SZjuweB0uuXDUTaaGqZUOHJ_Qw9V93yk0

Cognitive Dysfunction in BTM
https://mega.nz/#!EFhmVKKR!xWARe7pGpTVN6vdiLzXkwitXga4USIx70K4jlR3bCn4

Depression in Subjects With BTM
https://mega.nz/#!ZJBBDYQL!DbYyuQYTDZxSGzOSLyVAcUx5vACujqyrSB3q92PPjDs

Determining the Role of Carnitine and Folic Acid to Decrease Fatigue in BTM Subjects
https://mega.nz/#!9VpjiQrT!_qVOxG_Sp2XkFIQfGdJYwal8g-Jl_EnZsmx3II8HQlU

Is the Beta Thalassemia Trait of Clinical Importance?
https://mega.nz/#!EY5GlCoB!TgIFdQow4bgF96dUTkKkRSChsX_4VpCn56O083EaR7c

Prevalence of Metabolic Syndrome in Patients With BTM and its Related Factors
https://mega.nz/#!wMg3iZiJ!W0YUV-jAf0dNp7OGn3GzI36jbj6LEdOied4mTSw0a0w

These aren't all of them, but they are the ones I think people would be most interested in.

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Offline Andy Battaglia

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #176 on: March 29, 2016, 02:30:20 AM »
Together, these articles do give patients something to back themselves up with when they talk to doctors. The information is also useful to patients who are trying to help themselves. All pertinent information.
Andy

All we are saying is give thals a chance.

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #177 on: August 29, 2016, 09:05:16 PM »
More articles about minors having symptoms.
Blackburn, C. (1953) On the clinical detection of enlargement of the spleen. Australasian Annals of Medicine, 2, 78–80. Karimi, M., Bagheri, M.H., Tahmtan, M., Shakibafard, A. & Rashid, M. (2007) Prevalence of hepatosplenomegaly in beta thalassemia minor subjects in Iran. European Journal of Radiology, doi: 10.1016/j.e jrad.2007.09.027 Premawardhena, A., Arambepola, M., Katugaha, N. & Weatherall, D.J. (2008) Is the beta thalassaemia trait of clinical importance? British Journal of Haematology, 141, 407–410.
Daniela

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Offline Danny.H

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Re: Study Finds Thal Minors do Have Symptoms
« Reply #178 on: August 29, 2016, 09:11:27 PM »
Tassiopoulos, T., Rombos, Y., Konstantopoulos, K., Revenas, K., Tassiopoulos, S. & Aessopos, A. (1995) Spleen size in beta-thalassemia heterozygotes. Haematologia (Budapest), 26, 205–209. Weatherall, D.J. & Clegg, J.B. (2001) The Thalassaemia Syndromes. Blackwell Science, Oxford.

I'm sorry I can pass along just the references but there is a clause against copyingland pasting  the information  on sites so if somebody search those articles on databases I'm sure you are going to be able to find.
Daniela

Re: Study Finds Thal Minors do Have Symptoms
« Reply #179 on: April 09, 2017, 12:49:53 PM »
How do you combat the symptoms for Thal Minors? My 6 yo son was diagnosed with it, but he has some symptoms of the more severe cases (fatigue, headaches, irritability, pale skin, susceptibility to illness). The nurses at his pediatrician's office don't seem to know much and I'm hoping to avoid paying to see the doctor for a consultation when he might not know much either. I'm looking for any ways to help my baby boy feel better and have a more enjoyable childhood. He takes a daily vitamin, but I'm ok with him having additional supplements if necessary. Any advice or tips are welcomed!

 

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