Should we stop Hydroxy Urea?

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Should we stop Hydroxy Urea?
« on: May 03, 2016, 04:02:29 PM »
Dear Andy  and others
My  son is on Hydroxy Urea for last three years. But it is not working. Earlier he needed transfusion every two months, now he needs transfusion every month. Should we stop or continue?  Is there any other benefits of HU? please suggests. Thanks and regards...

Anjan, India.

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Offline Andy Battaglia

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Re: Should we stop Hydroxy Urea?
« Reply #1 on: May 04, 2016, 02:35:23 AM »
If monthly transfusions are needed after 3 years of use, I don't think it's worth continuing it.
Andy

All we are saying is give thals a chance.

Re: Should we stop Hydroxy Urea?
« Reply #2 on: May 05, 2016, 03:36:58 PM »
Thank you Andy . His spleen is normal and remains active even when HB is low. Is  it due to Hydroxy Urea? Is there any other benefits of Hydroxy Urea?
Thanks and regards

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Offline Andy Battaglia

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Re: Should we stop Hydroxy Urea?
« Reply #3 on: May 10, 2016, 11:02:05 PM »
Do you know if the percentage of HbF has risen while he has been on hydroxyurea? Even when the Hb stays the same, if the HbF rises significantly, it shows that there is a reduction in bone marrow activity as more good fetal hemoglobin is produced, as opposed to the hemoglobin in the defective red blood cells normally produced. This would also reduce the filtering of red cells by the spleen.
Andy

All we are saying is give thals a chance.

Re: Should we stop Hydroxy Urea?
« Reply #4 on: May 11, 2016, 07:37:29 AM »
Thank you. God bless...

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Offline Dharmesh

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Re: Should we stop Hydroxy Urea?
« Reply #5 on: May 12, 2016, 01:51:31 PM »
Wheatgrass tablets/powder is must with HU
Start listening your body, it always gives signs

 

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