Hi fellow thalassemics

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Hi fellow thalassemics
« on: June 14, 2013, 08:44:18 PM »
Hi everyone iam new on here, i was very happy to find this website as it would be great to talk to others who have my condition! I have never met anyone else who has thalassemia major. Iam 31 years old, i go for a transfusion every 4 weeks and my ferritin is 600. Iam on dessferal which i take 4 times a week. Anyone in similar situation feel free to msg :)

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Offline Rashmi

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Re: Hi fellow thalassemics
« Reply #1 on: June 15, 2013, 06:03:40 AM »
Hi Nicole,

Welcome. Here we are all brothers, sisters and friends. You will get a lot of support. Feel free to put up your questions and feelings.

Love and luck
Rashmi


Keep calm and face.

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Offline Dharmesh

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Re: Hi fellow thalassemics
« Reply #2 on: June 16, 2013, 07:39:55 AM »
Hello Nicole,

Welcome to the group :)

I am also thal major , taking desferal and defrijet

This place is very nice for thals.. keep posting
Start listening your body, it always gives signs

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Offline Pratik

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Re: Hi fellow thalassemics
« Reply #3 on: June 16, 2013, 09:54:15 AM »
Hi Nicole,

Thalpal welcomes you! :)

Feel free you share your feelings and ask questions.

Best,

-P.
Every child is special.

Re: Hi fellow thalassemics
« Reply #4 on: June 16, 2013, 01:14:26 PM »
Aww thanks everyone :) this is great, nice to know i can come and chat to you guys, sometimes people just dont get what its like haveing a medical condition like ours.

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Offline Andy Battaglia

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Re: Hi fellow thalassemics
« Reply #5 on: June 16, 2013, 03:43:10 PM »
Hi Nicole,

Your ferritin level is good. Have you also had liver and heart scans to measure iron loading in your organs?
Andy

All we are saying is give thals a chance.

Re: Hi fellow thalassemics
« Reply #6 on: June 16, 2013, 04:43:56 PM »
Hi Andy, yes i have MRI scans every couple of years.  There is no iron in my heart (touch wood) and just a very small amount in my liver which my consultant said not to worry about as its not a lot.  I have always taken my medication from a very young age, something which i want to tell other thal's to also do as it pays off in the long run.

Re: Hi fellow thalassemics
« Reply #7 on: September 11, 2013, 12:48:43 PM »
Hi Nicole,welcome to the group.its such great support to talk to others in same situation! What country are you from?

Re: Hi fellow thalassemics
« Reply #8 on: September 16, 2013, 01:18:14 PM »
Hi Nicole,
Welcome to thalpal. It is very nice to know about you ,tell us something more about  you ?

All the best

Shrikant

 

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