Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India

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Offline EugenioLaMesa

  • Cure Thalassemia co-founder and chairman
  • *****
  • 61
  • Gender: Male
    • Cure Thalassemia - Life without Thalassemia major No more transfusions
I'de like to inform the thalassemia families that Dr. Pietro Sodani and Cure Thalassemia plan to start before the end of 2013 BMT from haploidentical mother to child with thalassemia in India at the Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre.
A thalassemia child can do a BMT in India even if he doesn't have an HLA-matched donor, using the protocol 30 invented by Dr. Sodani. It took many years of work, but now here we are!
You can read more details in this post of the Cure Thalassemia blog:
http://www.curethalassemia.org/blog/2013/08/dr-sodani-plans-to-start-before-the-end-of-2013-bmt-from-haploidentical-mother-to-child-with-thalassemia-in-india/
Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook: http://fb.com/CureThalassemia

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Offline Pratik

  • Thal Major.
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Wonderful!

I've one question. Is there any age group barrier? For example I'm 18 so are there any risks involved in case someone of my age wants to try? Not saying I want to, but info is always good, and if it advances well, why not give a shot maybe?

-P.
Every child is special.

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Offline EugenioLaMesa

  • Cure Thalassemia co-founder and chairman
  • *****
  • 61
  • Gender: Male
    • Cure Thalassemia - Life without Thalassemia major No more transfusions
Thanks for your question.
As you can read in the FAQ of the Cure Thalassemia website (http://www.curethalassemia.org/faq/), Dr. Sodani doesn't recommend BMT for patients older than 17 years, because the risk is too high.
The best results are with young (<7 years) children.

Best Regards,
Eugenio

Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook: http://fb.com/CureThalassemia

*

Offline Pratik

  • Thal Major.
  • *****
  • 826
  • Gender: Male
I see. Not a problem. We wait for gene therapy then. ;)

Hope is life.

-P.
Every child is special.

 

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