how much exjade for long term users

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #15 on: February 19, 2016, 11:05:49 AM »
htuongvy,

Are there any other forms of Exjade (Asunra, desirox or similar) available to you? Or Kelfer?

There is only Kelfer and Exjade, but now Kelfer is not available.
If i want to buy online, what website is reliable?

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #16 on: February 20, 2016, 06:13:12 AM »
My son has just tested the ferritin this morning. It is now 370. So i stop Exjade or still use the maintaince dosage?

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Offline Nomad

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Re: how much exjade for long term users
« Reply #17 on: February 21, 2016, 12:21:27 PM »
You can also lower the dosage for a while. In arrangement with your doctor about the exactly amount  of course.

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Offline Dharmesh

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Re: how much exjade for long term users
« Reply #18 on: February 21, 2016, 01:16:40 PM »
Hi HANUMANTAASHRIT,
What do you mean DFP, DFX ?Would you pls explain for me?  Iam not good at English, but i try my best for my son :( 

DFP = DEFERIPRONE = KELFER = FERRIPROX = L1

DFX = DEFERASIROX = ASUNRA = EXJADE

the short forms helps while writing a post. sorry it caused trouble to u
Start listening your body, it always gives signs

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Offline Dharmesh

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Re: how much exjade for long term users
« Reply #19 on: February 21, 2016, 01:19:16 PM »
There is only Kelfer and Exjade, but now Kelfer is not available.
If i want to buy online, what website is reliable?

Means till date Kelfer was available in Vietnam?
Why they stopped supplying Kelfer there?
Do you have any information about it?
Start listening your body, it always gives signs

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #20 on: February 21, 2016, 03:23:36 PM »
DFP = DEFERIPRONE = KELFER = FERRIPROX = L1

DFX = DEFERASIROX = ASUNRA = EXJADE

the short forms helps while writing a post. sorry it caused trouble to u
.  I understand.  Thanks so much. I use tranlate.google, so that my english is not fluently. I hope you understand.
« Last Edit: February 21, 2016, 03:32:38 PM by htuongvy »

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #21 on: February 21, 2016, 03:29:23 PM »
Means till date Kelfer was available in Vietnam?
Why they stopped supplying Kelfer there?
Do you have any information about it?
    I can't buy directly from Kelfer. I buy from a mediate pharmacy. They import kelfer for a long time. But now they stop. I don't know the reason.

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #22 on: February 22, 2016, 04:13:09 AM »
I have just ctc with another pharmacy, they have EFFEREX ( DEFERIPRONE ). Is it ok ? It is useful for chelating iron in heart. Is that right ? So that my son need MRI test in order to know where iron overload ? with his ferritin abou 1100 ( now decrease 370 ) i don't need to worry so much, do i ? I can't sleep every night when i think about him

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Offline Andy Battaglia

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Re: how much exjade for long term users
« Reply #23 on: February 22, 2016, 09:46:50 PM »
Deferiprone is the same drug as Kelfer and Ferriprox. This is a good solution.
Andy

All we are saying is give thals a chance.

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #24 on: February 23, 2016, 06:12:10 AM »
Deferiprone is the same drug as Kelfer and Ferriprox. This is a good solution.
Tks Andy. Tks all

 

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