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Hb levels

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Offline Tedi

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Re: Hb levels
« Reply #15 on: July 13, 2009, 07:49:56 PM »
Sharmin, the right name is taht u use autoantibodies, with every bt my doctor have made me an orbazone.
This condition az i said was 6 months period.But now everything is fine. :wink
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Offline PositiveVibes

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Re: Hb levels
« Reply #16 on: July 27, 2009, 11:39:36 AM »
Quote from: Tedi on July 13, 2009, 05:00:09 PM
Before an year my hb levels was 6-7 even 5 or 7days after bt, because i was made antybodies :wah
6months after that i was well , and my hb levels was even very higher 144 - 30 days after bt :dunno
Now my hb is normal about 98-110, 20-25days after bt.
Usually i go for transfusion with 90 -100, but sometimes its higher.


wow... if I understood properly , you are thal major and you have had hb around 144 after 30 dayss.. ?? If it is so, you are lucky ..:)
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Rozitka
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Offline Tedi

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Re: Hb levels
« Reply #17 on: July 28, 2009, 11:18:17 AM »
Quote from: Rozitka on July 27, 2009, 11:39:36 AM
wow... if I understood properly , you are thal major and you have had hb around 144 after 30 dayss.. ?? If it is so, you are lucky ..:)
yes :wink
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Offline nice friend

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Re: Hb levels
« Reply #18 on: July 28, 2009, 11:36:35 AM »
WOW Tedi ,
you're really soo lucky ....
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Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Offline Tedi

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Re: Hb levels
« Reply #19 on: July 28, 2009, 04:06:34 PM »
Quote from: nice friend on July 28, 2009, 11:36:35 AM
WOW Tedi ,
you're really soo lucky ....
Thanks, its normal now about 98-110 before bt.
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Offline Manal

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Re: Hb levels
« Reply #20 on: July 29, 2009, 02:14:58 AM »
This is very interesting Tedi, but did the doctor gave you an explaination for this?? Were you doing any thing thing different that led to maintaining such a high HB??

manal
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Offline Tedi

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Re: Hb levels
« Reply #21 on: July 29, 2009, 07:24:10 AM »
Quote from: Manal on July 29, 2009, 02:14:58 AM
This is very interesting Tedi, but did the doctor gave you an explaination for this?? Were you doing any thing thing different that led to maintaining such a high HB??

manal
Hi Manal, i do nothing special, i dont take any pills - only vit.C and dfo.
My doctor couldn't  explain the higher hb levels.
May be it was only a period.
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Offline Manal

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Re: Hb levels
« Reply #22 on: July 30, 2009, 03:02:56 AM »
Thanks Tedi for your reply, hope this trend will be back soon :wink.

Take care
manal
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Offline aysam

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Re: Hb levels
« Reply #23 on: August 11, 2009, 03:28:45 PM »
DO YOU THINK
PROFFESER ALI TAHER
IS VERY GOOD ?
is he really worth leaving australia for me to go for him can anyone tell more about him i need to know
am i makeing the right desseion
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, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )
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Offline Manal

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Re: Hb levels
« Reply #24 on: August 12, 2009, 12:28:41 AM »
Yes Mariam, he is so much expierenced in thal, but generally he is a hematologist for adults. There are other well known names for children in Lebonan too that he can refer you to or he may follow Aysam as well too.

In Lebonan,there is high rate of thal that is why they have good expierence there


manal
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Offline Dori

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Re: Hb levels
« Reply #25 on: August 19, 2009, 06:13:32 PM »
Good luck in what ever you decide, Mariam.

 :hugfriend

Keep us up to date, please. I wish Aysam and the rest of the family good health.
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Offline Katias Mummy

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Re: Hb levels
« Reply #26 on: August 20, 2009, 12:09:46 PM »
Hi Mariam, I am from Sydney too and my little girl (who is nearly one) has Thal Intermedia. Which doctor are you seeing in Sydney?? Are you going to Westmead?
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Offline Tedi

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Re: Hb levels
« Reply #27 on: November 20, 2009, 08:16:28 PM »
Hello I was for my transfusion today my HGB before it was 116  :wink
Hope everyone is fine!
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Offline Zaini

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Re: Hb levels
« Reply #28 on: November 21, 2009, 06:23:42 AM »
Good to hear from you Tedi :hugfriend

Zaini.
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Offline Dori

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Re: Hb levels
« Reply #29 on: November 21, 2009, 09:43:48 AM »
Nice hb level :) I hope it went well.
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