what routine tests needed- pls advise

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what routine tests needed- pls advise
« on: August 22, 2012, 04:34:33 AM »
Hi all,

My daughter is 3 yrs old and every 4 weeks she needs BT. B4 BT, CBC report is done and every 3 months ferritin is checked. Pls advise what all other tests she needs and at what interval - at her age.

Awaiting revert. Thanks.

Reema

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Offline Pratik

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Re: what routine tests needed- pls advise
« Reply #1 on: August 22, 2012, 05:25:14 AM »
Hi all,

My daughter is 3 yrs old and every 4 weeks she needs BT. B4 BT, CBC report is done and every 3 months ferritin is checked. Pls advise what all other tests she needs and at what interval - at her age.

Awaiting revert. Thanks.

Reema
CBC, SGPT & SGOT (creatine/kidney/liver tests). Also get her Fasting Blood Sugar (FBS - for diabetes) and HIV Aids get done every SIX months. Also do get Vitamin D report done at least once an year (for now as she's only 3 years old). This should suffice it, however, Andy may give you more advice. :)

Regards,

-P.
Every child is special.

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Offline Dharmesh

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Re: what routine tests needed- pls advise
« Reply #2 on: August 22, 2012, 10:42:41 AM »
Hearing and Vision Tests need to be done when starting Asunra or Desferal and one in a year thereafter.
Start listening your body, it always gives signs

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Offline Andy Battaglia

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Re: what routine tests needed- pls advise
« Reply #3 on: August 23, 2012, 11:38:15 PM »
Which chelator is she using?
Andy

All we are saying is give thals a chance.

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Offline Pratik

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Re: what routine tests needed- pls advise
« Reply #4 on: August 24, 2012, 05:44:12 AM »
Which chelator is she using?
Asunra.
Every child is special.

Re: what routine tests needed- pls advise
« Reply #5 on: August 27, 2012, 07:42:24 AM »
Dear Andy Sir,

pls advise. My 3 yr old daughter - weight - 12 kg, currently as per doc's advise giving her 200mg per day of Asunra and folic acid syrup 2.5 ml twice a day.

AS per other member's advice will ask doc to increase the dose of asunra during her next BT.

pls advise what all other supplements and tests needed for her at this age.

Thanks
Rima

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Offline Bostonian_04

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Re: what routine tests needed- pls advise
« Reply #6 on: August 27, 2012, 07:09:53 PM »
My daughter is 6 yrs old and we give her age appropriate multivitamin gummies and Vit D drops and try to make sure she eats a balanced diet. So far Oakland children's or Boston children's did not recommend anything additional. so, you can try these two for a start...
Quis custodiet ipsos custodes ? - Plato

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Offline Andy Battaglia

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Re: what routine tests needed- pls advise
« Reply #7 on: August 29, 2012, 12:41:42 AM »
Rima,

Her Asunra dose should be higher. She should be on a dose about double what she is currently taking. I suggest 200 mg twice daily for a total of 400. It is quite advantageous to the glands and organs if the iron load is kept as low as possible. A ferritin of over 2000 needs to be lowered, and this is so important when children are growing, so that their hormones are less affected. Antioxidants like natural vitamin E are also important for protecting the glands.
Andy

All we are saying is give thals a chance.

 

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