2 1/2 yr old will be getting BMT

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Offline CamisMom

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2 1/2 yr old will be getting BMT
« on: November 18, 2012, 03:44:55 PM »
Hi guys,

I posted questions a while ago regarding a BMT for my 2 yr old.  We have decided to go forward with this decision.  If you would like to join his journey (if you are curious of the process), you can "like" his update page on Facebook. I would love other Thal patients see this process and see his updates. 

https://www.facebook.com/TeamCami

This has been one of the hardest decisions that my husband and I have ever had to make.  Every day I'm thinking about what could go wrong but also thinking of the amazing feeling it will be if Cameron is cured.

:)

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Offline Pratik

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Re: 2 1/2 yr old will be getting BMT
« Reply #1 on: November 18, 2012, 05:26:18 PM »
Hi Camis's Mom,

I wish you very luck and I will pray for the good news.

-P.
Every child is special.

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Offline CamisMom

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Re: 2 1/2 yr old will be getting BMT
« Reply #2 on: November 18, 2012, 07:05:51 PM »
Thank you :)

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Offline Pratik

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Re: 2 1/2 yr old will be getting BMT
« Reply #3 on: November 18, 2012, 07:17:41 PM »
As a side note, 2 of my closest relatives did BMT in India, both around an year ago, of which one is 12 years old and other is also 9-10 years old, and a year has passed and both are now good and healthy.

BMT is showing significant quality increase as time passes. :)

-P.
Every child is special.

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Offline EugenioLaMesa

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Re: 2 1/2 yr old will be getting BMT
« Reply #4 on: November 19, 2012, 07:40:34 AM »
I've liked the page and I'll pray for the child.


All the best.
Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook: http://fb.com/CureThalassemia

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Offline CamisMom

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Re: 2 1/2 yr old will be getting BMT
« Reply #5 on: November 19, 2012, 10:14:33 PM »
Thank you Eugenio LaMesa :) Your prayers are so appreciated!

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Offline Sharmin

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Re: 2 1/2 yr old will be getting BMT
« Reply #6 on: November 20, 2012, 02:14:46 AM »
Wishing you all the best on this journey  :hugfriend
Sharmin

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Offline aabha

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Re: 2 1/2 yr old will be getting BMT
« Reply #7 on: December 15, 2012, 05:29:00 PM »
All the Best....will pray 4 u

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Offline Himanshu Kumar

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Re: 2 1/2 yr old will be getting BMT
« Reply #8 on: December 17, 2012, 05:26:43 AM »
Our prayers and best wishes are with you.

Regards,
Himanshu
Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.

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Offline samyuktha

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Re: 2 1/2 yr old will be getting BMT
« Reply #9 on: December 30, 2012, 05:14:34 PM »
Hi Pratik,

Where did your close relatives get their BMT dine in India? At what age did they get their BMT done?
S.Vijayalakshmi

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Offline Pratik

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Re: 2 1/2 yr old will be getting BMT
« Reply #10 on: December 30, 2012, 05:35:33 PM »
Hi Pratik,

Where did your close relatives get their BMT dine in India? At what age did they get their BMT done?
I mentioned age in my previous same reply. :)

One did got at Madras and the other one at Ahmadabad.

-P.
Every child is special.

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Offline CamisMom

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Re: 2 1/2 yr old will be getting BMT
« Reply #11 on: March 30, 2013, 09:34:46 PM »
Just wanted to give an update.  Cameron's Bone Marrow Transplant worked! The Doctor told us yesterday that she is officially stating that my baby has been cured of Thalassemia!! Thank you for all thoughts and prayers.

xoxo

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Offline Andy Battaglia

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Re: 2 1/2 yr old will be getting BMT
« Reply #12 on: March 31, 2013, 03:53:00 PM »
I've been following Cameron's progress on Facebook and this is great news!
Andy

All we are saying is give thals a chance.

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Offline Sharmin

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Re: 2 1/2 yr old will be getting BMT
« Reply #13 on: April 01, 2013, 02:50:27 AM »
Cami's mom,

Thank you for sharing this wonderful news, I too have been following his progress on facebook.  Those are the words every parent of a thal major lives to hear. 

Much love,

Sharmin
Sharmin

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Offline EugenioLaMesa

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    • Cure Thalassemia - Life without Thalassemia major No more transfusions
Re: 2 1/2 yr old will be getting BMT
« Reply #14 on: April 01, 2013, 07:04:23 AM »
I'm very happy for the good news and I'll keep praying.
Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook: http://fb.com/CureThalassemia

 

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