Seizure and E Beta Thalassemia

  • 36 Replies
  • 27536 Views
*

Offline Lokkhi maa

  • ****
  • 412
  • Gender: Female
Re: Seizure and E Beta Thalassemia
« Reply #30 on: May 26, 2016, 11:22:39 AM »

Hello Andy,

My baby development is much better then earlier.Now she is so much active and could understand the environment.She does not make sound but when we call her she make eye contact and could understand our language.

All of developments are ok and normal but speech not so much improve.But sometimes she make new sounds and words.

As phenobarbital delay speech so we are waiting for the weaning off the medicine.Already doctor has reduced 2 ml.Also we are very worried for the low dose result.Hope the low dose will not raise any problem... 
Lokkhi Maa

*

Offline Lokkhi maa

  • ****
  • 412
  • Gender: Female
Re: Seizure and E Beta Thalassemia
« Reply #31 on: August 01, 2016, 10:51:38 AM »

Dear All,

Now my baby taking Phenobarbital only 1 ml without any problem.

Please pray for her as she get normal good life..
Lokkhi Maa

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Seizure and E Beta Thalassemia
« Reply #32 on: August 04, 2016, 11:05:20 PM »
It's good to see progress. :thumbsup
Andy

All we are saying is give thals a chance.

*

Offline Lokkhi maa

  • ****
  • 412
  • Gender: Female
Re: Seizure and E Beta Thalassemia
« Reply #33 on: August 06, 2016, 07:23:28 AM »

Thanks Andy.. :smiley :smiley
Lokkhi Maa

*

Offline Lokkhi maa

  • ****
  • 412
  • Gender: Female
Re: Seizure and E Beta Thalassemia
« Reply #34 on: September 19, 2016, 08:04:47 AM »

Hello Andy,

At last after 3 yrs now my baby got free from phenobarbital without any problem.Now she is fine.

She understands our all instructions and words but only her speech still not any remarkable progress.Otherwise all development is ok.

Please pray..
Lokkhi Maa

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Seizure and E Beta Thalassemia
« Reply #35 on: September 24, 2016, 05:03:27 PM »
She is coming along well. I am happy to hear she is off the drug. If her speech does not develop, she may need some speech therapy in order to catch up.
Andy

All we are saying is give thals a chance.

*

Offline Lokkhi maa

  • ****
  • 412
  • Gender: Female
Re: Seizure and E Beta Thalassemia
« Reply #36 on: September 25, 2016, 09:36:46 AM »

Thanks Andy.

Your words inspired us...  :heartpink :heartpink
Lokkhi Maa

 

SMF spam blocked by CleanTalk