Dear Sharmin, nothing is difficult for the Creator of your son, of us and all our children. I pray that He makes the difficult easy for Little A and for every member here. Aameen.
Please don't be worried about 'making noise' when it comes to your child. Better still for him to be the one to tell them how it is. With all my heart, I get how you feel.
Here is a saying of Prophet Muhammad, peace and blessings be upon him, if you don't mind me sharing;
''When you visit a sick person, (minor sickness or a major sickness), then tell him to make dua (supplications) for you because his duas are accepted readily like the duas of the Angels.''
Our children are extremely precious and they carry Golden Prayers on their lips and in their hearts...readily accepted.
Prayers...and the voice...powerful tools...they will just have to listen.
Little A knows his body best. They can't argue with that.
I pray for the best of health and a very long and happy life for A.