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Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
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Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
71 Replies
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Canadian_Family
1064
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #60 on:
October 22, 2015, 05:43:48 PM »
Andy,
Thanks for the update.
MSKCC updated the website yesterday. The major change is "This study is ongoing, but not recruiting participants.". Study completion date remains as July 2016.
https://clinicaltrials.gov/ct2/show/NCT01639690
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Regards.
Andy Battaglia
8793
Gender:
Will thal rule you or will you rule thal?
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
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Reply #61 on:
October 22, 2015, 06:04:15 PM »
SK presented at the meeting this week. I understand that they said that their process appears to be working and that they think the lesser preparation regimen was sufficient.
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Andy
All we are saying is give thals a chance.
Canadian_Family
1064
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #62 on:
October 22, 2015, 06:26:16 PM »
Thanks for the update.
So relieved to hear that lesser preparation regimen is still on horizon.
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Parin
137
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Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #63 on:
October 23, 2015, 05:15:00 AM »
Thanks Andy for sharing the updates
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Sharmin
4155
Gender:
Little A
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
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Reply #64 on:
October 27, 2015, 08:03:35 PM »
Thank you for sharing Andy. As parents we champion the lower intensity to protect our children from the affects of the preparation.
Wishing this group success,
Sharmin
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Sharmin
catchR
88
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #65 on:
October 28, 2015, 06:41:58 AM »
Thanks Andy for the update! good to hear that progress was being made at SKCC.
Andy, was there any other information that was shared in the meeting. how well were the patients coping, hb raise, etc.
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Bostonian_04
395
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Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
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Reply #66 on:
October 28, 2015, 06:03:08 PM »
Andy,
Thanks for sharing the update. multiple options for Gene therapy will always be useful for the patients. Hoping for more good news in ASH conference in December.
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Quis custodiet ipsos custodes ? - Plato
Canadian_Family
1064
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #67 on:
August 03, 2016, 08:14:43 PM »
Primary results delayed by another year. Now July 2017......
https://clinicaltrials.gov/ct2/show/NCT01639690
Andy had already briefed us the situation in Sloan Kettering and politics going on. Please make your own conclusion.
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Andy Battaglia
8793
Gender:
Will thal rule you or will you rule thal?
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #68 on:
August 04, 2016, 11:04:00 PM »
They may just want to study it for another year. My understanding is that the rise in Hb has been steadily going up, but at a slow pace. I'm sure they want to see that this continues, even if slow, before making any conclusions.
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Andy
All we are saying is give thals a chance.
Canadian_Family
1064
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #69 on:
August 05, 2016, 01:41:02 PM »
Fair enough.
Thanks Andy
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Canadian_Family
1064
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #70 on:
August 08, 2017, 04:23:37 PM »
Another year delay. Estimated completion time has no been extended till July 2018. The study started in 2012. Not sure if they are on right track.....
https://clinicaltrials.gov/ct2/show/NCT01639690
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Sharmin
4155
Gender:
Little A
Re: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering
«
Reply #71 on:
August 09, 2017, 04:11:00 AM »
I spoke with Pat yesterday. He is still in court fighting for these trials to resume. This is the best vector, but trials have been stalled.
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Sharmin
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