TIF World Congress Abu Dhabi 2013 - the website is now live!

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TIF World Congress Abu Dhabi 2013 - the website is now live!
« on: January 18, 2013, 05:51:59 PM »
Hi Everyone!
Im pleased to inform you that the website for the Thalassemia International Federation World Congress website is now live.
Please visit www.tif2013.org if you have the chance. You can also "like us" on Facebook and follow news on Tweeter.
Hope you will be able to join us and Happy new year!
Manuela

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Offline Andy Battaglia

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #1 on: January 19, 2013, 03:48:59 AM »
I hope I can find a way to go. The cost to attend is an issue. The TIF conferences present a unique opportunity for me to make contacts, learn from the best doctors and researchers, and meet the people whose lives I have tried to help. I hope anyone who is able to attend, does so.
Andy

All we are saying is give thals a chance.

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Offline Lena

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #2 on: January 22, 2013, 12:03:22 PM »
I may come, too, Andy. By the way, I met this weekend our Greek representative at the TIF Board of Directors and told her about thalpal. I think it is worthy to talk over about this site and spread the word.

Best wishes to all,
Lena

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Offline Andy Battaglia

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #3 on: January 22, 2013, 03:23:09 PM »
Thanks Lena. I am finding that after many years of hard work, we are seeing thalpal recognized by many thal related organizations as their friend and even partner in one instance. The goal of reaching out to the entire thal world is more a reality every day. I find there is no substitute for the conferences in terms of making contacts and learning about the latest developments in treatment. I missed the TIF Turkey conference but I truly hope that this next one will be possible for me.
Andy

All we are saying is give thals a chance.

Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #4 on: January 22, 2013, 05:19:13 PM »
Dear Andy & Lena,
Thank you for your supporting words and I really hope you will be able to attend.
The preliminary educational program for the patients and parents is now available on the website
http://www.tif2013.org/patients_program.html
Best wishes
Manuela

Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #5 on: January 23, 2013, 05:18:05 AM »
Hi Andy,

I always fall short of words to appreciate what you have done for so many thal patients around the world. The least we can do is help raise money to make such useful trips possible. I have your address on one of the posts, I will mail a cheque donation. I am certain your trip to this conference is going to be useful for all of us.

Thanks again!

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Offline Pratik

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #6 on: January 23, 2013, 06:55:37 AM »
Andy,

I'll also donate a few bucks for the ticket if you're required to go and attend this conference. Please let us know. You've already done so much for us and as sumit told, this is the least we could do. :)

-P.
Every child is special.

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Offline zahra

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #7 on: January 24, 2013, 08:51:05 AM »
I am so excited this is in our city.
Zahra

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Offline Andy Battaglia

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #8 on: March 04, 2013, 02:33:58 PM »
As things currently stand, patients will not be allowed into the scientific programs. We went through this in Singapore and I will not go through it again. Until TIF changes their minds and their attitude, I cannot endorse this conference and will not plan on attending. The conferences have to be about more than sight seeing and partying. Until TIF takes a stand in favor of the rights of patients, I will not support TIF.
Andy

All we are saying is give thals a chance.

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Offline Lena

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #9 on: March 07, 2013, 10:47:30 AM »
I agree with you, Andy. Unless we are allowed to attend, there is no reason for us to go. If we want to stroll around for tourism, we do it on our own.

Lena

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Offline zahra

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #10 on: March 08, 2013, 03:07:02 AM »
Is there a way to influence them to change this?
Zahra

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Offline joyce

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Re: TIF World Congress Abu Dhabi 2013 - the website is now live!
« Reply #11 on: March 27, 2013, 03:16:54 PM »
I really would like to donate some Andy, if u're going.. We support evry decision u make.
Coz we Lovvveeeeee u for evrything u hv done to Thallsmia Patients & friends..

Regards- Joyce!

 

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