Mohanish and his transplant

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Offline Sharmin

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Re: Mohanish and his transplant
« Reply #210 on: January 07, 2010, 03:32:10 PM »
Madhavi,

I am so glad to hear that Mo has had 100% engraftment.  Transplant was definitely the best choice for him.  I hope that his hg increases with time.  Please let us know the results of the coombs test. 

Sending our best always,

Sharmin
Sharmin

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Offline Fadd

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Re: Mohanish and his transplant
« Reply #211 on: January 07, 2010, 04:20:39 PM »
Great to hear that genetic / chromosomal analysis has shown 100% engraftment :)
Wishing little Mo very best for the Coombs test next week.

Fouad
Fadd

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Offline nice friend

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Re: Mohanish and his transplant
« Reply #212 on: January 08, 2010, 08:14:54 PM »
Glad to hear this good news.. may God bless Mo with alll of his blessings :) ..

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair

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Offline Bostonian_04

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Re: Mohanish and his transplant
« Reply #213 on: January 11, 2010, 06:43:47 PM »
Madhavi,

Great to hear about 100% engraftment. Very happy for little Mo and your enitre family.....May health and happiness be with you always....
Quis custodiet ipsos custodes ? - Plato

Re: Mohanish and his transplant
« Reply #214 on: January 12, 2010, 05:28:25 PM »
Congratulations........

Wishing happy and healthy life for all of you.
Regards.

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Offline Dori

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Re: Mohanish and his transplant
« Reply #215 on: January 12, 2010, 06:02:07 PM »
We got the result for the genetic/chromosomal analysis this week and it shows 100% engraftment and all cells are from the new bone marrow.....His Hb is a little low-10.8 and so we will do a Coombs test next week.

Congratulations!!!!!

Since I follow more humans who have had a transplant I wanted to ask on how many meds little Mo is. And of they are IV or oral. My apologies for all those questions.

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Offline Madhavi

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Re: Mohanish and his transplant
« Reply #216 on: January 13, 2010, 05:08:44 AM »
Dear all...............
We got the Coombs test result and it shows no problem.
The low Hb level is probably due to the fact that his donor Masumi is also a minor. This week the Hb is 10.9 (last week it was 10.8).
Dori, about the medicines....he is on 4 oral medicines at home and he will be given iv antiviral therapy on and off-the first time next week-ganciclovir twice in that day on out patient basis. At home he is on immunosuppresant(ciclosporin-the dose of which has been tapered since today and he will be on it for a year in all),anti hypertensive (amlodepin-till the bp is normalised), sulfomethoxazole (to prevent infection and he has to take it till 6 months of bmt) and ursodexycholic acid (for the liver which he will be on till 3 months of bmt)...Other than that there is calcium supplement but that was on previously as well.....
His serum ferritin will be checked after 3 months of bmt and then he will be chelated till the levels are normal.
If there is anything else anyone wants to ask, please feel free......I wish I had someone to ask such questions before went ahead for it.....especially from someone who has experienced it! No problems about answering them to the best of my ability.....
Love,
Madhavi
Love and luck to all...

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Offline nice friend

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Re: Mohanish and his transplant
« Reply #217 on: January 17, 2010, 12:49:36 PM »
Hi Madhavi ,
m not good at medical kind of stuff, ...  i hope Mo is doing well .. wish him best of luck :) ..

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Madhavi

  • Mohanish....a divine blessing!
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Re: Mohanish and his transplant
« Reply #218 on: January 27, 2010, 04:24:25 AM »
Hey all...
Happy to be sharing this with you....
29th of this month is 3 months to the day of transplant....Now on Mohanish is only on 2 medicines! No more medication for his liver and blood pressure!
The doctor said that we can take him down for a walk when there are few people around...for about 10-15 mins....so Mo is thrilled about that!Less bondage!
Time has flown by and all is going well thanks to your love and supportl...
Madhavi
Love and luck to all...

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Offline Lena

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Re: Mohanish and his transplant
« Reply #219 on: January 27, 2010, 05:22:06 AM »


Great news, Madhavi!

Time really flies and I am sure this 15 minutes walk will make Mohanish feel like he discovers life again!
I can also imagine your joy. Best wishes for your next steps to this extraordinary journey.

Lena.
 

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Offline ginacappo

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Re: Mohanish and his transplant
« Reply #220 on: January 27, 2010, 05:31:29 AM »
I wish Mo, you and your family the best. I am so happy to hear all went well. I haven't been commenting but I have been following his transplant. I am so excited for you as a thal patient I understand what this means for MO. My prayers will be with you Please Please Keep posting not all respond but we are reading........

Gina

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Offline Zaini

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Re: Mohanish and his transplant
« Reply #221 on: January 27, 2010, 07:37:21 AM »
That's wonderful,time does fly fast,and everything becomes a memory,like thalassemia will be to Mo. :hugfriend

Zaini.
^*^Xaini^*^

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Offline samyuktha

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Re: Mohanish and his transplant
« Reply #222 on: January 27, 2010, 12:14:16 PM »
Dear Madhavi,

I am happy for you,Mohanish ,Masumi and your husband.God bless you dear friend.As a mother you would have undergone hardships regarding Mohanish's Treatment.Now the fruit of your hard ships is in your hand with Mohanish completely cured.You have Mohanish as a thalassemia free child.Take good care of both your kids and give them all your love.Enjoy your motherhood happily and peacefully.

Take care,
Viji
S.Vijayalakshmi

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Offline Fadd

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Re: Mohanish and his transplant
« Reply #223 on: January 27, 2010, 04:06:39 PM »
Thats' great to hear....
Love for little Mo  :hugfriend

Fouad
Fadd

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Offline Madhavi

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Re: Mohanish and his transplant
« Reply #224 on: January 29, 2010, 07:14:52 AM »
Thank you all guys......
Goosebumps and teary eyed in reply!
Madhavi
Love and luck to all...

 

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