Difference

  • 82 Replies
  • 61057 Views
*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: Difference
« Reply #75 on: April 01, 2010, 04:05:48 AM »
Best of luck dear Najaf  :hugfriend .

Zaini.
^*^Xaini^*^

*

Offline Keep Smiling

  • ***
  • 153
  • Gender: Male
Re: Difference
« Reply #76 on: April 08, 2010, 04:31:55 PM »
hi,
an update on Najaf,,,,,
she has been going to school last week with great enthuism..... :biggrin
her Hb is 12.5....hmmmm
and her SF is 507 which was a month ago 5300..... :rotfl
and now she has been advised asunra from her doctor........
her electropheresis has also been done, i will update u soon

Abbas

*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: Difference
« Reply #77 on: April 08, 2010, 11:14:36 PM »
Abbas,

I am happy she is enjoying her school.

Concerning the ferritin reading, no doubt that there was a wrong test because no way she can have this drop in one month and most probably she is in the 500 range since she is recently transfused as i suppose.

But since she will be starting Asunra (on 500 level of ferritin), please moniter her ferritin so it won't drop than the normal range. Also moniter her liver and kidney functions every month

Good luck and keep updating
manal

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: Difference
« Reply #78 on: April 12, 2010, 04:11:10 AM »
Thats a really great news :) when was last she got transfused? Her hb is pretty good :thmbsup .

Zaini.
^*^Xaini^*^

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Difference
« Reply #79 on: April 13, 2010, 12:46:46 AM »
Abbas,
gr8 news :) .. best of luck , and many many best regards to lil Najaf ..........
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Keep Smiling

  • ***
  • 153
  • Gender: Male
Re: Difference
« Reply #80 on: April 17, 2010, 09:32:09 AM »
Thanks Umair....

Zaini sis, she was last transfused on almost 2nd week of february........i think its good enough!!!!

here is the CBC of Najaf...

CBC

Hb                     12.5                 11---14
haemotocrit         39                   34--40
RBC                    5                     3.9--5.3
MCV                   82.6                 75--87
MCH                   24                    24--30
MCHC                 30                    31--37
WBC                  11.8                  5--15

Neutrophils             57.1%            25--45%
lymphocytes           36.1%            40--60%
eosinophlis              1.5%              1--6%
monocytes              4.4%              4--8%
basophils                 0.9%              0-1%

platelets                  234                50--400

here is the Electropheresis:

Hb                     11.8                    11---14
haemotocrit         41.1                   34--40
RBC                    4.91                    3.9--5.3
MCV                   83.8                    75--87
MCH                   24.1                    24--30
MCHC                 28.8                    31--37

HbF                   100%
SF                     507.3 ng/ml

Najaf is taking Exjade 29mg/kg/day.
Comments are awaited

Abbas

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Difference
« Reply #81 on: April 17, 2010, 05:50:18 PM »
Abbas,

Things are looking much better these days for Najaf. The Hb is staying in a good range and her ferritin is low. I would remind you to closely monitor her ferritin level, as the dose of Exjade may need to be reduced if her ferritin drops much lower, since she is not transfusing regularly and new iron is not being regularly introduced into her body.

I am pleased with her progress these past two months. This is quite encouraging.
Andy

All we are saying is give thals a chance.

*

Offline Keep Smiling

  • ***
  • 153
  • Gender: Male
Re: Difference
« Reply #82 on: April 18, 2010, 04:52:12 PM »
Andy,

thanks for your appreciation and encouragement, we will have a look at SF...

Abbas

 

SMF spam blocked by CleanTalk